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  • Just diagnosed - feeling positive!!

    Just thought I'd share my experiences and thoughts to date... i'm 26 and live in Bedford , U.K.

    Mid December 2005 I was in the bath when i noticed that my right testicle looked a little larger than the left, i had a feel and noticed it was also hard, but not painful though. i asked for a second opinion from the Wife and she agreed it certainly didn't feel 'normal'. the next day i phoned the docs for an appointment and managed to get one an hour later which was good... the doc had a good feel and told me it was certainly swollen and there was also an epidydimal cyst at the back, which i didn't feel at first but now he mentioned it I could just about feel it!! He wrote me out a Medical Imaging Request form for an ultrasound which i was to take to the hospital and organise an appointment with.

    I rang up the hospital and got an answer machine message telling me it was a walk in clinic and to come in anytime between 9 and 5. so the next day i went with my wife only to be told that a doctor would look at the form, decide how urgent it was, and get back to me with an appointment time. Some 'walk-in' clinic!!! After two weeks I still hadn't heard anything so I popped into the hospital to ask, and was told I was classified as non-urgent and it could be anything up to twelve weeks.... Oh well, I'd read up on epidydimal cysts and as they didn't seem too serious, wasn't too worried.

    Fast forward 7 WEEKS... I went for my ultrasound last Monday, was asked if it had changed at all but wasn't sure as I had been feeling it pretty much everyday for weeks so couldn't really remember what it was like to begin with!
    the ultrasound was performed, not too uncomfortable and was told by the radiologist that he had cause for great concern and was faxing over the results to my G.P. (to remove any postal delay) and i was to contact him and make an appoinment with the next day!

    I was immediately reffered to the consultant urologist at the hospital by my G.P. and saw him on thursday afternoon. It turns out I have two masses in my tesicle one 5cmx5cmx3cm and one smaller 2x2x1.5. My left one appears normal.

    Ask me about Epidydimal cysts and I'll tell you everything there is to know, ask me about testicular cancer and i'll look at you blankly. The hospital and all the staff were amazing! It seemed like the entire hospital was on standstill waiting for me to go round all the departments and get seen to. I think that I was in denial for a few hours, as I had all these people talking to me about how the cancer would do this to me, the chemo/radio would do that to me, I had to keep reminding myself they were talking to me. I'm not ill, well I certainly don't feel it!

    I had my blood taken, an appointment for a CT scan made, a chest X-ray and some blood taken and am booked in for a radical orchiectomy next thursday. Once they find out exactly what type of tumours I've got I'll be referred to Addenbrookes in cambridge for the necessary treatments (chemo/radio).

    That morning I felt fine, now i'm being told that from next thurday I may as well write off the next 3-6 months of my life and look back on 2006 as a 'blip' in my life.

    I'm trying to be positive at the moment, It could be worse! It could be inoperable. The doctors are confident I'll be cured and so am I. the wife and I were first time buyers of an overpriced semi last year and it looks like my mortgage will be paid in full by the insurance so at least i won't have any financial worries. My only concerns are how this affects my wife, family and friends, i'm going through this whether i like it or not, they have to cope with me. Also fertility! The wife and I were trying for a baby, so that's on hold now, maybe indefinately who knows.

    thanks for reading,

    Mike.

  • #2
    Welcome, Mike. You're going to come through just fine. The blood test, CT scan, and chest x-ray results will give you a lot more information to go on about what comes next. Read up here and at the Testicular Cancer Resource Center. Knowledge is power.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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    • #3
      Originally posted by Mikey_Mike
      Also fertility! The wife and I were trying for a baby, so that's on hold now, maybe indefinately who knows.
      Not indefinitely, but at least for a few months is probably a good idea. Depending on what you end up having for treatment, it may or may not be necessary to consider sperm banking.
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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      • #4
        Well I had the testicle removed two days ago and am amazed at how 'minor' it all is... I'm a little sore have virtually no bruising, and due to the swelling I still look like I actually have two down there... i did have a peek straight after the surgery before the real swelling started so I have a good idea of how lonesome it'll look when the swelling's gone!

        I say 'little sore', I'm going to stop taking the painkillers I was given tommorow and see how I get on. the side effects are awful!

        The results from my bloods are back, and my AFP and B-HCG are within normal limits so the doc says It's more than likely a Seminoma, which he says is good because it's particularly sensitive to Radiation!

        Just waiting for an appontment with the CT scanner and Addenbrookes now!

