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Memory Loss- Chemo Brain?

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  • Memory Loss- Chemo Brain?

    I know I have heard the term "Chemo Brain" and have read a little bit about it. But how much does memory loss fit into this?

    My poor husband, I don't think he even knows he is having problems with his memory, because the things he is having trouble with are like compleatly blank.

    For example, last night I was talking to him about the V-chip in the TV. And he kept saying "the what", I thought he was just mis-hearing me, so I just kept saying "the V chip". Finally he says, "I have no idea what you are talking about". Pre-cancer we had talked about the v-chip many times. Just in discussion, he knew what it was when it came out. But it had just "poof" disapeared.

    Another example, about 15 years ago I had worked at a day care, my husband didn't know me then. Yet we had talked about it many, many times in the past, as we drove past the building often. Then about 5 years ago they shut it down and it sat there for about a year before it was bought and turned into a dentist office. It has been a dentist office for about 3 years now and we both knew that. As I said, we drive past it often. About a month ago we were driving down the route we have driven often, past the day care now dentist office. My husband looks over and says "Wow, look they turned the day care into a dentist office". At first I honestly thought he was just joking around, but after looking at him with a very dumbfounded look, I turned back away, very confused. He clearly was not joking. To him it was a compleatly new thought. It was SO strange.

    And these aren't the only times. There are many more. I often find myself having to stop and think about things he has said to make sure he and I are remembering correctly. And it really seems more long term memory then short term. That was effected as well, but that seems fairly normal.

    It doesn't seem normal that part of his memory are entirely missing. Any one else have problems with this?

    Becki

    Husband Right I/O 09/06
    -70% Embryonal Carcinoma
    -20% Teratoma
    -10% Yolk Sac Tumor
    11/06- lymph nodes 1.8x1.4 and 1.9x1.4
    12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
    1/07-Start 3xBEP
    4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
    6/07-lymph nodes 1.2x1.0 and 1.9x.9
    8/07-lymph nodes 1.1x1.0 and 2.0x1.2
    10/07-lymph nodes 2.0x1.5 and 2.7x1.8
    11/07- PostChemo LRPLND-found burnt out teratoma
    11/09-Enlarging lymph node 1.2 cm near renal veins

  • #2
    I know chemo brain was something Boyce had, but it sounds like your hubby is having some memory loss. I am sure things will go back to normal but a call to the doctor, to check and see if his levels and such are okay, would not hurt. Let us know.
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

    Comment


    • #3
      Margaret

      We actually see the Onc on Friday. He had blood tests and PET/CT on Friday, haven't heard a peep yet on how all that turned out. I have yet to decide if that is a good thing or a bad thing! I was not planning on going with him this time if the PET/CT came back negative and his lymph nodes hadn't grown any more.....I was having some kid watching issues, plus we have an almost 3 year old with a Birthday party on Saturday. So it would have been nice to know yesterday how the test turned out, so I could find someone to watch the girls, without really short notice!

      If only everything in life worked the way we wanted it to, right?

      Good thing my family is so flexible!

      By the way, his blood tests have been normal since his I/O, everything that is found is found via CT or PET.

      And I will let you all know how it turns out, when I know!

      Becki

      Husband Right I/O 09/06
      -70% Embryonal Carcinoma
      -20% Teratoma
      -10% Yolk Sac Tumor
      11/06- lymph nodes 1.8x1.4 and 1.9x1.4
      12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3
      1/07-Start 3xBEP
      4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0
      6/07-lymph nodes 1.2x1.0 and 1.9x.9
      8/07-lymph nodes 1.1x1.0 and 2.0x1.2
      10/07-lymph nodes 2.0x1.5 and 2.7x1.8
      11/07- PostChemo LRPLND-found burnt out teratoma
      11/09-Enlarging lymph node 1.2 cm near renal veins

      Comment


      • #4
        I believe that my son has some "chemo brain" also. It is so hard to tell he is 22 and knows more than his mother! He does do things like ask my over and over what is for dinner. But if you ask him he is fine and I it is all in my mind!

