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  • Hi All!

    Just wanted to introdcue myself. My name is Scott. I am a survivor ('92) and have not really been following too much of what has been happening in the field of TC-Research but figured I would catch myself up. Jay told me about this forum so I thought I would check it out.
    Live each day to the fullest

  • #2
    Hey Scott.
    Its great to see you here. I'm sure you like the rest of us you have a story to tell that can give hope and inspire others.

    Jason
    Last edited by Jay68442; 09-26-07, 04:58 PM.
    If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
    If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
    Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
    My Blog

    Diagonosed 1988. Left I/O - 3 rounds of chemo
    Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
    There is Army Strong, There is Live Strong and then there is me. Crazy Strong

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    • #3
      Hi Scott, nice to meet you!
      Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
      Current DVT
      Current testosterone replacement therapy, Testim.

      "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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      • #4
        Originally posted by Jay68442
        Hey Scott.
        Its great to see you here. I'm sure you like the rest of us have a story to tell that can give hope and inspire others.

        Jason

        Thanks again for telling me about it.

        You are right. The most important thing I learned is to tell your sons that if there is an issue with your groin, to check it out! I know I waited nearly 3 months to have my hdryocele checked out because I was ashamed that Imay had caught something. By the time they did the surgery, the TC had traveled up my lymph system to a node in/against my lung. Thankfully it hadn't mestaticized.

        The only other symptom I had was that I had horrible back/side aches just before Christmas (diagnosed May '92). I couldn't eat or sleep for 2 days and then it went away (Although, that is something else I will now tell people to go to the DR for!). Apparently that was when it first really affected my abdominal lymph node.
        Live each day to the fullest

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        • #5
          Welcome to the forum Scott! I'm sure reading through some of the threads you've seen that cancer treatment has had a few changes in the last 15 years! You're contributions to the forum will help out a lot of people.

          Bobby
          4/26/07 - mass confirmed w/ no elevated markers
          4/27/07 - left I/O
          5/2/07 - Dx: 100% seminoma stage 1A
          Surveillance: CT/blood (6 month cycle)
          4/27/13 - 6 years cancer free!

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          • #6
            Welcome to the Forum, Scott. The input of TC veterans like yourself is always appreciated, as it is living proof of how much treatments have improved in such a short period of time. BTW, that's a nice photo you placed in the member album.
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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            • #7
              I am just starting to work my way around. I see one thread where they state they are using PEB (cisplatin, etoposide, bleomycin) which is similar (maybe the same) to what I had. I had cisplatin, VP-16 and bleomycin. I am not sure if etoposide is the same as VP-16 or not.

              5-day treatment. 9AM-5PM, once every 4 weeks. Using Zofran to keep me from getting as sick.

              Is there a preferred treatment that they use now? Also, is there a thread on Doctors and how people feel/felt about theirs? I would like to send props out for mine.
              Live each day to the fullest

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              • #8
                VP-16 is the same as etoposide; and based on your schedule, you had 4xBEP, which is the standard of treatment for intermediate and poor risk TC.
                "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                11.22.06 -Dx the day before Thanksgiving
                12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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                • #9
                  Hi, Scott! Good to meet you. Thanks for joining us.
                  Scott, [email protected]
                  right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                  Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                  • #10
                    Welcome Scott, Happy to meet you
                    Right I\O 11/28/06 - 100% EC with vascular invasion - CT shows enlarged abdominal lymph node (30mm) and 12 small lung nodules (the bigger 13mm) - Chemo started 01/02/2007 - 4xBEP - end 03/22/2007 - 03/22/2007 tumor marker normal - 04/23/2007 CT shows two small lung nodules (3mm and 4 mm) and lymph node 12mm - 05/23/2007 tumoral marker normal - 06/06/07 CT is stable - 07/23/07 tumoral marker normal - 08/02/2007 CT-PET shows all clear - On surveillance from 08/04/07

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                    • #11
                      It's always great to see TC survivors join the forum to show those newly diagnosed that many go on to live wonderful, fulfilling, healthy lives. Welcome, Scott.
                      Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                      Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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                      • #12
                        Well, I knew I truly beat it when I was able to donate blood again, and, more importantly, I was able to have my kids.


                        Quick question - 'poor risk' does that mean low-risk or high risk?

                        My father dealt with the doctor more than me and I never really knew how severe my diagnosis was at the time. (Not that a cancer diagnosis is ever good of course) I just knew the extent it had travelled up my lymphatic system.
                        Live each day to the fullest

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