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Do you normally have cemo after this?
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JOTA,
Sorry you're joining the club here, but your docs sound very proactive...a VERY good thing. Only the bloodwork and pathology will tell what type of tumor it is. Bloodwork, CT scan and chest X-ray are all needed...bloodwork needs to be done before and after the I/O so they can compare levels and get an indication if there was metastesis.
Ask about these things. Visit the site already bald mentioned and read up on the questions you should ask and what to expect. Depending on the stage and type you can do surveillance, chemo, radiation, RPLND, or a combination. You need bloodwork and pathology to guide you.
The I/O won't be as bad as it sounds. I know it's hare not to stress. Please keep posting here so we can suopport you through this.Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.
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I think at this point your doctor is making an educated guess as to what you have. At 28 non-seminoma is more common then seminoma but he really won't know for sure until all of the tests are complete and that will be about a week after they remove the testicle.
It will be the results of these tests that determine if you need any further treatment.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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Jota, I am sorry that you got this news. But we are all hear and will help ever step of the way if you need anything. The testicle needs to come out asap and then they will talk to you about further treatment options if they are needed.
Wishing you all the bestCo-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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JOTA,
At this point, it would be necessary for you to get, at the very least, bloodwork to have your tumor markers measured. This will start painting a picture of what you are up against. If anything, you need a "baseline" reading prior to the surgery and a second test done several days after the I/O to see if the surgery caused a change in your marker levels. Believe me, the more you know about the case, the less anxious you will feel."Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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Hi JOTA: Let Friday the 13th be the day luck changes for you
Best wishes on your upcoming orchiectomy. Andy had his procedure in the late afternoon and was discharged to go home later that night. I know this probably won't calm your nerves (but please try to find comfort in it): the procedure is very common. Just make sure to take things easy at home for a little while. We'll be thinking of you on Friday!
Maria
*Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
*Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
*CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillanceComment
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Hey MRMRSU,
I know everything will be fine. Honestly taking it easy at home sounds pretty nice. I am a stay at home dad and a few days where I do not feel like I am running from the moment I get up until I go to bed will be nice.Comment
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Hey man, good luck this friday, don't stop joking about it.....ever, it helps so much. Our prayers are with you !
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Originally posted by JOTA
Hi JOTA: You will be king of the castle for a few days so enjoy it Your wish will be their command...refresh my memory, how many kids? Ages?
Maria
*Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
*Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
*CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillanceComment
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1 son, 3 years oldOriginally posted by MRMRSUHi JOTA: You will be king of the castle for a few days so enjoy it Your wish will be their command...refresh my memory, how many kids? Ages?Comment
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Hi JOTA: OK, I'm revising my previous post...you'll be semi-King of your castle, as I'm sure your 3-year old prince always has the rule of the land!!!!!!
Maria
*Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
*Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
*CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillanceComment
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I know I will get more info on Friday but I was wondering if this is normally day surgery or if you stay overnight?Comment
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The orchiectomy is generally outpatient surgery. I was in first thing in the morning and home before lunch.Scott, [email protected]
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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Hi JOTA: One last good luck wish from us before your surgery. Andy said the prep took longer than the actual procedure itself! Also, he said to tell you that ice will be your best friend for a few days.
Happy thoughts!Maria
*Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
*Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
*CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillanceComment
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Karen usually recommends a bag of frozen peas over ice. Also, your incision may "Raise" a little about a week post IO. It depends on how they close it, however mine raised so much I thought I had developed a hernia, but it was perfectly normal and went down over time.
Rest easy the next few weeks, and send us your pathology!
Best,Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.
Please see a physician for medical advice!
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