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  • #16
    Originally posted by chemo boy View Post
    I didn't read that Vinny's totals were the negotiated price. Who knows what they were to start.
    Since you asked, here's the undiscounted prices:

    Orchiectomy $8,300
    4xBEP, including miscellaneous scripts and Neulasta injections $94,000 (the Neulasta shots were about $18,000 in total - after the first one I had them home delivered and a friend administered them - saved big bucks)
    CT scan and radiologist fee $3,200
    RPLND (@ IU, including inpatient stay) $28,000
    Surveillance visit (including tumor markers) $400 - $500

    Nearly all of this (except the RPLND) was in Columbia, MO. My surveillance visits are now in Chicago and the "rack rate" for those visits and CT scans are only about $100 more than they were in Missouri.
    Vinny (aka Frank)
    http://vinnysgotcancer.blogspot.com

    left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
    4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
    VATS resection of teratoma from left lung 4/26/06
    Presently surveilling

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    • #17
      Thanks!

      It aint cheap to have cancer I wonder why such a difference in the Neulasta. Could Boston be that more expensive? I could have opted to get the shots at home but my co-pay would have been $50 a shot but if I had them administered at the hospital then they were paid in full by my insurance.

      Rich

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      • #18
        Originally posted by chemo boy View Post
        It aint cheap to have cancer I wonder why such a difference in the Neulasta. Could Boston be that more expensive? I could have opted to get the shots at home but my co-pay would have been $50 a shot but if I had them administered at the hospital then they were paid in full by my insurance.
        My insurance company actually called me and asked if I wanted to have the Neulasta sent to me at home instead of getting them from the doctor. It was something like $6k at the Dr vs $3k at home and while they would pay either way (I had an MSA and met the deductible after the I/O), they reminded me I did have a lifetime limit in coverage and every penny counts.
        Vinny (aka Frank)
        http://vinnysgotcancer.blogspot.com

        left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
        4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
        VATS resection of teratoma from left lung 4/26/06
        Presently surveilling

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        • #19
          My two Neulesta shots were billed out at $8500 each....insurance paid a little under $6K each....
          19 Nov 09 Dx Metastaic Seminoma
          25 Nov 09 Right I/O....Primary tumor burned out
          Stage IIB
          4 JAN 10 - 2 MAR 10 3XBEP
          7 APR 10 All Clear....Surveillance

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          • #20
            cost

            hello all

            been reading some costs and had to give a little insight of my cancer ride. 4 rnds in patient bep, 3 rnds in patient tip, numerous shots. im thinking 2 3-4 day stays with transfusions. 2 stays with septsis ? ct scans, it goes on and on. left orciectomy, rplnd (indy) numerous docter appts. meds, i stopped figuring at 400k as it was still going up. that was 3 yrs ago ...may last chemo was 3-16-07. i cant complain about insurance at that time. we switched carriers this year ( contract) and im glad i it happened when it did.

            k.
            severe back pain ( found to be tumor rpgct) no pain/irregularities with twins at all
            diagnosed 11-15-06 stage 3c mets to lungs/shortness of breath, choriocarcinoma, hcg 212,000
            11-16-06 1st of 4 rnds. in patient bep
            2-07 1st of 3 rnds. in patient salvage tip
            met dr. einhorn 4-17-07 ultra-sound (1st one)
            5-10-07 left i/o (immature teratoma)
            7-12-07 rplnd (dr.foster)
            8-16-07 all-clear and in surveillance mode
            started TRT...androgel 12-5-08
            fight the good fight...you can win

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            • #21
              It is insane how much they charge for these medications!

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              • #22
                Hi All, these prices are just ridiculous. Fortunately, I live in EU where everything is fully covered by basic health insurance.
                07 Aug 2014 - USG showed 5mm mass, bHCG: 6,45 AFP: 4,58
                08 Aug 2014 - left I/O surgery - NSGCT (70% Mature Teratoma, 30% Embryonal Carcinoma), pT1N0M0, no LVI invasion
                22 Aug 2014 - Markers after I/O: bHCG: 0,05 AFP: 3,40 - CT scan negative
                --- on surveillance ---

                20 Oct 2014 - bHCG: 30 AFP: 8
                04 Nov 2014 -bHCG: 270 (!) AFP: 26, CT shown 2,5 x 1,5 cm para-aortic lymph node
                --- recurrence confirmed ---
                12 Nov 2014 - MRI of brain - clear, re-staged to IIB,
                3x BEP started, changed to 4x BEP
                08 Jan 2015 3x BEP finished (bHCG: <0,1 AFP: 4,88), 4th cycle cancelled
                21 Jan 2015 CT scan clear - para-aortic lymph node shrunk to 0,6 x 0,4 cm

                --- on surveillance ---
                [2015 - all clear]
                [July 2016 bHCG:<0,1 AFP:3,24, MRI scan clear]

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                • #23
                  Well I can tell you that hospitals not the doctors are crooks. Make sure that you get your EOB and it states you have reached your out of pocket max. Included with that make sure you understand what the contract agreement is between your insurance and the hospital. If not they will try to make you pay what they feel they should get instead of the contract amount. The Mayo clinic is one of the worst offenders for this. In hindsight retain a lawyer to be the middle guy. Cause hospitals are crooks.
                  Jan 2012- U/S mass in Left testicle
                  Feb 2012- I/O performed to remove cancer
                  Mar 1,2012- pathology pure seminoma
                  Mar 7, 2012 PET SCAN stage IIa
                  April 2012 Mayo clinic carbolite.
                  May 2012 carbolite failed, started BEP x3
                  August 7th 2012- BEP complete
                  April 2013 CT/PET show relapse
                  May 2013 RPLND
                  Aug 2013 Relapse again Started VIeP x2
                  Oct 2013 HDC AUTOLOGOUS
                  Dec 2013 HDC completed CT/PETSCAN 1.1 cm x .8 cm right lower lung lobe
                  Feb 2014 confirmed false positive all clear FINALLY !
                  Jan 2015 1 year cancer free Pet/CT scan
                  Jan 2016 2 years cancer free "Pet/CT scan
                  Jan 2017 3 years cancer free "Pet/CT scan
                  Jab 2018 4 years cancer free "Pet/CT scan, labs, xrays

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