He is only 13 years old

[dadmo]

Kay:

The link will take you to the department chairman the phone number are at the bottom.

International Patients: From outside the United States, call 1-212-639-4900. Or, to use AT&T Direct Access, first dial the access number for the country you are in, then 888-675-7722. From within the United States, call 212-639-4900 or toll-free 888-675-7722.

http://www.mskcc.org/prg/prg/bios/1.cfm

Bill

[dadmo]

kay:
I just called Dr. Brennan's office and the message said to call back monday after 9am.
I tried the main switchboard but there was no answer, I will continue to call until I get in touch with someone. I think we need to act quickly so I'm just trying to make sure I'm getting you in touch with the right person.
Bill

[lost parent]

Hi DADMO,
I have found the numbers i call over there and get same answer i cannot wait till monday your time because its tuesday our time.And Monday they start treatment.I dont wont to start treatment without advice from your doctors its already been 7 days .His stomach tumor is 38cm long and 24 cms wide he all so has two other tumors just as big one in the back and one in the testical.the rhabdomysarcoma is called Alveolar of the soft tissue if you can get this information to any of your doctors as our ones said they have not seen this sort of tumors grow where there are growing and how fast its growing .So may be your doctors havent and they need to know about this case.Please find away to get this info to them and they can decied if they wont to help or not.Please send private post so i can pass my contact details to you for them.
Thanks Kay

[dadmo]

I think it's a good idea to get the treatment started. Sloan may have a different mix or idea of how to treat your son but if your guys can at least slow it down that will be helpfull. I will continue to call through the weekend, I Know others will read this thread and if they have any way of helping I'm sure they will.

[dadmo]

Kay:
I refined my search a bit and came up with a team (Sloans term) of experts
who deal with Alveolar. Heres the link http://www.mskcc.org/mskcc/html/61946.cfm

[lost parent]

DADMO,
went to the sites but because its the weekend over there i cant get my info to any of them.i need to be already getting treatment with them or be a doctor before a message will be given to them.I have tried every thing .now its 1.46 am and i dont know what to do now i have to go the hospital soon to be with my son so my partner can have a break and we have 7 other children we are trying to look after so once i leave this computer i wont be back until Monday night .Sorry about wording i am so drained now my brain is all over the place.iam going to have a coffee now and i be back.i sent emails to so many people on the sites for Sacomas hoping someone will get this info i can only pray. Thanks Kay

[lost parent]

Hi Justinsmom,
Thank you for your post .
And as for your advice on sleeping thank you but until i have done every thing in my power to save him and he is no longer in pain i will not take any thing to help me sleep .As i need evey minute right now.
Thanks Kay

[Scott]

Kay, I know I would feel the same way if one of my four children needed me. Do take care of yourself, though, as soon as active treatment is underway. You'll be more help if you're not exhausted.

[lost parent]

Hi Scott,
thank you for you post.
But how can i when he cannot?

To all the people who gave me the contacts i have called all but cannot get to speak or get my info to any of them.
thanks Kay

[Scott]

It's completely natural to feel that way. Just remember when you do need a rest that you should not allow yourself to feel guilty about it. You and your family need you not to wear yourself out.

[lost parent]

Hi Mattias,
thank you for your post.
And i know cances hit any age and any one.
This is not my first time dealing with cancer i give you a little back ground on my life.
Age 10 -Lost my mother to cervical cancer she was only 25.(she was 14 when she had me) i have 2 brothers and 3 sisters.
My youngest brother was born in April in May she found out she had cancer she died 6 Dec it took her in 7 months.

My uncle who was 1 year younger than me had a wife with a brain tumor we help her fight it for years they had 4 lovely children she got into her last stages it was hell.My uncle was to care for there children when she died but in oct 2000 he died while she was in hospital 6 months later she died from the tumor.
We have the 3 youngest children with us so our family went from 5 children to 8 and the oldest boy went to his grandmother.

June 2005-just found out my partners father had prostate cancer and we watched him go though all stages and we lost him on the 23 Dec 2005.
It took 6 months to take him.he left it to late.he was 70 and

I am 36 this year

they say what does not kill us makes us stronger but i cannot get any stronger now this cancer with my son will kill me.
And these kids cannot go though this for the 3 rd time.
there ages are 16,15,13,13,11,9,7,7

Thanks Kay

[Scott]

Wow, that's too much for anyone to be asked to bear. I hope you have good support from family, friends, and counselors. Please hang in there, Kay.

[lost parent]

Thanks Scott,
There is more but may be at later date i fill you in that was so hard to post,
Kay

[dadmo]

Kay:
I got your private message. I will get to someone at Sloan and I will get them to you.

If anyone can help here are the Doctors names (all at Sloan)
Paul Meyers 212-639-5952
Leonard Wexler 212-639-7990
Pam Merola 212-639-8392

[lost parent]

Thanks DADMO,
I have to go for now i am starting to fall apart its 3.28 am and kids will be up soon .I have always been the strong one in my family and the one everyone else comes to but now i am just holding me together.I will not log out but just sit back and have some time out .
Kay