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New Member Survivor With A 54 Year Old Perspective

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  • New Member Survivor With A 54 Year Old Perspective

    Hello, all. I've been browsing and finally decided to register. I feel like I've found an extended family.

    No, that's not a typo. I'm 54. I got the initial diagnosis on my 25th wedding anniversary, and the I/O on the day we were supposed to leave on a second big honeymoon in Hawaii. We had just renewed our AARP memberships for the discounts!

    I am now 5 weeks post-op and awaiting the first round of surveillance. Seminoma 1, no sign of spread based on pathology, blood, CT's, Xrays, etc.. I have two sons, 19 and 15, who now know everything about self-exam.

    I'll give more background and figure out how to set up my profile, but first I need to say two things.

    First, I have the deepest admiration and respect for the caregivers. With kids of my own in the target age, I have some inkling of the anxiety and sacrifices the parents must have endured. Close on their heals for most highly admired are the wives, fiances, and girl-friends, without whom us guys would be in a real mess. Too many people run away from problems like these, or less so. You have a special capacity for love, for sure. All caregivers have a reserved place in heaven, and if God is still minting arch-angels, the jobs are yours for the asking.

    Second, and this is the only politicking I intend to voice, I would like to shake some sense into Congress and our esteemed President about children's healthcare. Depriving a single child of premier healthcare in this great country is a crime, a sin, and an embarrassment. We shouldn't be in Iraq; too many people are dying there and here. Keep the money right here.

    I'd like to hear your feedback. TC is rare, and at my age, a total lightning strike. I was scared to the point of preparing my family for my death during that 3-week window of unknowns, but I do feel incredibly lucky we got this early. Are there enough "old-timers" around to keep a special forum going?

    Best regards,
    Last edited by Paul54; 10-25-07, 02:36 PM.
    "Statistics are human beings with the tears wiped off" - Paul Brodeur
    Diagnosis: 05Sept07 Right I/O: 13Sept07; Pure Seminoma; Surveillance only per NCCN: All Clear August2013 (CT scan, Markers)

  • #2
    Welcome to the forum and thaks fo becoming an active participant. 54? Holy smokes you're certainly on the fringe of the bell curve for getting tc. What were your symptoms? I guess my big shock is that you caught it at stage I. Most guys our age would put off an exam way beyond stage I. I do have just one more question, does your AARP allow discounts at the sperm bank.
    Last edited by dadmo; 10-24-07, 09:13 PM.
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


    • #3
      i Paul,
      I just wanted to say welcome to the family. Its great to hear that you found it early and all is well.

      If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
      If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
      Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
      My Blog

      Diagonosed 1988. Left I/O - 3 rounds of chemo
      Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
      There is Army Strong, There is Live Strong and then there is me. Crazy Strong


      • #4
        I think the E.D. bottle has a warning about being in the deposit room longer then 4 hours.
        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


        • #5
          Hey Paul: I am so sorry to welcome you to the club, but so happy you found it! Young or old, rich or poor, handsome or "he's got a nice personality" - cancer is a very undiscriminating club...if it wants you, it'll take you on its forced membership!!!

          As a caregiver and a wife, I thank you for your kind words of appreciation for the different kind of struggle we go through to support our boys...I wish you continued success on your recovery.
          *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
          *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
          *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance


          • #6
            Welcome Paul! Sorry you've joined the club but am I glad you did. I was diagnosed this past August and I am 44! It is unusual for someone my age to get it this late, but you my friend, took the cake! Nevertheless, it is great to have you here. Perhaps you and I can start a "TC Council of Elders" . All kidding aside, you've come to the right place and you will soon find that these guys and (caregiving) gals have a LOT to offer! Welcome again!
            "Faith is being sure of what we hope for and certain of what we do not see". Heb 11:1


            • #7
              And just to think they thought my husband, at 37, was too old for TC....I guess we are learning lots and lots about this cancer.

              You have a great outlook and I am glad you found us. Welcome from the bottom of my heart.
              Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
              Current DVT
              Current testosterone replacement therapy, Testim.

              "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum


              • #8
                "TC Council of Elders" that's troublesome not because it's wrong but how do we get the word out to the older general population. Everything you hear or read talks about this being a young man's disease. Perhaps it's time for us to come up with an awareness campaign for the older guy's. Maybe something like "Testicular Cancer if you got em check em".
                Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


                • #9
                  Yep, TC happens to oldsters too. I was 48, and everyone was surprised because I was so old. But, my family doctor reported to me that he had diagnosed another case just 6 months after mine, and that guy was just about my age too. So, there is a point about reminding older gentlemen to check their equipment - most of my friends and co-workers around my age that I told have said they never check - hopefully they do now.

                  I can't speak to moodiness before diagnosis, as I don't think I had any more of that usuall in the months leading up to my diagnosis, but I did in the months following. I think these may have been inpart from hormone level swings as my remaining one geared up to do the work of two, but probably just as much as my need to mentally and emotionally work through just what it all meant in my life - the fact I could no longer consider myself bullet-proof, trying not to worry about every ache and pain, as well as some level of guilt for being so fortunate when others are not.

                  But, welcome to the Forum, Paul. Glad you got a favorable pathology report and have such a good attitude.
                  Right I/O 4/17/06, Seminoma Stage Ib
                  RT (15 days) completed 6/1/06
                  All clear as of 5/8/09


                  • #10
                    Welcome Paul,

                    Regardless of what you keep hearing, it IS a young mans disease.
                    And I speak from a young, 48 year old 's perspective.

                    Best wishes,
                    Dec/04-Right I/O-nonseminoma (95%E/C),Stage 1, surveillance
                    Nov/05- 2.2 cm lymph node= Stage II A
                    Nov/05 -Jan/06-3 x BEP
                    Jan/06 -Surveillance



                    • #11
                      Welcome Paul! My hubby was 46 at diagnosis. I'm one town away from Basking Ridge-Sloan, but it opened after we needed it. I do believe you'd be in NYC for a consult though. From the little I know about BR, it's more of an outpatient treatment and diagnostic facility.
                      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.


                      • #12
                        Welcome Young Man

                        I am 58 and I just had a Bilateral I/O two days ago. The Doctor is still in disbelief and wants to review the path reports. I do have a history of Sarcoidosis that also invades the testicals, and being caucasion of Irish decent I am not suppose to have that either!

                        You will find everyone here very supportative and helpful. They are a good goup of warm hearted people. They will answer the craziest questions.


                        • #13
                          Hi Paul welcome to the forum , if there is ever a silver lining in my sons diagnosis of Tc its finding this forum and all the wonderful supportive people who I would otherwise never have crossed paths with. Godd luck with the surveillance and dont get complacent about appointments and tests no matter how much time goes by. Marion


                          • #14
                            Hi Paul. Sorry to have to welcome you to this group but what a great group to find! These are some truly giving and devoted people with tons of useful information and great ears!

                            And what a nice comment about us gals on the other side of the hospital bed. Nights like tonight when I am setting on the couch and feel great and know he feels like crap (and I am feeling guilty for my good health) its nice to hear that all is not lost and we are apreciated. Gives me a boost to try and help him to feel as well as he can feel, even on bad days.
                            Co-survivor with husband Matt, Stage 3b seminoma, last cycle of chemo, BEPx3, R/O and a stint installed in his right side to his kidney. Skin cancer removed aprox 1 mo prior to diagnosiss.


                            • #15
                              Originally posted by MetrologyHam
                              I am 58 and I just had a Bilateral I/O two days ago.

                              Hope you are feeling "measurably" better, after your recent surgery!!
                              Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
                              Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

                              Please see a physician for medical advice!

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