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Originally posted by Karen
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Everything that will cross without causing any bodily injury is crossed.I Love My Pack!
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Domenic, glad to hear the good news...but you described exactly how I am......if I even hear a slight change in the nurse's voice when she calls me...I think she is about to tell me bad news.....I remember when Chris was sick...I would try to read all the looks the Drs. or nurses would give us...I went totally crazy, when usually it was never anything....glad to know others feel like me.......Mary EllenComment
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Whew! Great news...funny how they just have to throw a little drama in there for you..Originally posted by drom
But now the wait is over and the calm feelings can start settling in 
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Glad to hear the great news about Alex. Anxiously awating the same for Boyce, Ray and Joe.Fish
TC1
Right I/O 4/22/1988
RPLND 6/20/1988
TC2
Left I/O 9/17/2003
Surveillance
Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.
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Hello family.
Boyce has his appt today and everything went pretty well. His AFP is 3.6 and his HCG is undetectable.
They ran about 8 containers of blood work to test his clotting and his testosterone levels. He also said that the chemo slows down your metabolism and so he is going to have to cut back on calories and fat. Which I assure you not hurt me either. I will be glad to get the blood work back and also he has a CT scan set up. They gave him a bottle of the orange goo and he almost retched at the sight of it. 
They told him his risk of reoccurrence has moved from 1 out of 10 to 1 out of 100 now that he has hit the one year mark. He said he has a 35% chance of a different kind of cancer as a result of the chemo. I guess only time will tell on that. Overall I feel better…I will feel excellent when the rest of the blood work and CT scans are back.
love
mCo-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Great News. Keep it coming!I Love My Pack!
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Is the 35% chance of a different type of cancer typical of anyone who's had BEP? Does anyone know why? Our doctor did not tell us this.Comment
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I have never heard the percentages being that high????????Comment
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Sorry...I double checked the numbers...sorry for any anxiety I caused.
He said 1 out of every 35 will get another form of cancer from the chemo...not 35%. I hope this helps and I really hope I did not worry anyone
I am not sure why but he rattled off a few different kinds of cancer that they will continue to watch for. But I am not sure why the risk...I will research it and see if I can find out. Our doctor did say that Chemotherapy treatments also happen to be carcinogenic.
But 1 out of every 35 is a lot better than 35% !!! Sorry againCo-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Hey Margaret,
This is great! I'm glad to read the news about Boyce. Congratulations to him on having reached the one-year mark and to you for being a gifted and kind caregiver!
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
11.22.06 -Dx the day before Thanksgiving
12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.
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That is great - congratulations! I am delighted for you.Manoj
09.29.07 - visit to ER with severe pain
10.08.07 - Dx with TC
10.10.07 - Rt I/O. Dx - 90% EC, 10 % yolk sac tumor, less than 1% immature teratoma & choriocarcinoma
11.21.07 - (day before Thanksgiving) NS RPLND @ MSKCC
11.28.07 - Return back home, recieve lab report. 86 lymph nodes removed - all clear. Begin Surveillance
04.10.08 - 2 cm nodule detected in lungs
04.28.08 - Starting 4XEP
07.03.08 - 4XEP complete
end-Sept - CT Scan scheduledComment
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Margaret - thanks for the clarification - when it comes to my son - I tend to panic.....all the way home from work I was trying to remember if I had read the percentages to be that high....never a break from being a mom...Mary EllenComment
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And Also - congrats on everything else....Mary EllenComment
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I felt your panic and that is why I called to check my numbers ...sorryOriginally posted by Chris'Mom
Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
Current DVT
Current testosterone replacement therapy, Testim.
"You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forumComment
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Whew! Thank you for checking it out! My stomach dropped when I read that, then I wondered how we could have gone this long without having heard that before....Comment
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