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  • I'm new here

    Hi All!
    I am new here and I have gotten alot of good information on this site. My son, who turned 21 in October/05, was diagnosed with tc on 8/26/05. He had just completed his first 5 days of school at Colorado State U. For two years he went to OSU in Stillwater and had just transfered to CSU. He had felt a lump in his testicle and had some discomfort in July and had gone to a urologist to have it checked out. His internist, who Patrick had gone to originally, had gone ahead and ordered an ultrasound so the urologist would have that when he went, since the time was getting close for him to leave for school. That ultrasound turned out to be his saving grace! The urologist was really glad to have the ultrasound and said that if it weren't for the ultrasound he would have just gone ahead and given him an antibiotic for an infection and been done with it. He did not have a concern with the lump or discomfort that Patrick felt. That was a hydrocele, but the ultrasound showed something inside the testicle that gave him reason for concern. He said he did not want him to loose a testicle if it were just an infection, so gave him a 3 week course of antibiotic and told him to have the ultrasound re-done and be seen at that time. Of course by then, classes would already have started so we made his appointments up in Ft. Collins, CO. The doctor up in Colorado said that he was sure that it was cancer - not the lump that Patrick felt, nor anything that the doctor could feel. The area of concern was inside the testicle and not palpable. He scheduled his orchiectomy for the following monday - this was friday - and sent him off for chest x-ray and blood work. We quickly got things in order and flew up to Colorado from Katy, TX on Sunday. First thing monday morning, he had his orchiectomy and the pathology - after the testicle was re-disected 3 times - came back with 100% embryonic carcinoma - 6 cm. in size - vert tiny. The doctor gave him the choice of surveillance, 2 rounds of chemo, or an RPLND. Surveillance was scarey for Patrick and decieded it would be one of the other two, but since we live in the Houston area, we withdrew him from school and brought him home to go to MD Anderson Cancer Center. After staging - Blood work, ct scans, chest x-rays, he was very early stage one and decided to go with the RPLND. His RPLND surgery was 10/21/05. No cancer in the lymph nodes!He had 8 miserable days in the hospital, 2 blood transfusions, about 3 weeks of back pain, some intestinal issues, and post op moodiness, but after that, his recovery has been great and his ct scan and blood work were great in January. The doctor wants to have the ct scan and blood work redone in May due to a residual hematoma, but other than that he is just fine. He started classes up at CSU in mid January and has been skiing twice, and is feeling good. He gets tired easier than before, but is managing that and is working out and is eating healthier than he has since he was in grade school! It certainly has been a roller coaster, but we are thankful for all of the hands that have touched our lives through all of this. I have not taken the time to register on this site. I have just been a reader, but maybe our experience can help someone else. Beth
    Son (21) Diag 8/26/05;non-seminoma stage I;embryonal carcinoma; right I/O 8/29/05;RPLND 10/21/05

  • #2
    Welcome Beth! Although you didn't choose to be touched by this disease, obviously you have been and you are right as far as others learning from your & your son's experience. I too am the mother of a TC victim, my son Justin was 20 when diagnosed last June. He spent his 21st birthday getting chemo. He had the right I/O July 1, 4 rounds of BEP, a 21 cm mature teratoma removed and now is "cancer free" Praise the Lord! He still suffers from some side effects of surgery but got married 2 weeks ago! Yes, your story can be used to inspire/encourage others and sometimes that is the only "good" thing I can see in this journey! So speak out & let others know so we can help raise awareness of this disease with our sons (& spouses ect.) God Bless-Lanette ><>
    Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

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    • #3
      MommaBeth:
      Welcome and thank you for sharing your sons story. It sounds like everthing is on track, congratulations. Just make sure Patrick doesn't get so involved at school that he forgets his followups.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        We are very aware of that! His next appointment is the day after he gets home from college for the summer. It is good that you keep mentioning follow ups. His first doctor really stressed that compliance is the biggest issue that tc survivors have.
        Son (21) Diag 8/26/05;non-seminoma stage I;embryonal carcinoma; right I/O 8/29/05;RPLND 10/21/05

