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Long time member, first time visit

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  • Long time member, first time visit

    Hey gang!

    This forum is GREAT! I wish I had something like this when I went through TC back in 1985. What great support, encouragement and sharing of information.

    So I guess in the spirit of sharing I'll share a little bit of my story...

    I was diagnosed in April of 1985 (25 years old). I went for the full ride; I/O (Left), Chemo and Radiation. I was on some experimental drug that, when doctors now look at what was used, they get this "WOW, you survived that drug" look on their face. It's so funny! I'm sure the treatments used today are so superior to those used 20 years ago. Looking back, I feel like I was out there blazing a treatment trail for those getting treatment today. The whole experience really revealed how strong I was in my faith, body, mind and spirit.

    So I was down to just one, but that's still enough to start a family and in 1997 my wife and I had a girl and in 1999 we had another girl. Thank you.

    Then in March of 2002 I started getting the feeling like I was kicked in the groin. I thought maybe I was kicked because my girls were at just the right height when I picked them up, that their feet would be perfectly aligned to... but I couldn't think of a time when that happened and I'm sure I would have remembered.

    So I went to the doctors and yep, you guessed it, I had TC again! I caught it real early. It was undetectable by the oncologist upon physical exam even though he had the films and knew exactly where to look. Additionally all my markers were normal. (My markers were always normal.) Eventually, pathology confirmed what the ultra sound showed.

    We consulted with Lawrence Einhorn and he suggested that we just do the I/O since I had already undergone an aggressive course of chemo and radiation. It turned out to be the right decision. I got my second 5 year all clear last February. The two incidents were 18 years apart and not related.

    The good news is that I've gone through so many tests in the last 25 years that I'm cleared to operate numerous C/T machines and am very familiar with MRI operations! Also, my chance of developing any testicular problems in the future have decreased significantly.

    I now use Androgel, a testosterone replacement medication, but besdies that, everything else is perfectly normal. As a matter of fact, my sex life is great and I'm in better physical shape at 47 years old than I was in my 20's.

    For you new guys; relax; have faith and believe.

    You'll be just fine.

    God Bless,


  • #2
    Welcome to the forum. I'm sorry you had to pay admission twice. We have several other members in same situation as you so you won't be alone here. Just like you did with your first post feel free to jump in anytime and give us a hand. Do you remember what chemo they had you on in 85?
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


    • #3

      The specifics are as follows:

      Left testicular seminoma, stage II. Large mass in the retroperitoneum.
      Chemotherapy with Vincristine, actinomycin D and Cytoxan for 4 cycles

      Thanks for the welcome.

      - Michael


      • #4
        Welcome Michael! I love seeing survivors from 20+ years ago.....the odds were not good back then. Sorry about the TC2, and congrats on the 5 year all clear!!
        Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.


        • #5
          Hello Michael and welcome. You story is a wonderful one to share and gives hope to many people here wondering about life if they happen to be faced with TC again and also hope to those who want children.

          Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
          Current DVT
          Current testosterone replacement therapy, Testim.

          "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


          • #6
            Michael, great to hear from you and thanks for sharing. My husband was diagnosed in 1980. He had the I/O and the RPLND. You are right about chemo in those days. It really was the treatment of last resort. They didn't do adjuvant chemo in those days. With my husband, they wanted to wait for it to hit the lungs before they did the chemo. It never did. You certainly did blaze the trail and we are grateful for it. Welcome. Dianne
            Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
            Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma


            • #7
              Hey Michael,

              Allow me to welcome you here like the others have. Many people here will benefit by you being here, so it's great that you have spoken out.

              Vincristine, actinomycin and cytoxan?! Wow... they really brought in the heavy artillery. Good thing the treatments now have come a long way! Many here will be grateful for having blazed the trail.
              "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
              11.22.06 -Dx the day before Thanksgiving
              12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.


              • #8
                Welcome Michael,
                Sorry to hear you had to deal with this twice but it always great to see a survivor with such a great attitude. I'm sure you will be an inspiration to others. Congrats on the 5 year all clear as well. I was diagnosed in 1988 but I can't remember the drugs used on me. I will have to find out.
                If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
                If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
                Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
                My Blog

                Diagonosed 1988. Left I/O - 3 rounds of chemo
                Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
                There is Army Strong, There is Live Strong and then there is me. Crazy Strong


                • #9
                  Michael and Jay, both of you have made my day today even better, to hear that you both had TC and so many years ago,,,just makes me feel better regarding my son Chris.....thanks for joining Michael ....glad you are both years out and doing great.....Mary Ellen


                  • #10
                    I was in Baltimore for the last 3 days and away from my laptop, so I've been unable to respond to eveyone welcoming me to the forum. Thank you for the warm welcome!

                    It's interesing story on how I ended up posting to this site last week. I was just finishing up my Bible study for the evening when my spirt was moved to post my story at a cancer support message board. I went directly to Google looking for such a site and clicked on a link (it wasn't I typed in my story and it woulndn't post. I don't know why. I went to a second site and again the same thing, the post failed. Finally, I was able to post my story here at

                    I can't help but believe that God wanted this story for someone on this site at this time. This is the first time I've ever shared this story with anyone outside my immediate family and close friends. I'm positive this story made it to the right person.

                    I don't know how often in be in this forum in the future, but I will check in every so often and possibly share my stories of encouragement and hope. Please feel free to contact me directly be e-mail if you have any questions where feel that my input could be helpful.

                    God Bless

                    - Michael