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Muzz

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  • Muzz

    Hey everyone. I just stumbled on this site yesterday and am really excited to see that such a great support network exists. I was diagnosed with a mixed germ cell tumor in 1995 at the age of 18 and there really was nothing (at least nothing that was easy to find) out there for us back then.

    Anyway, here it goes. About five weeks ago now I began noticing a familiar ache in my lower abdomen. Within about a week, it became obvious that the pain seemed to be tied in some way to my remaining testicle. I went to see the doc once I realized this, hoping that I may have injured it somehow, or that it was just a case of epididymitis. The doc gave me Motrin--affectionately referred to in the military as Vitamin M due to the common belief among military doctors that it has a miraculous ability to cure anything--and said to wait it out a couple of weeks and see if the pain gets better. I kept a close eye on it for those couple of weeks and although I still don't feel a lump, the testicle size and shape have changed and the pain has remained a constant dull ache throughout.
    (Note: During my first bout with TC--and being a non-seminoma--my tumor markers were incredibly elevated. I have had those same tumor markers monitored since and although they came back a little high in March and June, they are nowhere near the level they were when we know I actually had the cancer.)

    I was referred to and saw a Urologist on Thursday who reordered labs, along with a ultrasound and chest x-ray, which I had on Friday. Once again, the wait begins.

    Now I get to the reason I am posting on this thread. I have had many ultrasounds throughout the years but this one just seemed different--could be all in my head though. During the initial part of the procedure the tech was talkative and actually paid attention to what I was saying. As she got to the lower part of my testicle (the source of the pain) her demeanor changed and she pretty much ignored me. She also began snapping images as a much higher rate as well as saying she had to change the attachment so she could "measure this." The final thing that got me was that she told me twice to stay in the room while she showed the film to the radiologist, the second time she even said "Make sure you don't leave."

    I fully expected her and the radiologist to return and say sorry dude, that thing is coming out tonight. It didn't happen that way though. She returned and said just this "You're good to go, your doctor should get the results in two to three business days." No friendly send off, not even a goodnight or goodbye.

    Here are my questions for anyone that has ultrasound experience:

    1. I realize that it is against protocol for the tech to give me any form of results but has anyone out there been sent away for more than a couple of days when the results clearly showed a mass?

    2. Has anyone had an ultrasound where the tech didn't say something along the lines of "Everything looks alright from my end."?

    3. I don't remember anyone ever saying they needed to measure something. Is it common to measure the testicle itself?

    Sorry this is so lengthy and please know I am not looking for any definitive answers, just a discussion to pass the time until Wednesday. Thanks in advance for any replies.

    J
    10/10/1995 - I/O right side.
    10/31/1995 - RPLND

  • #2
    Dear Muzz,

    I had my first ultrasound 1 month ago.. and the doctor told me during the exam that there was a cancer.. he even guessed the type.. (seminoma) and the stage (1).

    So I think that if they told you "you are good to go" .. you will be fine :-)

    Anyway.. I'm in Europe .. and I don't know if in USA there's some reason why they don't tell you the result of the exam during it...

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    • #3
      Welcome, Muzz. What you did hear from the technician sounds suspicious, though as you said already, you won't get any definitive answers until Wednesday. I can tell you that when I had my ultrasound, the technician gave similar clues but left it up to my urologist to interpret the results for me. Hang in there, and let us know as soon as you hear more.
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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      • #4
        Hey Muzz,

        Welcome. My interpretation is that the "good to go" meant the tech had obtained satisfactory images for the radiologist to interpret and was not a comment on what she found.

        The waiting sucks but with the labs, chest X-ray and US results coming in a day or so you'll have the answers. What type of non-sem did you have the first time and what treatment? What were your markers in March and June?Please post back and let us know the results.
        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

        Comment


        • #5
          Thanks everyone for the replies.

          Karen,

          I had a mixed germ cell tumor with yolk sac, teratoma and choriocarcinoma. Prior to the I/O my AFP was somewhere in the 90's and BHCG was around 60. In March my AFP was 10.4 (with normal values for this particular lab being < 6.1). In June during a repeat lab, the value came back at 10.6. BHCG has been < 2 since 1995.

          I really did not expect to hear anything this weekend, but if I don't hear anything by tomorrow I will take it as a good sign. I'll send updates as I get them.

          J
          10/10/1995 - I/O right side.
          10/31/1995 - RPLND

          Comment


          • #6
            Hey Muzz,
            Welcome here. Below are specific answers to a couple of your U/S questions.
            Originally posted by Muzz
            2. Has anyone had an ultrasound where the tech didn't say something along the lines of "Everything looks alright from my end."?
            Yup. The time I was diagnosed; but that point, it was quite obvious in my case that something was wrong. My experience with the U/S techs is that they usually don't say anything, and they wait until the actual radiologist comes by and says something.
            Originally posted by Muzz
            3. I don't remember anyone ever saying they needed to measure something. Is it common to measure the testicle itself?
            Yes, they always measure the size of the testicle. That is SOP.

            As Karen has said, waiting sucks, especially after a long weekend. You really won't know anything until your doc says something, and I would call tomorrow to find out. Did you receive any other treatment when you had TC back in '95? Hang tough and stay in touch. We're here to help.
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

            Comment


            • #7
              Hey Fed, thanks for the reply. I only had the two surgeries followed by surveillance. I know that no matter what the outcome, we will be fine. My only three real concerns are not being able to have another child, followed closely by not having any cajones, followed by the serious impact it would have on my job. When I take a real look at those concerns I realize that so many others out there have it way worse than I do. At least I have great insurance, an awesome wife and an amazing little boy. Life will still be pretty darn good. Thanks again.

              J
              10/10/1995 - I/O right side.
              10/31/1995 - RPLND

              Comment


              • #8
                Yo back,
                By "two surgeries", the only thing I can assume is I/O followed by RPLND, right?
                Originally posted by Muzz
                At least I have great insurance, an awesome wife and an amazing little boy. Life will still be pretty darn good.
                You got the right idea (I highlighted the important conclusion). The anxiety and concerns you have are perfectly valid and reasonable, and it is OK that you have them (those things remind us that we're human). I'm assuming that your boy is post TC, so as a corollary, you likely have the option of sperm banking if it came to that. On the same lines, there are several guys here in the forum that have had to deal with TC twice, and are doing great otherwise.
                I'll keep my eyes peeled for any developments on your end.
                "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                11.22.06 -Dx the day before Thanksgiving
                12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                Comment


                • #9
                  Originally posted by Fed
                  ...you likely have the option of sperm banking if it came to that.
                  ...and if you do hear the testicle has to be removed and your doctor doesn't mention sperm banking immediately, you should.
                  Scott, [email protected]
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                  Comment

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