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Dont know what to do (im 15 yrs old)

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  • #16
    I am glad you have told your parents, My son never told me about a lump that kept coming and going and was going to Doctor's with a pain in his side after weeks of painkillers he started to lose the use of his legs. Consultants found out that he had spinal compression due to secondary cancers they found these before the actual testical cancer he had stage 3 Teretoma and had spread to liver lung and lymphnodes He was 17 at the time and had 4 rounds of bep chemo finished in August in Oct had 5 days radiotherapy and just started 3 rounds of TIP chemo which will take up to Xmas. All this has happened since march, but alot of it could of been avoided if he only told me earlier and he has found out the hard way he is now in a wheel chair. His life is on hold but yours need not be I would not like any parent to go through what we have gone through this year it is so treatable.
    Kevin (17yrs) Diagnosed March 2006
    Stage 3+
    spread to spine,lung and liver.
    Paralised Due to spinal Compression With Sheer determination started to Walk again be it with crutches
    4 X Bep 3X Tip 5 days Radiotherapy. Spread to his brain 8th Feb 07 passed away 15th Feb 07.

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    • #17
      thank you icoe and scott and timothye from other post in other forum

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      • #18
        is your son going to be ok icoe?

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        • #19
          Originally posted by jesse111555
          thank you icoe and scott and timothye from other post in other forum
          ANytime m8 . im here if you need to chat / converse with anyone ..
          as scott said
          See, you did it! Now you never have to do that again
          very very good that you told them .
          keep us posted
          Cheers T
          My experience .
          Metastasis tumor 18cm x 8cm
          Orchiectomy 2006/06/12
          4xBEP 2006/06/26-2006/08/28
          RPLND 2006/10/12
          Life is too short , Take charge today , Be strong & Live strong .

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          • #20
            Kevin coping very well with all the treatment, After the 18 weeks chemo from March- August his Tumor markers are back to normal better than the Consultant expected as the cancer was quite advanced. He can walk on crutches but only around the house, After PET scan showed that there was some active cells left they decided to monitor him monthly as do other patients, but in October his was losing the use of his legs again so thats why Radiotherapy was use to shrink any compression on his spine. They decided to treat with more Chemo now to give the remaining cells a blast before they take hold again. The Consultant is pleased with Kevin's progress his liver is clear and his lung is clear it is the lymphnodes that are the major problem surgery is not an option as they are to near the spinal cords, He had already had a 6 hour op on his spine to try to save his legs. It has been a long struggle the last 9 months but we will get there in the end. the only thing he is not looking forward to is losing all his hair again as he had just got it all back after the last lot of chemo. but thats teenagers for you. But he is in good spirits and as the help of family and his friends to help him through it all.I would just like to say that this site if you have any queries you can find someone going through or have had similar problems with the effects of chemo and advice who to handle things.
            Kevin (17yrs) Diagnosed March 2006
            Stage 3+
            spread to spine,lung and liver.
            Paralised Due to spinal Compression With Sheer determination started to Walk again be it with crutches
            4 X Bep 3X Tip 5 days Radiotherapy. Spread to his brain 8th Feb 07 passed away 15th Feb 07.

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            • #21
              well im glad to see your son is doing better sucks that he has to loose hair again o.0 well thank you !! icoe

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