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hogdkins lymphoma

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  • hogdkins lymphoma

    Good friend of mine just found out he has stageIII Hodgkins Disease. I tried for hours to find out who are the experts on this type of Cancer as it is just as rare as TC but couldn't find anything. If anyone might now who the experts are for this type of Cancer and could let me know it would be greatly appreciated. He is not the type to do the research on his own so I am just trying to help him out. Thanks!!!
    dx May 3, 2006, left I/O May 5, seminoma stage I, RTx16 (24Gy) completed June 26, 2006, all clear.

  • #2

    The only thing i know about hodgkin lymphoma is that it is curable almost like TC. I had a young boy doing chemo with me and he is cured now.

    Stage 1 seminoma in august 2001
    with invaded spermatic chord and treated with RT
    Relapse november 2005, 4 BEP and now back to surveillance


    • #3
      Sloan Kettering has 39 doctors who work witr Hodgkins Disease (See this link Have your friends give them a call and they should be able to give you some local help>
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


      • #4
        You can have your freind try calling Duke University Medical or Wake Forest university Medical Center which both deal with all kinds of cancers. Hoskins is one of wake forests specialties... Both medical institutes are part of the few that have been selected as National Cancer Institutes.. He will be in good hands at either one.....
        Moffitt Cancer Institute
        Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--


        • #5
          Thanks Don and Dadmo I really appreciate it. Wake Forest would be perfect if he would have to travel up becuase it is only about 75 miles from him. What are the odds that i would be diagnosed with TC on 5/3 and my best friend gets diagnosed with Hodgkins 3 weeks later; both very rare..Crazy. Thanks again guys.
          dx May 3, 2006, left I/O May 5, seminoma stage I, RTx16 (24Gy) completed June 26, 2006, all clear.


          • #6
            My thoughts are with you and your friend that you will BOTH get through this fine.
            Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.