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had an interesting comment made to me today

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  • had an interesting comment made to me today

    I had someone ask me about this forum and how my “little pep talks and projects” were going. I must have looked at them like their scalp had just been peeled back because when I went to open my mouth, they took a step back in sudden anticipation.

    First of all, this forum is not a ‘project’ of mine…’project’ indicates completion at some point and until a cure is found, I am here to stay. I mean the words I say here, and I mean it when I tell someone to call…and it is a call I will always take…and it is mail I promise to write and write often I do. This cause is worth my time, fundraising efforts and my compassion. I am not a doctor, never claimed to be, but I have some knowledge to share and I read as much as possible so that when a question is asked, I just may know the answer. But I always pray for good results and happy endings and I know God is listening.

    I believe this board is not about pep talks..I believe it is about finding all the best in each of us…and I have been amazed by each of you. This forum saves lives. No one can convince me otherwise. Thank you for welcoming me into this family. I will try to earn my place at the table.

    Boy, I had no idea soap boxes were this tall….stepping off now.

    m
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

  • #2
    Originally posted by Margaret
    I will try to earn my place at the table.
    Margaret,
    I'll keep it simple. You have earned that and a whole lot more.
    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
    11.22.06 -Dx the day before Thanksgiving
    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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    • #3
      You go girl!!!!! Just another munchkin along the yellow brick road. Who knows what their life is about!?! If not for anything it sounds like it was a good reflection of your direction and purpose. Have you ever read the poetry of Rumi? There is one titled....Judge a moth by the size of it's flame. I think that the light you fly toward is pretty darn bright. Glad you are there!!! Take care, Russell;'s Mom, Sharon
      Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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      • #4
        Originally posted by Margaret
        Boy, I had no idea soap boxes were this tall….stepping off now.
        No, no, stay up there!
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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        • #5
          Ohhhhhh Margaret!

          Let me know if you'd like to me to come on down south and open up a giant can of whoop-ass on ANYONE messing with you! I'm sure Boyce will do that all on his own, but honestly, I didn't want to miss out on the opportunity to use the term "whoop-ass" and I really would like to slap that person silly!

          Love ya!

          -M

          Comment


          • #6
            Originally posted by Margaret
            This forum saves lives. No one can convince me otherwise.m
            Amen to that!

            This site is very supportive and full of life saving information. Information that sooooooooooo many doctors do NOT KNOW! Yes, this forum SAVES LIVES, AND SANITY!

            Son Anthony DX 12/11/06
            L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
            4XEP 1/29-4/6/ 07
            AFP started increasing3 wks later
            Residual abdominal mass found on CT
            RPLND 6/8/07
            Cancer in pathology-
            80% mature teratoma, 20% Yolk Sac. --
            No adjuvent chemo and
            AFP normalised

            July 22, 2010 ---- 3 years all clear!

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            • #7
              You're gettin my Jersey up my Warrior Sister. Karen's not far behind, I'm sure. I've said it before, you're our Warrior, and YOU are awesome. And if anyone @#%#'s with you and I can get there..... enough said. The positive side can only be this; people like that sharing our air, only re-affirms just how beautiful someone like you is. Like you needed any help. Leave that type to the shallow world they live in. You've done good here. You've touched hearts. YOU are loved.
              Mark
              I Love My Pack!

              sigpic

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              • #8
                Jersey girl here flipping them the double bird . Anyone who would say that to you is a freakin' idiot. Now where's my Louisville slugger when I need it......
                Love ya!
                Karen
                Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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                • #9
                  Jersey girl here flipping them the double bird
                  What took ya?!?!?!
                  I Love My Pack!

                  sigpic

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                  • #10
                    Gosh I really adore you guys!!!! A big southern kiss coming to all.

                    m.
                    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                    Current DVT
                    Current testosterone replacement therapy, Testim.

                    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                    Comment


                    • #11
                      Hi Margaret: I'm all the way in the west coast, so I'm late to respond...you tell 'em to shove it where the sun don't shine!

                      You have been so very genuine with all of your posts and I can tell you that in the short time Andy and I have been here, we've both been comforted by your support.
                      Maria
                      *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                      *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                      *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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                      • #12
                        I literally don't even know how to respond when people say things that are that assinine.

                        Just give all of us the person's email. We'll help 'em understand.


                        Or I can always send my Uncle Rocky from Brooklyn down for a visit. He has...ways...of making people listen.
                        Rob and Stacy
                        DX: 3/10/05, AFP: 15,047, L I/O: 3/28/05, Yolk sac tumor & teratoma, Stage IIIC, 3xBEP & 1xEP: 4/4/07 - 6/25/07, AFP: 14, RPLND 8/10/07, w. left kidney removed. 10/19/07, AFP: 1.9

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