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On table for orchiectomy - mass disappeared???

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  • On table for orchiectomy - mass disappeared???

    Hi, I wasn't sure if this counted as pre-diagnosed or not, but I'm hoping someone has had a similar experience or could at least shed some light on this.

    I'm 32. Beginning in Feb I had pain/discomfort in my left testicle radiating into my lower abdomen and upper inner thigh/groin. Pain is mild, but sometimes quite annoying. Dull ache, pulling feeling. I checked both testicles and couldn't find a lump. After a week of this I went to the dr.

    Dr. called in an ultrasound which showed a "small undefined area" *in* the left testicle. (I later found out that it's better described as a 1.5 cm hypoechoic (solid) area with undefined borders - "just sort of blends in with surrounding tissue".)

    Dr. figured it was an infection, gave me antibiotics, and called in another ultrasound for 2 weeks after I finished the meds just to make sure it went away.

    Ultrasound #2: "No Change"

    So, my dr. sends me to a urologist. Still no lump, but the right one hurts sometimes too, now. Urologist checks tumor markers (AFP, HCG) which both come back "less than 2". Urologist says she thinks we're heading to the OR to do a biopsy with possible orchiectomy. Fine, at leat I'll know. But, she wants to do one more ultrasound just to be sure there is no change.

    Ultrasound #3: Different ultrasound place, machine, and technician. "No Change"

    They schedule the operation for 10 days later. I get one more appt. with the urologist. I ask questions. There aren't many answers. I ask about the right testicle and it ends up that there is fluid buildup around it. Not sure why, but it was on the second ultrasound as well, but not the first. She checks me one last time. Still discomfort. Still no lump.

    So, I wait for the surgery. Meanwhile, I'm getting weird symptoms coming and going. Leg cramps, mostly on the left. Back pain, mostly lower but some in my left side and left shoulder. Dry cough in morning. I'm thinking I'm either the biggest hypochondriac there is, or there could be something really wrong here.

    I go in for surgery. They knock me out and, appearantly, shave me. Put me on the table. Pull out the ultrasound machine for one last look...nothing. They call in the radiologist, who scrubs in and looks for over a half hour. They can't find anything in either testicle. So, they wake me up and send me home. No operation. No answers, really. I've still got the pain/discomfort in the left testicle.

    That was today. I've got another appt. with the urologist this coming Wed. The nurses said she wanted to make it "as soon as possible". No one really could tell me why.

    Honestly, I'm a little freaked out about the whole thing. Maybe it's still the drugs wearing off, but like my wife said, "We prepared for just about every possibility today, except that one."

    Anyway, if anyone has any insight or a similar story, I'd really love to hear it.



  • #2
    This won't help but I'm at a lose also. I would think that once you were under they would get a biopsy done. In some places they check the testicle and if it's ok they put it back. I'm sure someone will check in with a reasonable answer. All of your other symptoms are probably nothing. You can't imagine how many people have unrelated symptoms once they start worrying.
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


    • #3
      Yeah, I think the reason they didn't do the biopsy is that there was no lump. It was supposed to be an ultrasound guided needle biopsy, and I guess once you can't see it on the ultrasound you're pretty much flying blind. Still, it would be nice to know.

      I figured the other symptoms were psychological and/or bc I'm holding myself different from the discomfort. But, I guess your mind can get carried away when all you read is cancer articles for a couple of weeks straight.

      Thanks for the reply. I'm glad you and your son have made it through this ok.



      • #4
        emoose, thats a new one on me! i, like yourself, dont think they would of endured the operation if not deemed necessary. this stuff can play alot on your minds and make minute things seem grand. just try and stay vigilant about this in the next few weeks and see what happens. waiting is always the hardest but i'm sure things will be fine. keep us updated!!
        diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008


        • #5
          Thanks (and congrats on your baby girl!)

          I'm seeing my Primary Dr. today to see if I can get a referral to a urological oncologist for a second opinion.

          The more I find out about what happened on Friday, the weirder (and more worrisome) it gets. My wife said the urologist seemed very unwilling to say that this was a "good thing". She merely said that she decided to call off the operation instead of going in blind, which was pretty much what I thought.

          When asked if it could've been an infection or infarction that just resolved itself, the urologist said, "no".

          When asked how this could've happened the urologist said she didn't know and mentioned something about it being a different machine.

          The only other thing she offered my wife at the time was that we should monitor this.

          I have an appt. with her on Wed to go over what happened in the "operation" and see what she suggests we do next.

          Meanwhile, I'm having a pretty rough time getting back to a normal routine with all this going on. I was supposed to be recovering from surgery this week, so I'm sort of lost right now.

          People that I tell about this think that I should go out and celebrate, but I'm just not sure I'm quite there yet. Not until I get some explanation, anyway.

          Thanks, again...


          • #6
            peace of mind accounts for alot more than you think. good luck and keep us posted!!
            diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008