I know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.
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1 month all clear!
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Congrats on the good news!My newer blog. I'll be using the one below from now on.
http://jefflilland.blogspot.com/
Initial Diagnosis 04/15/2013 Stage 1b Non-Seminoma
I/O 04/08/2013
Second Diagnosis 09/19/2013 Stage 3 Non-Seminoma in the left lung
3x BEP 09/25/2013-11/19/2013
All Clear 11/26/2013
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Originally posted by surfhb View PostI know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.11.2009 (age 29)carcinoma embryonale testis,op left side(orchiectomy),600 AFP, 90 bHCG(after op still high) ,CT chest and abdomen clear
12.2009 - 2.2010 3xBEP
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Originally posted by surfhb View PostI know its not that long of time to be all clear but I got my first scans back and everything looks good. Can't wait to post yearly in this section. BEPx3 sucked and this is now more of a mental battle than anything else.
Keep it up,
DaveJan, 1975: Right I/O, followed by RPLND
Dec, 2009: Left I/O, followed by 3xBEP
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Congrats Surf!!!March 2012 - I/O Right Testicle (pure Seminoma)
April 2012 - July 2013 surveillance
July 12, 2013 LDH 365, Node is in abdomen size = 2.7cm. (treatment needed)
August 5, 2013 beginning 3xBEP
http://www.caringbridge.org/visit/jimmiller71
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Originally posted by surfhb View PostWhat is the follow up procedure now that I am in the clear. My oncologist seems to alter what this should be each time I talk with him. It seems like it is up to me in order to make sure I am getting this done correctly.
DaveJan, 1975: Right I/O, followed by RPLND
Dec, 2009: Left I/O, followed by 3xBEP
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Originally posted by Davepet View PostWell, afraid you are not truly "in the clear" just yet, but you passed a big milestone on the journey. Most recurrences happen within the first year, a few wait two years, but 5 years is pretty much the gold standard for "cured". As far as your follow up, it's not really clear to me from the NCCN guidelines, but I *think* you should expect at least 2-3 month interval for chest x-ray & blood markers & a 6 month interval for CT scans in the first year. The frequency decreases over the next few years until year 5.
Dave
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Another question Dave. What are the percentages of recurrence after BEPx3? Is this the 90% curable everyone talks about? I'm assuming the recurrence rate is 10%? Is it less chance of recurrence if you were staged lower but still had BEPx3? I think I can put this stuff in the past and move on with life if I knew what the stats said. It's hard to find this on the web. The good news is that I made it 4 days without smoking (not talking cigs)! Whats the percentage that you get it a second time? It seems like it happens to many members on this forum.
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