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  • #16
    Originally posted by dadmo
    For non-seminoma you're considered cured after two successful years of remission. Remission starts the day chemo ends.

    What if there is a relapse shortly after finishing chemo? I'm not even sure if relapse is the right word for Anthonys case.

    He had a complete response with chemo and the post chemo CT scan showed a residual mass.

    While going through the process of choosing the surgeon, his AFP began to rise. Dr. Einhorn said this would be residual yolk sac tumor, and he was right.. Anthonys path report after RPLND was 80% teratoma 20% yolk sac ..


    If there is residual cancer, but markers normalized during chemo .. how would that be catagorized? Relapse? Incomplete response? or chemo resistent?

    In any case, is the follow up the same in this situation for stage 3 non-seminoma?

    Son Anthony DX 12/11/06
    L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
    4XEP 1/29-4/6/ 07
    AFP started increasing3 wks later
    Residual abdominal mass found on CT
    RPLND 6/8/07
    Cancer in pathology-
    80% mature teratoma, 20% Yolk Sac. --
    No adjuvent chemo and
    AFP normalised

    July 22, 2010 ---- 3 years all clear!

    Comment

    • #17
      Oh jeez, a lot of follow ups this week .. a lot of anxiety "sigh"

      I hope and pray for the best news for all of you guys!

      Son Anthony DX 12/11/06
      L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
      4XEP 1/29-4/6/ 07
      AFP started increasing3 wks later
      Residual abdominal mass found on CT
      RPLND 6/8/07
      Cancer in pathology-
      80% mature teratoma, 20% Yolk Sac. --
      No adjuvent chemo and
      AFP normalised

      July 22, 2010 ---- 3 years all clear!

      Comment

      • #18
        Originally posted by mstlyn
        If there is residual cancer, but markers normalized during chemo .. how would that be catagorized? Relapse? Incomplete response? or chemo resistent?
        My call (and not that I'm not an M.D., I'm just going by the semantics here) would be an incomplete/partial response, since the markers did come back up prior to surgery, right? Chemo resistant would be if there had been no response to the treatment. Chemo resistant applies to the cells themselves.
        Originally posted by mstlyn
        In any case, is the follow up the same in this situation for stage 3 non-seminoma?
        The NCCN Guidelines note what the appropriate follow-up is.
        "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
        11.22.06 -Dx the day before Thanksgiving
        12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

        Comment

        • #19
          Originally posted by Fed
          My call (and not that I'm not an M.D., I'm just going by the semantics here) would be an incomplete/partial response, since the markers did come back up prior to surgery, right? Chemo resistant would be if there had been no response to the treatment. Chemo resistant applies to the cells themselves.

          The NCCN Guidelines note what the appropriate follow-up is.

          Yes.. He finished chemo on April 6th and all markers were still normal. I think it was May 2nd when they checked his markers and it was 10.8 and from there it continued to rise.

          Son Anthony DX 12/11/06
          L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
          4XEP 1/29-4/6/ 07
          AFP started increasing3 wks later
          Residual abdominal mass found on CT
          RPLND 6/8/07
          Cancer in pathology-
          80% mature teratoma, 20% Yolk Sac. --
          No adjuvent chemo and
          AFP normalised

          July 22, 2010 ---- 3 years all clear!

          Comment

          • #20
            I would classify Anthony's response as Incomplete. It dosen't really change anything other then his remission date should begin at the time of RPLND and his cure date will be two years after that.
            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

            Comment

            • #21
              Thanks for good wishes all...my prayers are also with all here waiting for tests, scans, etc..(and babies too!) I have great pictures from the awesome party, but I am embarrassed to say I will need my younger sister to help me post them...great group photos also...Mary Ellen

              Comment

              • #22
                Lots of appointments for a bunch of you! Best of luck to you all. I'm sure the anxiety doesn't get better. I don't care if it's the 2,3 5 or 10 yr. mark, the thoughts still go through your head. But you have all prevailed thus far. Prayers, hugs, love, coming at you all.
                Krista
                Brother Diag. 10/05 Non-Sem.
                Right I/O 11/05
                Surv
                4XBEP 8/06
                RPLND 12/06
                2X VIP 1/22/07
                Only completed 1 Rd.

                Comment

                • #23
                  Jason's blood work came back with an "all clear" now it's the scans tomorrow. A bit of the joy has been taken out of the news because of Anthony's current problem. Let's hope the follow-up in the morning can shed some light on why his markers have gone up.
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                  Comment

                  • #24
                    I am very happy to hear Jason's bloodwork is good, and I'm confident the scan will be as well.
                    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                    Comment

                    • #25
                      Go Jaymo Go!! Looking forward to hearing good news on the scans,
                      "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                      11.22.06 -Dx the day before Thanksgiving
                      12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                      Comment

                      • #26
                        The cage just tightened a bit. Because of some issues at work Jason postponed his scan until tomorrow. Let's just hope that he and Mark hit back to back homeruns.
                        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                        Comment

                        • #27
                          Originally posted by dadmo
                          The cage just tightened a bit. Because of some issues at work Jason postponed his scan until tomorrow. Let's just hope that he and Mark hit back to back homeruns.
                          Looking forward to hearing the crowd cheer when they bat it out of the park.
                          "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
                          11.22.06 -Dx the day before Thanksgiving
                          12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

                          Comment

                          • #28
                            Originally posted by Fed
                            Looking forward to hearing the crowd cheer when they bat it out of the park.
                            What time is the CT? Maybe we can synchronize the contrast. Damn cage can't hold us forever.
                            I Love My Pack!

                            sigpic

                            Comment

                            • #29
                              praying for all clear across the board!
                              Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
                              Current DVT
                              Current testosterone replacement therapy, Testim.

                              "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

                              Comment

                              • #30
                                Originally posted by dadmo
                                Jason's blood work came back with an "all clear" now it's the scans tomorrow. A bit of the joy has been taken out of the news because of Anthony's current problem. Let's hope the follow-up in the morning can shed some light on why his markers have gone up.

                                Awww thank you Dadmo.. Im happy that Jason's markers are normal. I understand and appreciate your care, but CELEBRATE BIG! Your sons markers are normal again ..

                                No doubt his scans will be too .. the waiting sucks

                                Son Anthony DX 12/11/06
                                L/O 12/20/06 Stage IIIA, 95% EC, 5% Yolk Sac
                                4XEP 1/29-4/6/ 07
                                AFP started increasing3 wks later
                                Residual abdominal mass found on CT
                                RPLND 6/8/07
                                Cancer in pathology-
                                80% mature teratoma, 20% Yolk Sac. --
                                No adjuvent chemo and
                                AFP normalised

                                July 22, 2010 ---- 3 years all clear!

                                Comment

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