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        • #5
          I wouldn't just write off the next 3-6 months just yet. I certainly cant afford to do that in my situation as I've got my finals in May and I really dont want to repeat the year so be positive about it.

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          • #6
            Sounds like relatively good news so far, Mikey Mike. Let us know when you get the pathology report and any other test results.
            Scott, [email protected]
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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            • #7
              Seeing your levels are normal you may even be a good canidate for surviellance!!!! Maybe the I/O alone cured you!!! How nice would that be??? Best of Luck!!! DON
              Moffitt Cancer Institute
              CANCER SUCKS
              Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

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              • #8
                Went to see Oncology consultant yesterday at Addenbrookes (Cambridge, U.K.). Was very anxious but everything went ok!

                The path report is back and the tumours are both pure Seminomas. CT scan appears normal, so no spread as yet!

                I was given three options,

                1. Surveillance alone.
                2. Radiotherapy
                3. Chemotherapy (Single dose of Carboplatin)

                Doing nothing at this point didn't seem viable to me. If it does come back, I'd at least like to say that I tried everything at the start to ensure it didn't. I've chosen the Chemo, the long term side effects of radiotherapy seem a bit too scary for my liking and although the Chemo will affect my fertility (the radio wouldn't), I went to the Fertility Clininc this morning to bank my first lot of semen.

                that experience was actually worse than seeing the Consultant Oncologist, it felt a lot more personal and also the wife was with me so it's a part of this whole experience that's going to have the most impact on her! Seemed really strange to think that if all else fails our children (we currently have none) will be concieved there!

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                • #9
                  been there and done that!!! not that big of an ordeal for me at least. my poor wife substained all the daily punishments of IVF. not really hard stuff but just alot of details. let me know if you need any info, i'll be glad to help! good luck and god bless, brian!
                  diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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                  • #10
                    I'm not sure how this works.

                    but here's goes anyway.

                    My ex husband who is also my best friend was just diagnosed this past Monday. He had been experiencing some pain in his right teste for about a month and had gone for a complete check up. All came back clear, blood tests and all. The doctor gave him some pain killers which cleared up the pain. Sunday night, the pain was back and this time stronger than ever. He noticed that the small lump he had felt previously had grown a little and felt harder. So the following day he was sent for more tests. By means of an ultrasound He was then told by a urologist that he had a malignant tumour and it was hard to tell what stage or what type it is. He's scheduled for surgery on April 4th. I can't stop crying. He's in denial. He's only 28.
                    I don't understand how they could tell just by an ultrasound that it's malignant.
                    I don't know...I'm just hoping for a miracle. Please guys, help shed some light on this...I'm so afraid

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                    • #11
                      Sonny,
                      Glad you found this site, it's a great support system and resource. Another excellent resource for tc information is http://tcrc.acor.org.

                      The echo pattern on an ultrasound can differentiate between a solid mass and a fluid filled mass. If a solid mass is seen then cancer is presumed since most solid testicular masses turn out to be cancer. The testicle must be removed and pathology done to determine the type. A CAT scan and chest-x-ray and will determine the stage. There are also blood markers that go into the diagnosis, and are tracked during treatment and follow up. Any type of cancer is frightening, but this one has the best cure rate, especially if caught early and even if caught late.

                      Arm yourself with as much information as you can to help him come to grips with this and to realize there's a LOT of hope. Let us know any other results he gets! Thoughts and prayers are with you both!
                      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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                      • #12
                        Do as karen suggests and visit the tcrc web site. Pay particular attention to the section Question to Ask. If you doctor is unwilling to, or unable to answer those questions it might be worth your time to find another doctor.
                        Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                        Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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                        • #13
                          sonny, first and foremost crying is okay. i've done alot in the last year or so! i know its alot on you and your husbands plate at this moment and it will seem like a whirlwind for awhile. BUT, things will get better. please visit the website they listed for you and like they said try and know as much as possible. right things down on a pad and take with you so you can ask questions and write down answers. the surgery for your husband is called an orchiectomy. very similar to a hernia of the abdomen region. small 3-4 inch incision and its over in about 45 minutes. recovery will take a few days because of soreness but he will be back doing normal things in a couple two or three weeks. thats the first step and then diagnoses comes and you will know more about whats ahead. take a deep breath.......try to relax ...and be strong. let us know what else you find out! my thoughts and prayers are with you and your husband. brian
                          diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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