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NCCN Guidelines about sperm bankiing

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  • NCCN Guidelines about sperm bankiing

    Reading the NCCN guidelines for the initial workup/primary treatment first line said discuss sperm banking. My sons urologist did not mention this, just got him in quickly for surgery the next day. Even if he had discussed it there wouldn't have been time to do it in the 24 hours. My question is, some people have several days notice of the surgery and did any ones urologist/ surgeon mention it to them? Even after the surgery nothing said. The first mention of it came from the radiation oncologist who suggested getting sperm tested, and then think about banking. How many of you were advised to do this? VWM

  • #2
    We also went into surgery 24 hours after finding out. Many times, the quality of the sperm is poor due to the TC. Our doctor said, post treatment we had a better chance of more quality sperm returning than to freeze less healthy sperm during TC. One testicle can many times do the work of two post TC.
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

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    • #3
      I too went into surgery 24 hours after finding out. I was told about banking shortly after the surgery. Not sure how long after the surgery it was that I visited the sperm bank. Less then a week I think. I remember the doctors at the bank telling me my count was low but I needed to start chemo. So one visit was all I made. Luckily all turned out ok for me and my count returned a few years after I finished chemo.
      If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
      If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
      Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
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      Diagonosed 1988. Left I/O - 3 rounds of chemo
      Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
      There is Army Strong, There is Live Strong and then there is me. Crazy Strong

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      • #4
        Can't count me: I'd already had four kids and a vasectomy.
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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        • #5
          Post surgery, before chemo. Count was low at the time, but I was reminded that it only takes one. He banked twice before chemo. Sharon
          Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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          • #6
            Jaymo had his removed the same day the problem was discovered. He finished college and then went to the bank about 5-6 times before chemo started.
            Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

            Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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            • #7
              I was the one that brought up the issue at the post-Dx follow-up with my urologist, but the ER doc that diagnosed me did mention it. Since I was one of those cases in which the docs didn't seem to have a sense of urgency with the I/O (yes, I raised hell about it), I had time to bank.
              "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
              11.22.06 -Dx the day before Thanksgiving
              12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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              • #8
                Hi VWM: For us, sperm-banking was discussed almost immediately but we did have two days prior to Andy's surgery. Please do not worry too much as we've been told the remaining guy can get the job done and there have been many success stories about conception just in this forum alone. Continued well-wishes for your son.
                Maria
                *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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                • #9
                  No one discussed it with me during my first TC. It was mentioned by the urologist prior to removal of the second guy. But in our 40's by that time, my wife and I had already decided not to have children.
                  Fish
                  TC1
                  Right I/O 4/22/1988
                  RPLND 6/20/1988
                  TC2
                  Left I/O 9/17/2003
                  Surveillance

                  Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

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                  • #10
                    Our oncologist mentioned it as "something we may want to think about, but first we need to get you into surgery". After our meeting with the oncologist we went right to the clinic within our hospital. Knocked on the door at 4pm and said here is our situation, we want to bank. They were wonderful. Jon banked right then and there (how he did after hearing his diagnosis 30 minutes before is amazing to me). He was at the hospital the next morning for is I/O and was able to bank 3 more times before chemo. We were lucky, as he does have retrograde ejaculation.
                    Lori and Jon
                    Diagnosed 5/22/2006
                    I/O 5/26/2006, Stage 3, Good
                    Teratoma (Majority), Seminoma (10%), Yolk Sac
                    3xEP then determined not working
                    HDC w/stem cell transplant 8/16/06 to 9/25/06
                    Chest and Neck surgery 10/9/06 - immature teratoma
                    RPLND 11/16/06 - immature Teratoma
                    2/29/2008 - markers continue to be normal!
                    9/16/2008 - released from Dr. Einhorn's care

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                    • #11
                      Also keep in mind for anyone reading this that some TC patients are very advanced at the time of diagnosis and cannot produce a sample for a number of reasons. In this case, as it was with Danny, a very short painless procedure was done to manually extract a sample. It was 24 hours after Danny's diagnosis and the doctor from the sperm bank came to the hospital and got it.

                      Mikey

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                      • #12
                        Good point Mikey...I think the procedure is called "aspiration" - it was discussed briefly with us in the event Andy couldn't get to the "bank to make his deposit".
                        Maria
                        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
                        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
                        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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                        • #13
                          I have to admit that it is pretty odd to think of my grandchildren in a freezer in Berkley California!! Makes me think we could start a new thread for us mom's in the year 2007! When Russell banked, we had a small party for the celebration of the process. I bought a couple of tiny baby t-shirts for people to write on...years from now, we will put them to use! Kind of like my internet family...here now, but I can't really get my arms around them!! Take care, love you guys, Sharon
                          Click here to support my LIVESTRONG Challenge with Team LOVEstrong.

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                          • #14
                            Originally posted by dannysbrother
                            Also keep in mind for anyone reading this that some TC patients are very advanced at the time of diagnosis and cannot produce a sample for a number of reasons. In this case, as it was with Danny, a very short painless procedure was done to manually extract a sample. It was 24 hours after Danny's diagnosis and the doctor from the sperm bank came to the hospital and got it.

                            Mikey

                            when Brian was 1st admitted into sloan kettering, he was VERY sick, and VERY anemic because the tumors were just eating away at his blood. the social worker came in and discussed sperm banking and at that time Brian was devistated of hearing he had cancer. Brian tried and couldnt get it to work (if you know what i mean) he apologized to me and said i just cant do it. i cant even think of doing that. i went outside and cried and thought, this man has cancer, and HE is apologizing to me?! i felt so bad and i explained to him, that it didnt matter, i only wanted him! and i wanted him to beat this so we could spend the rest of our lives together! they even tried to give him a viagra and still no good. here is the kicker, they walked in about an hour later with blood for him because he was 6 pints low of blood!!

                            Dawn
                            Fiance Brian, dx:stage IIIC non-sem 4/18/07
                            mets to lungs,liver,abdomin,large tumor near kidney
                            hcg was 176,000!
                            completed 1 rnd of TIP(had bad reaction to taxol)
                            BEPx3 until 7/13/07
                            7/26/07 post chemo ct-scan shwd shrinkage & fewer lung tumors
                            10/17/07 @ MSKCC Liver FREE of cancer! necrotic & small focus of teratoma.
                            AFP & HCG normal
                            12/7/07 RPLND,right orchiectomy @ MSKCC
                            12/18/07, rcvd pathology,all clear! no cancer!
                            2/11/08 -Lung surgery dne @ MSKCC
                            ALL CLEAR

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