Announcement

Collapse
No announcement yet.

LiveSTRONG Summit

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    LiveSTRONG Summit

    I posted this originally under the Livestrong challenge thread but wanted to start a different thread to keep up with any new news or happenings..

    About 2 months ago I submitted an application to LAF to attend the LiveStrong Summit. I was Notified By Kelly @ LAF that my application was one of the 800-1000 accepted to attend... Needless to say I'm pretty excited about this especially because for some reason there are no Cancer fundraising events or Advocacy Programs in my area (Southwest Florida). Who knows , maybe this could be the start of something great here in SW FLA. I'm just greatful to be able to be a part of something like this!!!!

    I will keep you all posted as I find out more!!!!! BE WELL!!!!!!!!
    Moffitt Cancer Institute
    CANCER SUCKS
    Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal Tumor@ 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--
    Tags: None
  • #2
    Congratulations Don!
    Fish
    TC1
    Right I/O 4/22/1988
    RPLND 6/20/1988
    TC2
    Left I/O 9/17/2003
    Surveillance

    Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

    Comment

    • #3
      Great news Don
      Lori and Jon
      Diagnosed 5/22/2006
      I/O 5/26/2006, Stage 3, Good
      Teratoma (Majority), Seminoma (10%), Yolk Sac
      3xEP then determined not working
      HDC w/stem cell transplant 8/16/06 to 9/25/06
      Chest and Neck surgery 10/9/06 - immature teratoma
      RPLND 11/16/06 - immature Teratoma
      2/29/2008 - markers continue to be normal!
      9/16/2008 - released from Dr. Einhorn's care

      Comment

      • #4
        I just got conformation on my flight and hotel for the Summit today.Can't wait to go !!!! Is anyone else here going????
        Moffitt Cancer Institute
        CANCER SUCKS
        Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal Tumor@ 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

        Comment

        • #5
          Congratulations don.

          I applied but was denied. I even asked if there was a waiting list but I guess everyone who enrolled is going.

          Patti
          Wife of Kevin Murphy
          Diagnosed 7/16/04 100% Choriocarcinoma
          Oriechtomy 7/20/04
          4xBEP 8/04-11/04 BHCG:1200 (lung only)
          Rediagnosed 12/27/04 BHCG: 50
          1xVIP 1/05 (lung)
          HDC/Stem cell Indiana 2/05-4/05 BHCG: 51-4.5 (lung)
          HDC failure 5/05
          3xGemzar/Taxol 6/05-9/05 (lung only)
          VP-16 w/Avastin 9/05-1/06 (lung only)
          Cyberknife 5" lung tumor 2/06
          cyberknife 6 brain tumors 3/06
          1xOxaliplatnin 3/06 (liver, lungs, kidneys, left hip)
          Passed away 4/13/2006

          Comment

          • #6
            Don, I will be there. We will have to meet up.
            diagnosed Oct 2005, 14x12x9cm retroperitoneal tumor, pure seminoma
            4xEP, right I/O

            Comment

            • #7
              Don and Bart, have a great time at the LIVESTRONG Summit this weekend! I can't wait to hear all about it!
              Scott
              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

              Comment

              • #8
                LIVESTRONG Summit Live

                We can all peek in on the Summit at this link, where there are photos, audio clips, and descriptions of the event as it progresses. Good stuff!
                Scott
                right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                Comment

                • #9
                  Summit delegates came up with a mighty good list of obstacles, changes desired, and potential solutions. It's posted at this link.

                  We can all contribute to continuing progress in the cancer survivorship movement.
                  Scott
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                  Comment

                  • #10
                    Sorry I haven't posted in a while.. The night before I left for the Summit my Dad was rushed to the hospital with chest pains and found out he had a blocked artery. Luckily they caught it before he had a massive heart attack.. We were very concerned because he already had open heart surgery 10 years ago.. I left fot the sumit straight from the hospital a have been with my Dad since I came back on Sunday night.. Luckily they cleared the blockage VIA a cathader.. He is doing fine now..

                    I truly wits that we all could have been at the Summit together .. For me it was a truly life changing experience. The Power and energy that was in that room from Lance to John Kerry( he was cracking jokes because he was in W country) right down to the volunteers was truly amazing .. We really do have an Army of Survivors, Caregivers and advocates all fighting for the same cause.. Even though most of the delagates have never met it was like meeting up with a bunch of old freinds you haven't seen in a while.. This was A first class event.. Unbeleivable!!!!!!
                    Moffitt Cancer Institute
                    CANCER SUCKS
                    Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal Tumor@ 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

                    Comment

                    • #11
                      It's good to have you back and I'm certainly glad your dad's doing well. Did you get to meet Apache?
                      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                      Comment

                      • #12
                        Originally posted by Don
                        Even though most of the delegates have never met it was like meeting up with a bunch of old friends you haven't seen in a while.
                        I know exactly what you mean!
                        Scott
                        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                        Comment

                        • #13
                          Don, I'm curious about your personal action plan.
                          Scott
                          right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                          Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                          Comment

                          • #14
                            Scott:
                            Did you write one after your day in Washington? From the name I can figure out what it is, with New Years comming up and the paperwork process started for our charitable organization, it might be a good time to write one myself.
                            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                            Comment

                            • #15
                              The action plan I left with after LIVESTRONG Day was to stay in touch with my Congressional representatives on survivorship issues. I'll continue to do that, to volunteer time here, and to raise funds and awareness for the Lance Armstrong Foundation. I hope and expect to be able to do more still in 2007.
                              Scott
                              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                              Comment

                              Previous template Next
                              Working...
                              X
                              😀
                              🥰
                              🤢
                              😎
                              😡
                              👍
                              👎