No announcement yet.

Greetings and Intro

  • Filter
  • Time
  • Show
Clear All
new posts

  • Greetings and Intro

    As with most everyone here (I pressume), I found this website in search of info on TC as I have been recently diagnosed. I'm 44 yrs old (a late bloomer in TC terms as I've come to learn). I'm still digesting it all but I'm scheduled for a right I/O next week. Waiting on CT Scan results right now but my markers (both AFP and HCG) were at zero, so hopefully the scan will shed some more positive light on the situation. I am thankful that I live in an area with a top teaching hospital and my doctor is a Urologic Oncologist, (and he teaches both at the University) which means he will be doing the surgery and also follow up on my treatment - yet to be determined. I hope this will work out for me and yes, I'm scared out of my wits about it!

    Anyway, just wanted to say hi and to be here for anyone who needs me for the long run......
    "Faith is being sure of what we hope for and certain of what we do not see". Heb 11:1

  • #2
    Welcome to the forums, Charlie! You wouldn't be human if you didn't feel some fear in facing cancer, but your news so far is encouraging. The most important thing right now is to get that orchiectomy over with and get the pathology report back. Keep us posted.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!


    • #3

      Welcome to the TC-Forum! Indeed what you have mentioned so far seems on the right track (well... with cancer progression there really is no right track, but you know what I mean). The fact that you show no markers and your age suggest that you may have a seminoma. Of course, you won't know for sure until the pathology is done after the I/O.

      You've probably heard all about this, but the operation is fairly straightforward. The procedure is about an hour long, and you will likely be walking again the same day (with a wobble). You will feel sore, mostly due to the swelling, but a bag of frozen peas do the trick here. Don't do any heavy lifting for 4-6 weeks, and take the pain meds as needed, but try to wean yourself off of them because narcotics like those will constipate you (and the last thing you want to do is strain while going to the bathroom). Waiting for the pathology is a drag and always nerve-racking, but rest assured that you are well on your way to being cured... heck, the I/O alone can potentially cure you if everything was caught early enough.

      Enjoy the holiday weekend, and don't worry. You will be fine. Best,
      "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
      11.22.06 -Dx the day before Thanksgiving
      12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


      • #4
        Welcome Charlie...sorry about having to deal with TC but we will all support you and help you in any way we can.

        Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
        Current DVT
        Current testosterone replacement therapy, Testim.

        "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


        • #5
          Hi Charlie,
          Some of us are late bloomers and some of early (i was 16) but we are all in the same club. To be scared is normal. But do try to relax and remain clam. We are all here for you and all of us truly understand what it is you are going through.
          Good Luck
          If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
          If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
          Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
          My Blog

          Diagonosed 1988. Left I/O - 3 rounds of chemo
          Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
          There is Army Strong, There is Live Strong and then there is me. Crazy Strong


          • #6
            With Gratitude

            Many thanks to all of you who welcomed me. I appreciate your thoughts and words of encouragement - they meant a LOT to me and I REALLY needed that! My CT results are back now and I am thankful most everything seems to be OK. My Chest CT did show a tiny nodule in one of my lungs but I've had that for 20 years - resulting from a bad infection way back when. Abdominal CT and everything else is clear. My I/O is scheduled for - of all days - Sept 11th! So, as you remember that fateful day for other reasons, please think of me as well. I've never been to a hospital as a patient before -so I'm the first one to admit that I'm pretty scared about the whole thing. Anyway, again my deepest gratitude to all of you!!!
            "Faith is being sure of what we hope for and certain of what we do not see". Heb 11:1


            • #7
              I know it's hard to relax but the I/O really is quite a simple procedure. What you really should be releived about is that everything points to being cured with the I/O. Let's hope for continued good news.
              Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

              Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


              • #8
                Belated welcome, Charlie. Excellent news on the markers, CT and X-ray. Fed is correct that age and markers point to seminoma. Caught early, you have an 80% cure from the I/O alone.

                I/O tips from someone lacking cajones (physically anyway):
                Lay off the narcotic pain meds ASAP. They decrease bowel motility and you do NOT want to strain during the good ole #2. Get a few bags of frozen peas and rotate then as ice packs. Get up and moving as best you can and as much as you can. If you feel a cough, sneeze or laugh creeping up use the palm of your hand to apply pressure against the incision and prevent that "OMG, I just ripped out my sutures" feeling (you won't rip them out). Do NOT lift anything heavy for as long as your doc instructs or you will wind up in the hospital a second time for a hernia repair. You really will be fine, so try not to worry too much.
                Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.


                • #9
                  That's all great news, Charlie. I am sure the I/O will go with flying colors. Just follow the advice everyone has given here, and it will go without a hitch. The anxiety is normal, but look at it this way: it's your road to a cure. Best of luck,
                  "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                  11.22.06 -Dx the day before Thanksgiving
                  12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


                  • #10
                    Another little tidbit that helped me out in the days following the I/O........instead of eating solid food drink SlimFast or Carnation Instant Breakfast. That will keep you nourished with vitamins and protein, and also keep you off the don't want a number 2 for at least a few days.

                    The I/O itself really isn't bad. There was minimal pain afterwards, and as everyone has been saying, you are up walking around within an hour or so after the procedure. Try to sit in a recliner for an extended period of time on day 2 to get your insides moving a bit, and keep away from comedy and funny friends...........laughing is the worst. You will do fine.

                    4/26/07 - mass confirmed w/ no elevated markers
                    4/27/07 - left I/O
                    5/2/07 - Dx: 100% seminoma stage 1A
                    Surveillance: CT/blood (6 month cycle)
                    4/27/13 - 6 years cancer free!


                    • #11
                      Just had to chime in to let you know, my husband was diagnosied and had his I/O on September 11th of last year. The 5 year anniversery.

                      It didn't change a thing but did make for an interesting conversation piece and a lot of comments on the irony of the situation. Lots of "of all days....."

                      It was quite a day to remember without that hanging over our heads, but it did add to it.

                      But take hope, everything will go smoothly for you, regardless the date!


                      Husband Right I/O 09/06
                      -70% Embryonal Carcinoma
                      -20% Teratoma
                      -10% Yolk Sac Tumor
                      11/06- lymph nodes 1.8x1.4 and 1.9x1.4
                      12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
                      1/07-Start 3xBEP
                      4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
                      6/07-lymph nodes 1.2x1.0 and 1.9x.9
                      8/07-lymph nodes 1.1x1.0 and 2.0x1.2
                      10/07-lymph nodes 2.0x1.5 and 2.7x1.8
                      11/07- PostChemo LRPLND-found burnt out teratoma
                      11/09-Enlarging lymph node 1.2 cm near renal veins