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  • New To This Game

    I just want you to know that this is the best site out there for TC Info. Thank you all for posting all this info. I had surgery to remove right Testicle on Nov. 22 and just waiting for the results from the doctors to see whats next. I went to my family doctor today and he has the initial pathology report saying it is Seminoma. I guess this is good? Not sure which is better to have, nonseminoma or just seminoma. The waiting is excruciating but I go on Thursday to the specialist who will give me full report then. Once again the information posted on this sight is invaluable. Keep up the good work.
    Dave

  • #2
    Welcome
    The difference as to what cell type has to do with the treatment options that they will consider for you.
    If you want you might want to get a copy of the report when you go in and that will help a lot since there is more to it then just cell type.
    For the Sem they would consider RT and Non Sem it is Chemo for the most part. Once you get you full path report and CT scan results then they will come up with a plan for you to consider as you may not need any more treatment at all.
    The best thing to do now is try to relax and read up on TC from the main home page and all of the links that we have on here. I would have someone go with you to the next visit, it helps to have a extra set of ears in there and to take pen and paper with you because they will have a lot of info for you to digest in a short period of time.
    Also write down your questions so you don't forget any and make sure the doctor answers them in a way that you understand.
    IF you have any questions fire away there are a lot of great people here to help.
    Brian
    5-1-2006 Right IO - Stage 1 Nonseminoma Embryonal and Yolk sac - Surveillance Baby on the way Born 7-20-07

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    • #3
      Seminoma is often easier to treat than non-seminoma if it has spread. You'll notice in the TCRC's staging information, there is no "poor risk" category for seminoma.
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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      • #4
        I hope that you got the cancer before it got in any other part of your body.

        I was one of those that let it go too long before I went to the DR. I just wish I had had this forum when I first noticed a problem. It would have saved me from Chemo treatments.
        >
        Anyway- Good luck to You!
        Stage II seminoma and nonseminoma cancer 2005. HCG was 21,000.00 when it was suppose to be below 5.0- Lost one testical, 4 rounds of BEP, cancer free since last CT-Scan. But I was stupid. I let it go for nearly a year before seeing a doctor. If I had known about this site in 2004 I might have avoided all this!

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        • #5
          This is the best site for TC support. Period.

          Realistically though, Mark and Doug over at TCRC.ACOR.ORG are doing a tremendous job in distributing hard-hitting facts through their arcane @listserv.

          Do yourself a favor and subscribe (visit) both. It doesn't get any better: most manageable cancer, best support resources.

          /M

          Originally posted by leaffan-Dave
          I just want you to know that this is the best site out there for TC Info. Thank you all for posting all this info. I had surgery to remove right Testicle on Nov. 22 and just waiting for the results from the doctors to see whats next. I went to my family doctor today and he has the initial pathology report saying it is Seminoma. I guess this is good? Not sure which is better to have, nonseminoma or just seminoma. The waiting is excruciating but I go on Thursday to the specialist who will give me full report then. Once again the information posted on this sight is invaluable. Keep up the good work.
          Dave

          Comment


          • #6
            As Matthias has suggested,don't be shy with questions to the experts.

            Doug Banks is a godsend as far as advice goes, and seeing that your are a fellow Canuck,Dr Jewett in Toronto is a local that has replied to my e-mailed questions.

            Best Wishes
            Dec/04-Right I/O-nonseminoma (95%E/C),Stage 1, surveillance
            Nov/05- 2.2 cm lymph node= Stage II A
            Nov/05 -Jan/06-3 x BEP
            Jan/06 -Surveillance



            ___________________________________________

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            • #7
              Update

              Thanks all for advice. I went to the specialist today and he said that it was pure seminoma and contained to the testical and did not spread according to the path report. He is sending me for a CT Scan as soon as possible due to the fact that I have been experiencing much pain mainly in the lower back area. I am also being referred to the London Health Sciences Cancer Clinic where they will take over my case. I am wondering if proper protocol on this is to just do survailance or do they still do radiation regardless? He also said my markers were normal before the operation. Does this make sense?

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              • #8
                Pure seminoma will not elevate the markers so that's normal.
                Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                Comment


                • #9
                  Originally posted by leaffan-Dave
                  Thanks all for advice. I went to the specialist today and he said that it was pure seminoma and contained to the testical and did not spread according to the path report. He is sending me for a CT Scan as soon as possible due to the fact that I have been experiencing much pain mainly in the lower back area. I am also being referred to the London Health Sciences Cancer Clinic where they will take over my case. I am wondering if proper protocol on this is to just do survailance or do they still do radiation regardless? He also said my markers were normal before the operation. Does this make sense?
                  Hi leaffan-Dave,

                  If your CT scan is negative, you may be offered three possibilities (in London), adjuvant carboplatin, adjuvant radiation, or a protocol of close surveillance. If you aren't offered all three, you should ask some questions...

                  Best of luck!

                  Regards,

                  djm
                  Detected mass 10-6-06, Radical left I/O 10-10-06, Stage I seminoma, 1.5 cm primary, No LV invasion, No Rete Testis Invasion... Currently on Surveillance.

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