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        • #5
          sounds like your staying ahead of the game. please keep the follow ups scheduled and dont miss them. very important!! i know he is young but were any testosterone levels checked before his surgery? symptoms of low test are being moody, tired, forgetfull, lack of concentration, low metabolsim.. just a few. he may not have any of these but they could later develope. low levels also pose a problem for osteoporosis later in life. i sure hope all goes well for your son. i cant imagine going thru this in my earlier years. its great he has a good family to help him thru and a big thanks to you and your family for helping him thru this. best of luck and my thoughts and prayers are with each of us everyday.
          diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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          • #6
            Welcome MommaBeth, I am sure you have seen there are a lot of Momma's and Daddy's here and I am glad to hear your son is doing well. April
            Wesley's TC
            Non-Seminoma
            90% Embryonal 10% Seminoma
            Stage IIIa
            Treatment: Left I/O 4/11/05
            4XBEP 4/25/05
            08/05 -Surveillance & Many Scans/X-rays

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            • #7
              MommaBeth, your son and mine were both up at college when diagnosed....your story reminds me of Chris...glad everything is going well, Chris had 4 rounds of chemo and RPLND at Sloan Kettering...Keep in touch...Mary Ellen

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              • #8
                Mary Ellen,I went back and read some of your threads. Our son's have very similar stories. We just took Patrick back to college in Jan. to start his Junior year - again. It was very difficult. It was harder than taking him as a college freshman! It was one of the many surreal experiences that we have had since July! Going back to caregiver mode and then back to him being a young adult is a weird experience. Cancer is a weird experience!!! It has taken me several months to even be able to say the word without holding my breath! We are so thankful that he is back to being a "normal" young adult.
                Son (21) Diag 8/26/05;non-seminoma stage I;embryonal carcinoma; right I/O 8/29/05;RPLND 10/21/05

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                • #9
                  As my husband was reading this, he discovered a big mistake in my first statement. The tumor they found in Patrick's testicle was 6 mm in size not 6 cm. Ha! Big difference!
                  Son (21) Diag 8/26/05;non-seminoma stage I;embryonal carcinoma; right I/O 8/29/05;RPLND 10/21/05

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                  • #10
                    I know what you mean about taking him back to school after everything you have all gone thru...so hard...after being so close during surgery and everything and then just to going back to life like before is very emotional. We just had a call from Chris up at school and for the first time since last March he was very down. His girlfriend of over a year and him broke up this week....and as a parent hearing him talk about the pain was unbearable, I know he is 21 but after all he has been thru at such a young age...its tough.....I am also worried and am going to request a Testosterone test for him....says that the passion went out of the relationship...maybe just a coincidence but I want to make sure physically it is nothing.....we will be in NYC March 2 so I will talk to Dr. Sheinfeld....but that is life and he has to go thru it...I just related so much to your statement that going from caregiver to back to normal is to surreal....anyway, thanks for listening, I am rambling, just a tough night..Chris is usually so up....glad to hear Patrick is doing great and back to school....Mary Ellen

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                    • #11
                      Sorry to hear about that. Life sure throws a lot at us.
                      Scott, [email protected]
                      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                      • #12
                        Hi MaryEllen,
                        Sorry to hear about Chris's breakup. It's so hard to see your children in pain. We, as parents always want them to be happy and we know that's not always possible.
                        Life can sure be tough. Hang in there.
                        jane
                        Jane
                        Mother of TC survivor.
                        Son, Josh 20, diagnosed Jan. 24, 2005. Left Orchiechtomy Jan.31, 2005. 4XBPE March 7th to May 28th 2005.

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                        • #13
                          Someone once told me that no parent is ever happier then their saddest child. Mary Ellen, I am so sorry. I'm I fine one to tell you to hang tough but sometimes things are simply beyond our influence.
                          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                          Comment


                          • #14
                            Thanks guys for support as always...very bad time right now...Chris will be home next week for a break and he is getting tested for any Testosterone problems....how do you let go, even when they are 21...I had break ups too at that age...but I guess he just has to go thru it...whatever doesn't kill you makes you stronger right? Mary Ellen

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                            • #15
                              I think it is wise to have Chris's testosterone checked but this could well be a time of personal disappointment in his life which we cannot make better. I find it hard to let go at 31!! Being a mother never ends. We have the benefit of wisdom and know that he is going to meet someone new and maybe there will be 10 girls before he meets the girl he marries. Nancy and I talked yesterday about when and how do you bring up TC with a new girlfriend. Maybe that is a question for those out there who have some experience with dating and relationships after TC. My son was in a committed relationship and quite frankly there were moments when my husband and I were afraid she would jump ship. When asked yesterday how we felt our son would have handled TC without his fiancee, my husband replied that "he would have imploded." How we wish we could take the pain. Dianne
                              Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                              Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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