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Anyone else out there with testicular hardeneing?

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  • #31
    Brandon,
    You've had a heck of a time these past 2 weeks. I hope you can catch your breath a little after tomorrow. You were very wise to follow up on the enlarged testicle. Hopefully you and Shatzie will both be back to enjoying a healthy and happy life very soon! Take care!
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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    • #32
      Scan Clear!!

      The scan came back clear!! They are still doing pathology on the tumor, but the CT came back with an all clear. Sounds like we will end up doing a little radiation and the go into surveillance. We sill do blood, CT, and x-ray every 3 months for two years. Sounds fine to me. Everyone is so relieved and we are just hanging out waiting to hear from the doc for an actual schedule of treatment. thanks guys for the support and for all your answers to my questions. This is a great place. I have never done the forum thing before, but I would like to continue being a part of this group. If I can help one person in a similar situation feel a little more comfortable or answer a question that would be just great.
      Thanks again everyone,
      Brandon

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      • #33
        It sounds like you have a treatment plan in place. When you have all the specifics please post them. Good luck with your treatments.
        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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        • #34
          Excellent news!!!! Please let us know the final pathology report and good luck with the RT. This will be behind you soon!!!!
          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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          • #35
            When to you expect to hear about your final pathology report? Hopefully it is pure seminoma as that makes treatment a little more straight forward - although as dadmo stated that with your I/O you may be cured and surviellance may be an option.

            Your pathology report will give you indication of the size of your mass and staging - whether it had vascular or lymphatic invasion - the things that are needed for it to spread - so that even with a clear CT there may be some microscopic cells that have made it elsewhere - mostly the abdominal lymph nodes - which is the reason why radiation treatment is an option often recommended when you have vascular and lymphatic invasion (or sometimes if the mass is large even without these) to reduce the odds of a reoccurence.
            Mine was fairly large with vascular and lymphatic invasion but clear CT, so I went with the RT as I felt the odds of reoccurence were high enough to make me worry too much in the future.

            I hope you will be meeting with an oncologist to discuss the options for your future treatment and surveillence - all of this was so confusing when I went through it and no one ever told me what doctor played what role. Your oncologist is who will guide you through your treatment and surviellence - and if you ever need further treatment in the future. I still am having follow ups with my urologist, and will have one last meeting with the radiation oncologist that handled my RT, but it will be the oncologist that I will be having follow-ups with in the future - every 3 months first 2 years (bloodwork, chestXR, yearly CT), then every 6 months for years 3-5, and yearly for life after that.

            Agaiin, I hope your final pathology report will indicate pure seminoma and very early staging. In any event, your TC is very treatable and the people in this forum and the library information are a great sources of information.
            Right I/O 4/17/06, Seminoma Stage Ib
            RT (15 days) completed 6/1/06
            All clear as of 5/8/09

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            • #36
              Great news, Brandon! It is a long process but you do get through it and you will be fine. Dianne
              Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
              Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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              • #37
                So... I got the call today....a message...sounds like we had a little embryonal in there too. I have a meeting with an oncologist on Tuesday and we will see what the plan is. I will keep you folks posted.
                -B

                SANS--
                thanks for the input. I will definitely let you know what all the details are once I see the doc Tues.

                ALSO---Did anyone else have any leaking from their sutures? It is not a lot. But I am spotting my nice clean sheets. It has been a week I would have thought that the thing would have stopped by now. It may be because I am being too active. Just wondering if anyone else had/is having the same problem from the small (yeah right) inscision?

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                • #38
                  Mention to your doctor that the incision is still weeping but go easy on the activity.
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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                  • #39
                    If it's not pure seminoma, it will be treated as non-seminoma. Surveillance may be a good choice.
                    Scott
                    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                    • #40
                      Hey guys,
                      we are in the process of getting a second opinion. Because the seminoma was in such an early stage they may treat this like pure seminoma. The doc seemed to think that perhaps the best way to go might be radiation therapy. That is the way they think we will go. Larry Einhorn is the second opinion so I will probably just do whatever the man says.
                      Like always I will keep you posted.
                      -Brandon

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                      • #41
                        I may be wrong, but I predict Dr. Einhorn will suggest surveillance. Let us know!
                        Scott
                        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                        • #42
                          Brandon:
                          Always remember that the final treatment decision is yours alone, but it's going to be hard to beat Einhorn as a resource. Good luck with what ever you decide. Please keep us posted.
                          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                          Comment


                          • #43
                            Brandon,
                            You're wise to get a second opinion on this from an expert. I hope your incision is getting better.
                            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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