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  • New Medication for Neuropathy!!!

    For anyone that is suffering from Peripheral Neuropathy there is finally a medication to help. The brand name for the drug is Lyrica (Pregabalin) which is made by Phizer Corp. This medication is the first of it's kind in the sense that it has been made specifically for people suffering from post operative, chemo induced or diabetic nerve pain. Lyrica is actully slated to be the successor of Neurontin, in fact it has the same chemical break down as Neurontin plus several added chemicals to make it more affective and much faster acting. Most other prescriptions have to build up in your system for a period of time(6-8 weeks) before they can even be slightly affective. Lyrica is supposed to be affective in 7-10 days and is said to be 50%-80% more affective in reducing or eliminating the symptoms of Neuropathy. In the clinical trials done (over 9000 cases) Lyrica was said to reduce the symptoms of Periperal Neuropathy from 60% up to complete elimination of all syptoms in those 86% of the people tested. I don't know how many of the trails were done on people with Surgical/Chemo based Neuropathy but I would guess that it would be just as affective no matter what the cause of the Neuropathy was.

    As some of you may know I have been suffering with Neuropathy since I finished the first round of salvage chemo(TIP). Oddly enough the affects have progressivly gotten worse in the past few months but has seemed to level off in the past 6 weeks(no better-no worse). It started out as 30%-35% disabling and has worsened to 55%-60% disabling and affecting every aspect of life. I have tried almost every medication and treatment known to treat this condition and have had no results accept the side affects of a few medications-usually drowsiness and /or dizziness. Lyrica was approved by the FDA in Dec 2004 and has only been available for about 6-8 weeks. I'm not sure if any other members have been prescribed this medication yet--I just received and started taking LYRICA 2 days ago. You have to slowly introduce the medication in to your system over the course of 7 days-taking a little more each day until you reach the prescribed amount(usually 250-400mg per day). The only side affect I have had is very minor dizziness for about 45 minutes after I took the pill. I dont know if its the Lyrica working already or I just had a really good afternoon but I walked around the block without stopping or losing my balance with is a first over the last several months. The pain switched from pins and needles and very sharp shooting pains to a dull ache and the feeling of my feet being cold- the pain in my left thigh was almost gone and I could grasp objects very tightly with my hands . Again maybe I just had a good day because the neuropathy is never consistent(it varies from day to day) . I am Hopeful that these incredible results are truly from the LYRICA and the results are even better as I build up to the prescibed level. Today was the best I have felt in the past 2 years and I truly beleive Lyrica was the cause. I am guessing that I am probably the only member on TC-cancer taking Lyrica and I will gladly be the guineea pig for this experiment if it could produce any good results for myself and other suffering from neuropathy. I will update this post weekly and list the pro's and con's of LYRICA. Hopefully Lyrica will be the miracle drug that everyone with Neuropathy has been waiting for!!!!!!! For more information and support regarding Peripheral Neuropathy visit www.neuropathy.org and to find out more about Lyrica you can visit www.lyrica.com or www.phizer.com I hope this info is useful to those that are suffering or know someone that is suffering from Neuropathy. For those of us that don't have presciption coverage on our insurance you will probably be happy to know that a 1 month supply of Lyrica cost me $52.00 less than a 1 month supply of Neurontin DON

    PS : New England Patriots-- Now only 2 wins away from Superbowl 40--where they WILL 3peat and once again be Super Bowl Champions!!!!!!!
    Last edited by Don; 01-08-06, 04:00 AM.
    Moffitt Cancer Institute
    CANCER SUCKS
    Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

  • #2
    That new medicine sounds very promising, good luck with it. As for the *%$#@* New England Patriots, some of your pins and needles could be caused by the way they played up until yesterday.

    J E T S, Jets, Jets, Jets.

    Please don't respond. I'm suffering enough as it is.
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

    Comment


    • #3
      (No reply here. Just a big, silent grin. )
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

      Comment


      • #4
        Dadmo-- I see you found your lemonade!!!! Seeing your so good at finding things maybe you could find the JETS a new coach seeing Herm Edwards is going to the Cheifs--And maybe a replacement for that injury prone, punching bag of a QB they have to!!!!! Sorry --I couldn't resist!!!!! There's always next year,and the year after that and the year after that etc. which probable still wouldn,t make a difference for your J-E-T-S- jets,jets,jets
        Moffitt Cancer Institute
        CANCER SUCKS
        Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

        Comment


        • #5
          I can understand the Navy. Heck not everyone wants to be in the military. But the Pats? Oh brother. Please don't tell me your a Red Sox fan.
          Last edited by dadmo; 01-09-06, 08:34 AM.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

