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  • #61
    Joining the team
    ------

    34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

    AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

    Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

    Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

    Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

    Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

    BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

    cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
    {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

    Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

    DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

    dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

    Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

    greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

    Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

    Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

    Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

    James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

    Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

    joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

    Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

    JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

    Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

    LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

    LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

    Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

    lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

    Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

    No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

    pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

    Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

    PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

    robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

    Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

    Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

    SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

    Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

    Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

    Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

    stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

    TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

    __________________________________________________ ______________________________
    To update:
    1. Copy all the the Posts (and these instructions)
    2. Click Reply
    3. Paste into the Reply
    4. Add your Details
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    Sample
    You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

    Comment


    • #62
      Adding myself to the list...
      ________________________

      34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

      AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

      Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

      Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

      Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

      Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

      BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

      BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

      cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
      {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

      Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

      DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

      dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
      TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

      Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

      greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

      Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

      Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

      Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

      James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

      Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

      joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

      Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

      JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

      Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

      LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

      LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

      Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

      lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

      Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

      No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

      pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

      Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

      PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

      robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

      Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

      Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

      SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

      Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

      Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

      Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

      stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

      TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

      __________________________________________________ ______________________________
      To update:
      1. Copy all the the Posts (and these instructions)
      2. Click Reply
      3. Paste into the Reply
      4. Add your Details
      __________________________________________________ ______________________________

      Sample
      You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
      TC1
      1/18/10-Mass found(right)
      1/19 scans clear,Blood markers normal
      1/20-Orchiectomy.
      Underwent 1xBEP per Dr. Einhorn
      TC2
      6/25/12-Mass found (left) pelvis & abdomen,Chest X-ray,Blood markers normal
      6/29-orchiectomy and two prosthesis inserted
      7/6-started 1.62% TRT 2 pumps daily
      7/12-Started 1xBEP
      9/2012 - Switched TRT to weekly Testosterone Cypionate IM injections @ 100mg

      Comment


      • #63
        Adding myself to the list...
        ________________________

        34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

        AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

        Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

        Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

        Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

        Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

        BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

        BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

        cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
        {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

        Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

        DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

        dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
        TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

        Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

        greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

        Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

        Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

        Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

        James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

        Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

        joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

        Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

        JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

        Kevin1988 [TC1 2011 (age 23), pure seminoma stage 1A, radiation] /+3 years [TC2 2014 (age 26), seminoma stage 1B, 2X carboplatin, surveillance]

        Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

        LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

        LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

        Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

        lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

        Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

        No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

        pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

        Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

        PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

        robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

        Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

        Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

        SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

        Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

        Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

        Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

        stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

        TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

        __________________________________________________ ______________________________
        To update:
        1. Copy all the the Posts (and these instructions)
        2. Click Reply
        3. Paste into the Reply
        4. Add your Details
        __________________________________________________ ______________________________

        Sample
        You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]
        ER visit and ultrasound noticed mass 09/09/11
        Urologist suspects cancer 09/14/11
        RT I/O 09/30/11
        Confirmed as cancer (Pure Seminoma 1A) 10/10/11
        CT scan- Clear 10/22/11

        Comment


        • #64
          Adding myself to the list...
          ________________________

          34with1 ['fake' TC1 1975 (age 6 mos), preventative right orchidectomy]/+34.5 years [real TC1 2010 (age 35), seminoma stage 3, left orchidectomy and 4xBEP] Infertility+TRT (Axiron) since age 30, so wife and I adopted 3 kids.

          AdrianE [TC1 2008 (age 32), Teratoma stage I, surveillance] same time [TC2 2008, Seminoma stage 1, surveillance]

          Aegletes [TC1 1996 (age 30), seminoma stage I XRT] /+12 years [TC2 2008 (age 42), seminoma stage I surveillance]

          Andycoles [TC1 2006 (aged 30), seminoma Stage 1, right orchidectomy plus 1 dose Carboplatine], [TC2 2009 (aged 33), intratubular germ cell neplasia, left orchidectomy]

          Ariel [TC1 1999 (age 25), seminoma Stage 1, right orchiectomy, radiation, prosthetic]/+10 years [TC2 2009 (age 35), seminoma Stage 1, left orchiectomy, surveillance, prosthetic, 10mg androgel daily]

          Bipestuff [TC1 1983 (age 27), seminoma stage 1, Radiation] /+22 years [TC2 2005 (age 49), surveillance]

