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  • Possible reoccurrence

    Been cancer free for the the last 9 years
    Had a regular Dr appointment with my urologist who did original IO in 2008 Pure seminoma Stage 1 w/radiation
    We reviewed my blood work and it showed elevated hCG at 7.6 he performed a manual examination of remaining testicle and we found a tender spot close the epididymis. He ordered a testicular ultrasound also CT scans with contrast and more blood work
    Thought we were out of the woods now the wait is playing games with my head
    Any insight would be appreciated
    Thanks
    Rob
    Last edited by MyJewelz; 08-26-17, 04:43 PM.
    10/15/08 Started with finding hard pea sized nodule on right testicle
    10/21/08 Urology appt, scheduled Ultrasound, found solid mass, ordered blood work
    10/22/08 Blood tests for Tumor Markers came back normal
    10/23/08 Urologist recommends Orchiectomy, scheduled me for Pelvic and Abdominal C/T Scans and Chest Xray
    10/24/08 All C/T's came back normal and chest xray all clear
    10/28/08 Right I/O
    11/06/08 Pathology Seminoma Stage 1 Tumor size 1.5x1.5x1.5cm No Lvi
    12/21/08 Finished RTx15 25Gy

  • #2
    UGH!!! I hope that the blood work comes back okay, when was the previous hcg run prior to this las one? Was an u/s done? Let us know what the CT scans show, hoping for good news.
    Son Grant
    dx 12/21/16 at age 17

    BEP x3
    Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
    2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
    Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

    Comment


    • #3
      That bHCG is low. It could be false positive. I had my bHCG jump into the teens once and it turned out to be a false positive. I'd ask for a restest this week to quickly rule that out.

      As to the "tender" spot; that could be anything. If it is cancer then it's not a recurrence. It would be a second primary (an entirely separate cancer unrelated to the first). Why did your doc. not order an Ultrasound and just skip to a CT...seems to me that whats inside the scrotum the Ultrasound could have answered it real fast. Would be cheaper than a CT to boot.

      I could tell you and will tell you to try not to worry about this until you know that you need to worry about it, but as all of us on this site know that that is easier said then done.

      Keep us posted.

      - Matt
      March 4th 2014: [AFP = 2.5; bHCG = 6; LDH = 618]
      March 13th: Left IO 100% Classic Seminoma
      6.3 x 5.1 x 3.8 cm, no invasion of anything
      LDH never fully normalized
      Stage: IS
      Watchful Waiting
      May 1st: promoted to Stage IIB with two PET active tumors in the para-aortic lymph nodes 2.5 & 2.4 cm
      May 12th: started 3xBEP
      Neupogen during Cycle 2 and 3
      July 8th: Last Bleo shot of Cycle 3 -- chemo completed !
      August 4th: Post Chemo CT/PET scan
      September 4th: Port removed
      Jan 9th 2019: 4.5 YEARS ALL CLEAR !

      Comment


      • #4
        Yes, he did re-order blood work and ultrasound first
        10/15/08 Started with finding hard pea sized nodule on right testicle
        10/21/08 Urology appt, scheduled Ultrasound, found solid mass, ordered blood work
        10/22/08 Blood tests for Tumor Markers came back normal
        10/23/08 Urologist recommends Orchiectomy, scheduled me for Pelvic and Abdominal C/T Scans and Chest Xray
        10/24/08 All C/T's came back normal and chest xray all clear
        10/28/08 Right I/O
        11/06/08 Pathology Seminoma Stage 1 Tumor size 1.5x1.5x1.5cm No Lvi
        12/21/08 Finished RTx15 25Gy

        Comment


        • #5
          It’s been a long time since I posted on the forums, but I’m dealing with a similar situation. Went in for my 9 year post chemo check and the bHCG had gone up to 14, everything else was normal I’m really scared because that was the same tumor marker elevated with my original tumor. The docs here at the university of Michigan are proceeding the same way with a full CT, ultrasound of the my remaining teaticle, and repeat blood work.

          I’m curious to here what the outcome was, I know this thread is a little dated but it looks like both of you are active. I consulted via email with Dr. E as I have done in the past and he believed it was likely nothing and related to a false positive.

          To make matters worse I found a weird lump on top of one of my ribs this morning that’s about 2inches by one inch that’s just below the skin.

          Any posts would be appreciated

          Comment


          • #6
            PBMC11- Ugh! So sorry. Please keep us updated. Hopefully it was a false positive.
            Son Grant
            dx 12/21/16 at age 17

            BEP x3
            Post Chemo CT Scan on 3/28/17 still showed a few nodes over 2 cm
            2nd Post Chemo CT Scan on 4/27/17 showed all nodes still over 2cm
            Post Chemo RPLND 5/8/17: Periaortic Teratoma, Intraaorticaval Teratoma, and Paracaval Teratoma found.

            Comment


            • #7
              So I got the results back today and not what I was hoping for. Ultrasound showed a 2cm mass on my remaining testicle, not sure how me and my doc didn’t catch this on the self exam. Meeting with the urologist tomorrow morning to talk a about next steps. Oncologist has me scheduled for early next week.

              Comment


              • #8
                Sorry to hear about that, man! Are they going to do autopsy or another orchiectomy?
                July 2016 - Left I/O
                December 2016 - BEPx3
                All clear for 2.5 years now + new baby!

                Simplify Cancer: Man's Guide to Navigating the Everyday Reality of Cancer
                My Testicular Cancer Support Kit
                First Oncologist Visit Checklist
                Simplify Cancer Podcast

                Comment


                • #9
                  The plan is to do another I/O and then start on TRT. CT scans were clear so I am really hoping that my bHCG normalizes after the surgery so surveillance is in play. My oncologist said I could not do BEP again because of the toxicity.

                  Comment


                  • #10
                    Good luck with it - hopefully, you don't need to do any treatment after the procedure ever again...
                    July 2016 - Left I/O
                    December 2016 - BEPx3
                    All clear for 2.5 years now + new baby!

                    Simplify Cancer: Man's Guide to Navigating the Everyday Reality of Cancer
                    My Testicular Cancer Support Kit
                    First Oncologist Visit Checklist
                    Simplify Cancer Podcast

                    Comment

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