          Comment


          • #6
            Hey, now, some of us live in New England!
            Scott, [email protected]
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

            Comment


            • #7
              Well at least I still have the Gian.. What? Bears
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

              Comment


              • #8
                Don't get me started on the Red Sox(if your a fan--they'll break your heart) not to mention that traitor Johnny Damon your club "Aquired"(stold for a price).I guess in 10 months you WILL be gloating about them damn YANKEES( I fight this rivalry almost daily with Yvonne and the rest of her family because they are all from NY). Naturally I,m the black sheep for being a Bo-Sox fan.As for the Navy-- I Chose the Navy because their acceptance requirements were actually higher then all other branchs- You needed fairly high intelligence and physical fitness which made it a challenge to be accepted. I declined the offer from the Army due to the fact that their only 2 requirement were that you 1) were breathing and 2) have a heartbeat !!!!!!!

                PS: Unfortunatly I'm a Bruin and Celtic Fan too!!!!!!
                Moffitt Cancer Institute
                CANCER SUCKS
                Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

                Comment


                • #9
                  Don:
                  I’m having a good time with us poking fun at each other but in all seriousness how is the new drug working on your Peripheral Neuropathy? It would be great if you could get that under control. Heck I might even fly down by you for a charity ride or even a swim if you’re up to it. The seal (sea, air land) logo that you had up over the holidays, did you know someone or was it you? Just more fun we could have, I was with a group that would on occasion work with them. It always impressed me that the Navy had an actual military unit attached.
                  Last edited by dadmo; 01-10-06, 08:37 AM.
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                  Comment


                  • #10
                    I'm a 49ers fan.. talk about suffering!

                    (I probably shouldn't mention that I'm secretly rooting for the Patriots? )
                    Sincerely,
                    Rune

                    Right I/O, 11/27-2003 | Nonseminoma (embryonal carcinoma, teratoma) | Surveillance

                    Ride to Live!

                    Comment


                    • #11
                      First and foremost, I applaud any branch of the military. That said, I chose the navy for the same reasons as don (I think), higher standards. But I'll keep my comments nice (for now). Also, PATRIOTS???? Not going to happen. Would like to see a rematch of Carolina and NE in the Superbowl, but don't think the patsies are going to make it that far.
                      _______________________
                      Age 28
                      US Navy
                      Left orchiechtomy Nov 2005
                      90% embryonal carcinoma
                      Stage IIIa
                      3xBEP

                      Comment


                      • #12
                        Chris:
                        First and foremost, I applaud any branch of the military.
                        As do I. During the course of a life you have very few defining moments, one of mine was being in the military. My wife and I have adopted soldiers in Iraq and will contine to do so. And, yes you should be extreamly proud of your service and I commend you for it even if it is the Navy.

                        Most of my family served in the Navy (we even have a few Annapolis grads) and I still allow them to hang out with me.
                        Last edited by dadmo; 01-10-06, 04:29 PM.
                        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                        Comment


                        • #13
                          Man- now I,m getting teamed up on now about the soon to be Super bowl Champs!!!!! I guess I will let them do the talking for me!!!! Damo you know I just kidding with you--as I said before were all Brothers in Arms whichever branch we served in- Even though we are obvoisly partial to the branch we served for and we all think the branch we served for is the best( which the *#$% is!!) As for the Trident I posted---Yes that was mine!!! And I though that would be my toughest accomplishment of my life- That took a distant second to what we have ALL been through in the past few years. As for the new medication-- I am starting to have some real luck with Lyrica- It is taking some of the nerve pain away-- I would say that I feel 15%-20% better in just 1 week and I haven't reach the temporary prescibed level yet- So I am hoping for better results in the future-I really appreciate you asking!!! Hope all is well with You and Nancy!!!!!!!

                          PS: Welcome to the forums Chris and the Best of Luck to you with your treatments. Sorry to see your taste in football teams is not as good as taste in Military service!!! Sorry I couldn't resist
                          Moffitt Cancer Institute
                          CANCER SUCKS
                          Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

                          Comment


                          • #14
                            Don:
                            First I don't take any of this to seriously, I do have to commend you for your superior efforts in behalf of our country. I know very well the group you were with. I changed my avatar see if you can figure out who I was with. We were better. and our hats were cooler.
                            Last edited by dadmo; 01-12-06, 02:12 PM.
                            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                            Comment


                            • #15
                              Very nice!!!!!! " A Soldiers Life" Ft Bragg??? Worked with a few a your kind!!! Our only equal!!!! Well close anyway !!!!!!!
                              Last edited by Don; 01-11-06, 09:20 PM.
                              Moffitt Cancer Institute
                              CANCER SUCKS
                              Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

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