          BLWedge09 [TC1 1/2010 (age 29) Primarily EC Stage 1,Right orchiectomy(inguinal), 1xBEP/No prosthesis]+2.5 Years [TC2 6/2012 (age 32) Seminoma Stage 1,Left orchiectomy(scrotal), 1xBEP/2 Prosthesis, TRT is weekly Testosterone Cypionate IM injections @ 100mg]

          BraveOne [TC 1 & 2 7/2009 (age 32). Pure Seminoma, bilateral orch and implants and surveillance only. 10mg androgel] Glad to be TC free!

          cbudd [{TC1: (age 21) July 2005 / Left orchiectomy/ Prostheses}
          {TC2: (age 27) May 2011 / Right orchiectomy (surgery is scheduled 6-1-11) / Cancer found in Lymph Nodes as well/ No Prostheses / Chemotherapy to come (if not more)}]

          Davepet [TC1 1975 (age20) Unknown type & stage, right I/O, RPLND] /+35 years \[TC2 2009 (age55) Mixed embryonal& seminoma, Left I/O, followed by 3xBEP]

          DoubleZero [TC1 2009 (age 40). Seminoma stage 1, radiation; TC2 2010 (age 41) embryonal carcinoma stage 1, surveillance; 2010 relapse 3xBEP]

          dsomers74 [TC1: May 2000 (age 25) / Right orchiectomy / seminoma stage 1 / Radiation
          TC2: June 2010 (age 36) / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets]

          Fish [TC1 1988 (age 26), primarily embryonal cell carcinoma with teratoma & seminoma, Stage 1, RPLND, surveillance] /+15 years [TC2 2003 (age 42), pure seminoma, Stage 1, surveillance]

          greg_oz [TC1 1998 (age 24), embryonal carcinoma & seminoma, stage I, surveillance, recurrence 1999, 3xBEP] /+10 years [TC2 2008 (age 34), seminoma stage I, XRT]

          Groundhog [TC1 1988 (age 38), pure seminoma, stage 1, surveillance/ +21 1/2 years [TC2 2010 (age 59), pure seminoma, stage 1, surveillance. 5g testim]

          Healthnut [TC1 1995 (age 28), pure seminoma stage 1, radiation] / +8 years [TC2 2003 (age 35), pure seminoma stage 1, surveillance]

          Hugh [TC1 1989 (age 40), seminoma stage 1, radiation] / +21 years [TC2 2010 (age 61), seminoma stage 1, 1 x Carboplatin]

          James [TC1 2001 (Sept), Seminoma Stage IIIa, Right IO] /+3 Months] [TC2 2001 (Dec), type/stage, Left IO, mixed "germ cell". No sign of invasion, surveillance surveillance but in 2004 my lymph nodes AND lung showed a problem with my routine scans. Ended up "re-lapsing" after 3 years and had to do 4 rounds of B/E/P. No RPLND needed as remaining scar tissue all disappeared a few months after last chemo treatment, 4x BEP Completed 2/14/05]

          Jesse 74 [TC1 May 2011 (age 36) classic seminoma stage 1, Left IO, Radiation] /+ 2years & 7 months [TC2 January 2014 (age 39), 2 nodules; nonseminoma and a seminoma stage 1a, Right IO, treatment TBD per Dr. Einhorn]

          joev [TC1 1998 (age 31), pure seminoma stage 1, RT] /+3 years [TC2 2001 (age 34), pure seminoma stage 1, surveillance]

          Joe3man [TC1 2006 (age 32), seminoma stage I-25 Rounds of Radiation] [TC2 2010 (age 36), seminoma stage I-surveillance]

          JonM [TC1 1997 (age 31), teratoma stage III, X4 BEP, X3 VIP, RPLND, x5 GAMEC, RPLND (2), LT] /+11 years [TC2 2008 (age 43), Stage 1 Seminoma, Right orchidectomy, x1 Carboplatin, Surveillance]

          Kevin1988 [TC1 2011 (age 23), pure seminoma stage 1A, radiation] /+3 years [TC2 2014 (age 26), seminoma stage 1B, 2X carboplatin, surveillance]

          Kiwi [TC1 2001 (age 36), seminoma stage 1, right IO, Radiation] /+7 years [TC2 2008 (age 43), seminoma stage 1, Left IO, surveillance] two prosthetics

          LeePee [TC1 1992 (age 34), pure seminoma, left orchidectomy, Radiation] + 14 years [ TC2 2006 (age 48), seminoma stage 1, right orchidectomy, 1 dose carboplatine, surveillance] two x prosthetics

          LeeR [TC1 1997 (age 30), seminoma stage 1, Radiotherapy] /+12 years [TC2 2009 (age 42) seminoma stage 1, 1x carboplatin] In between episodes had two boys to add to a daughter.

