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    Dear Forum,

    I've a question for you..
    As you may remember I was diagnosed TC (Stage 1 Seminoma in late July 2007).

    Now, I've discovered that my first cousin is scheduled for a biopsy next week since the urologist found 2 solid masses inside his left testicle.
    Few months ago he had a testicle torsion that required surgery.. now since he had constant pain he visited the urologist that after the ultrasound is suggesting an extra scrotal biopsy.

    Now.. it seems to me very unlikely that he got TC since if the percentage is 5 on 100,000 it's very unlikely that 2 are in the same family!!.. (we are cousin mother side)

    Is it possible that the solid masses are depending by the previous surgery??

    thanks!..
    Last edited by fabryx; 10-14-07, 11:53 AM.

  • #2
    Hi Fabryx,
    First I wish you the best fighting TC.

    Next, my 22 your old son has TC. I have a first cousin on my mom's side that was diagnosed when he was 17. I dont remember his type only that he had chemo and is free of cancer now after, gosh, I guess about 15 years or so.

    Pam
    Son Les diagnosed 5/7/07-Right I/0 5/9/07-Stage 3C Non-seminoma Mixed Cell Germ Tumor-Tumors in liver, lungs, lymph nodes, brain-4XBED Finished 7/31/07 HCG 9 tumors smaller, brain lesion gone-9/30/07 HCG 999-TIPx4 started 10/2/07, IU 11/29 Told he had Choriocarcinoma Syndrome HDC and Stem Cell Transplant to begin 1/3/08 Finished Transplant 3/1/08 HDC and Stem Cell Transplant Failure 3/20. 4/17 RPLND & Liver resection, Molecular profiling of tumor, 6/2 Hospice Services- Passed Away 12/12/08

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    • #3
      A solid mass is almost always cancer but we do get 1 or 2 people very year who have masses that turn out to not be cancer, unfortunatly the testicle needs to be removed to find that out. The family link is an odd thing, it is compelling statistical evidence for a connection but as of now no one has been able to make a genetic link. I think that will eventually happen and I do encourage everyone who has a family member with tc to be extra vigelant in their self exams.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        Originally posted by dadmo
        The family link is an odd thing, it is compelling statistical evidence for a connection but as of now no one has been able to make a genetic link. I think that will eventually happen and I do encourage everyone who has a family member with tc to be extra vigelant in their self exams.
        To add to this, I would encourage everyone that if they know of any research studies that are trying to track down the etiology of testicular cancer to sign up. I was recently part of a study carried out by Harvard Medical School and Yale Medical Center where they are trying to figure out any risk factors for TC. I had to fill out a gazillion questionaires on eating habits, exercise habits, work exposures to carcinogens (that was a doozy),... there was drew blood, got my pathology blocks, and interviewed me, my mom and my dad. It was a very thorough study, and the findings will be released sometime next year (there are about 4,000 participants). I'll keep everyone posted on this.
        "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
        11.22.06 -Dx the day before Thanksgiving
        12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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        • #5
          Thanks to all for the answers!

          I will keep you posted!...

          Anyway the good news is that my first surveillance visit was clear :-)..

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          • #6
            fabryx.. Congrats on your first "all clear".
            If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
            If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
            Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
            My Blog

            Diagonosed 1988. Left I/O - 3 rounds of chemo
            Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
            There is Army Strong, There is Live Strong and then there is me. Crazy Strong

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            • #7
              Just an update..

              My cousin had his orchiectomy today and the result is CANCER.. it seems seminoma.

              It's quite strange that he got the cancer on the same side (left).. same patology (seminoma) and he's my cousin (mother side)

              it cannot be a casuality!

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              • #8
                Interesting thread. I have heard mixed information on whether there can be a familial connection or not. For me it seems a simple answer since my father also had TC at almost the same exact age and also a seminoma.

                I wonder if there is still any studies going on to investigate this link, if so, I would be interested in joining.

                Steve


                Originally posted by fabryx
                Just an update..

                My cousin had his orchiectomy today and the result is CANCER.. it seems seminoma.

                It's quite strange that he got the cancer on the same side (left).. same patology (seminoma) and he's my cousin (mother side)

                it cannot be a casuality!
                Diagnosed 11/07
                Stage IS (pT2 N0 M0 S1)
                4.2 CM Tumor
                Beta HCG - Pre Orchio (8) Post Orchio - (0)
                Treatment:
                Left I/O
                Single Agent Carboplatin X2
                Baseline CT Scan Clean (7 tiny pulmonary nodules all less than 4mm, probably histoplasmosis scars)
                First CT follow-up 5/7/08 ALL CLEAR!!
                Second CT follow-up 8/15/08 ALL CLEAR!!
                Third CT follow-up 1/27/09 ALL CLEAR!!

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                • #9
                  Check this link for details.
                  Scott, [email protected]
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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