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  • #46
    Hi JOTA: Do you have any more details from your pathology report? The guys and gals on this forum who certainly know a lot more than me are a wealth of information and good counsel. Let us know when you can...
    Maria
    *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
    *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
    *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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    • #47
      JOTA:
      If all the x-rays and scan have been read you should be able to develop a complete treatment plan on Tues. Remember to ask about sperm banking.
      Last edited by dadmo; 07-21-07, 07:31 AM.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #48
        JOTA: I'm assuming you haven't heard your blood test or CT scan results yet and that your doctor will walk through everything on Tuesday.

        Since you asked about radiation therapy... That's only be a treatment option for pure seminoma, and it wouldn't cause you to lose the hair on your head.

        The TCRC has good lists of questions for your doctor. Check this link.
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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        • #49
          JOTA,
          Hope your healing well! I am a tad uneasy with your doc (I preseume it was your GP?) suggesting it's probably a non-seminoma, and just want to butt in again to make sure your docs knw what they're doing going forward.

          Thus far you should have had pre I/O bloodwork, a CT and a chest X-ray. If you have NOT had the CT and X-ray you need them! You now need post-I/O bloodwork. These are all essential pieces in the diagnosis and treatment steps in conjunction with the pathology, which you may want a second opinion on.

          If you have results and can post them here it'll help us provide suggestions. I suggest you ask for and keep copies of all your labs and scan reports, and path report as well.

          From this point on you should be under the care of an oncologist.
          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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          • #50
            Originally posted by Karen
            JOTA,
            Hope your healing well! I am a tad uneasy with your doc (I preseume it was your GP?) suggesting it's probably a non-seminoma, and just want to butt in again to make sure your docs knw what they're doing going forward.

            Thus far you should have had pre I/O bloodwork, a CT and a chest X-ray. If you have NOT had the CT and X-ray you need them! You now need post-I/O bloodwork. These are all essential pieces in the diagnosis and treatment steps in conjunction with the pathology, which you may want a second opinion on.

            If you have results and can post them here it'll help us provide suggestions. I suggest you ask for and keep copies of all your labs and scan reports, and path report as well.

            From this point on you should be under the care of an oncologist.
            Going to quote you here so I can be sure to answer all of your questions. It is not my GP that is saying this stuff it is the urologist whom was also the one who did the surgery. I did haver pre blood work and am sure I will have more information about that on Tuesday. CT? Is that a cat scan? If it is a cat scan then yes I have had a head to pelvis cat scan. All they found on there besides the testicle was a small cyst on my kidney. I am sure that on Tuesday they will take more blood work. However I have not had a chest x-ray.

            Any questions I missed? Oh and thank you Scott I will check out that link and am sure I will be printing up some questions to ask.

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            • #51
              JOTA,
              Thanks for the info. The head to toe CT (yes, that's a cat scan) trumps the chest X-ray, so you're OK there. Great news that the scan was all clear!!!

              Again, once you sit down with the urologist and get your results, and you do need the bloodwork for markers, your urologist needs to refer you to an oncologist for the next steps. The clean scan is a beautiful thing...congrats on catching it early!
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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              • #52
                Good luck with your appointment tomorrow JOTA!
                Maria
                *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

                Comment

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