          Leo [TC1/2 at the same time jul/2012 (age 32), left/right IO, seminoma stage 1, 2 rounds of Carboplatin, two prosthetics, TRT Nebido each 11 weeks]

          lindsayn [TC1 May 2000 (age 24), seminoma Stage 1, radiotherapy - right side; TC2 October 2010, seminoma Stage 1, surveillance at this stage - left)

          Marc311978 [TC1 1997 (age 18), seminoma stage 1, Radiation] /+12 years [TC2 2009 (age 31) seminoma stage 1, surveillance]

          No nuts [TC1 2006 (age 27), seminoma right radiation treatment] / +7 years [TC2 2013 age 34 seminoma left carboplaten testepe]

          pcwilson [TC1 1997 (aged 27), teratoma, stage I, surveillance] /+10 years [TC2 2007 (aged 38), seminoma stage I, surveillance]

          Perk, TC1 2001, seminoma, teratoma, embryonal carcinoma, uncertain type, Stage 1, lymph node dissection (negative 2001), surveillance. TC2 2006, embryonal carcinoma, seminoma, Stage 1, surveillance. AndroGel Pump...

          PISKOT (wife) TC1: 2005, pure seminoma, stage 1, left I/0, radiation (age 43), TC2: 2010, seminoma, right I/0 2xBEP), HRT Nebido (age 48)

          robert j [7/2009 TC in Both!) both seminoma stage 1, surveillance] (opted for 2 prosthetics at time of surgery, now on HRT bi-weekly self injection).

          Rosc [TC-1: 5/1990 (age 29). Seminoma some Embryonal, Left Orch. and surveillance. Appears in lymphnodes in 1992. RPLND using laparoscopy and then 6wks. radiation therapy. Clean until 2008. (TC-2 4/2008) age 46. Pure Seminoma. Right Orch. and chemo. (2X Carboplatin). HRT is weekly self IM injections with 100mg Cypionate. In between episodes had two children with wonderful wife.

          Roybatty [TC1 1987 (age 22), seminoma stage 1, Radiation, HRT, implant TC2,seminoma stage 1, 2013 age 48, implant, surveillance, plastic surgery]

          SamMac84 [TC1 2011 (age 27), pure embryonal stage 2, right I/O, RPLND / surveillance] / + 2 years [TC2 2014 (age 29), pure seminoma stage 1, left I/O, surveillance / Testim]

          Schmitt313 (wife) [TC1 -left- 2006 (age 29), non-seminoma, stage 3, chemo 9 wks,] in between we had a healthy baby boy to add to our two daughters![ TC2 12/2008 (age 32) pure-seminoma, surveillance, two prosthetics, Testim]

          Smerd [TC1 Feb 2008 (age 30), Non-Seminoma with some Seminoma Stage 1] [TC2 October 2008 Seminoma Stage I] Partial Orch

          Steffo [TC1:2001 (18 yo), embryo carcinome, stage 1A, left, RPLND clean] / +12 years [TC2:2013 (31 yo), mixed embryo, yolk, tera, chorio + vasal invasion, stage 2B, right, cryopreservation, 2xBEP. just switched from Nebid(o) to Andro/Testogel]

          stefanos1999 [TC1 Nov 2010 (age 30), Right (pure seminoma,6cm StageI, Carbo) / +3 years Dec 2013[TC2 Left P/O "partial orchiectomy"(1cm pure seminoma again,StageI, age33) ..75% of the testicle remained..TIN/ IGCNU]

          TC Runner: Left TC 5-2010 (age 35) 95% seminoma 5% non-seminoma – lymphovascular involvement but confined to the testicle. Left I/O and surveillance. Right TC 11-2010 (age 36) –90% embryonal 10% seminoma – lymphovascular involvement + 3 enlarged lymph – staged 2B. Right I/O & Right prosthetic. January 2011 3 x BEP.

          Kak584 (TC1 2012 (28), Non-Seminoma Stage I Lymphadic and Vascular invasion, Left, BEP Chemo) (TC2 2015 (31) Seminoma Stage 1, Right, TRT Lifer)

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          You [TC1 20?? (age ??), type/stage, Left or Right IO, treatment / other info] /+? years [TC2 20?? (age ??), type/stage, Left or Right IO, treatment / other info]

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