        Pam
        Live, Love, Laugh
        Son Les diagnosed 5/7/07-Right I/0 5/9/07-Stage 3C Non-seminoma Mixed Cell Germ Tumor-Tumors in liver, lungs, lymph nodes, brain-4XBED Finished 7/31/07 HCG 9 tumors smaller, brain lesion gone-9/30/07 HCG 999-TIPx4 started 10/2/07, IU 11/29 Told he had Choriocarcinoma Syndrome HDC and Stem Cell Transplant to begin 1/3/08 Finished Transplant 3/1/08 HDC and Stem Cell Transplant Failure 3/20. 4/17 RPLND & Liver resection, Molecular profiling of tumor, 6/2 Hospice Services- Passed Away 12/12/08

        Comment


        • #5
          Becki,
          From what little I have read, the memory loss is usually the short term memory and usually resolves with time. Worth mentioning to the doc if you think it may be more than that. Chemo brain is very real.

          Pam,
          Your son may not have chemo brain at all...my husband never had chemo and asks me that same question repeatedly as well. I think they do that until they get an answer they like
          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

          Comment


          • #6
            I totally had chemo brain

            I'd get up tp do something and as soon as I stood, I would have no Earthly clue what the heck I was doing even standing up. The loss was extreme enought that I didn't remember that I got up to do something at all..just kind of stood there and wondered what ever would have possessed me to get vertical.

            Thank goodness the "normal brain" returned fter chemo.

            And I'd ask about dinner 3 or 4 times and then repeat myself.

            And I'd ask about dinner 3 or 4 times and then repeat myself

            And I'd ask about dinner 3 or 4 times and then repeat myself
            Stage III Non-Seminoma- 7/11/06
            Right I/O 7/12/06
            Completed 4x BEP 11/06
            Bi-Lateral RPLND (Dr. Shenifeld)- 11/27/06
            Surveillance since then

            When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.
            Lance Armstrong.

            Comment


            • #7
              Originally posted by boyce
              I'd get up tp do something and as soon as I stood, I would have no Earthly clue what the heck I was doing even standing up. The loss was extreme enought that I didn't remember that I got up to do something at all..just kind of stood there and wondered what ever would have possessed me to get vertical.

              Thank goodness the "normal brain" returned fter chemo.

              And I'd ask about dinner 3 or 4 times and then repeat myself.

              And I'd ask about dinner 3 or 4 times and then repeat myself

              And I'd ask about dinner 3 or 4 times and then repeat myself
              Boyce,
              Was it just short term memory or long term as well? Forgetting things you're really familiar with or the fleeting thought that passes to fast to even register? Becki's examples are well known things for her hubby to have remembered...is that chemo brain too?
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

              Comment


              • #8
                I really don't know. I did not seem to lose much long term memory, but my memory is pretty bad to begin with.

                My guess would be that it affects different people in different ways.
                Stage III Non-Seminoma- 7/11/06
                Right I/O 7/12/06
                Completed 4x BEP 11/06
                Bi-Lateral RPLND (Dr. Shenifeld)- 11/27/06
                Surveillance since then

                When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.
                Lance Armstrong.

                Comment


                • #9
                  Dave only had 2 rounds of bep and I'm sure he doesn't notice but I do, he definitely has a small amount of memory loss, every now and then he mentions it and just says it's his age, but it only came on this year.

                  It doesn't sound as bad as your husband but it's just there and it's always the things that I need him to remember!

                  I got quite irritated by it at the start, then I didn't want to mention it in case it stressed him out so just went with it. I also swear it affected his hearing as well, he constantly nags me about mumbling and I'll repeat things clearly and he still doesn't hear, again it gets me because he says it's me but just another remnant, when I'm at my rational time I'll just say well if that's all he lost to be around then who cares, but at times it gets to me but we're only human, Jo xx

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