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Welcome, Joe's Mom. It's great to see Joe has such excellent family support!
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Scott, [email protected]
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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As Scott said, odds are 99+% this is a new primary TC. In my case the first was a mixed cell type (non-seminoma); the second time it was a pure seminoma.
It sounds like you caught it very early and that's great. Make sure your doctor gets you on hormone replacement as soon as the testicle comes out.
Best wishes to you and your mom, my thoughts and prayers to you both.
JimFish
TC1
Right I/O 4/22/1988
RPLND 6/20/1988
TC2
Left I/O 9/17/2003
Surveillance
Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.
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Dear Joe And Joe's Mom,
Sorry To Hear The News And That You Are Dealing With This For A Second Time. Keeping You Both In My Daily Prayers.Jane
Mother of TC survivor.
Son, Josh 20, diagnosed Jan. 24, 2005. Left Orchiechtomy Jan.31, 2005. 4XBPE March 7th to May 28th 2005.Comment
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Welcome joe an joesmom-- --I truly feel for you Joe.. If there is an upside you probably caught it early if the doctor was surprised at the finding himself... Hoping the best for you !!!!!! DonMoffitt Cancer Institute
CANCER SUCKS
Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--Comment
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Thanks again everyone for all the prayers-- your compassion is amazing. As this will be my last weekend at "full strength" I would like to share some good news with you all. My fiancee, about 75-100 of my friends/aquaintances and family will be having a party on a buddies land here in WI. It should be a blast and a very positive place for me to be this weekend. The best part is that my brother Jimmy's band, "The Grasshoppers," consisting of very talented musicians from across the country, will be playing one of their only two or three shows a year. I am super-stoked because I thought that I was going to miss it due to a procedure or some other diagnostic work. Anyways, I am really just happy to share some good news and vibes with everyone. And either my myself, my mom or my fiancee (who will be joining a forum soon) will give an update next week about the PET/CT scans and the "plan of attack." I pray and thank God for you all. Until next time--
JoeTC 1
Right I/O-- 12-5-00 (seminoma, teratoma, embryonal, yolk sak)
RPLND-- 12-29-00 (All Clear)
Surveillance
Recurrence-- 4-22-01 (3 mets in right lung-- biggest 3cm, small met on pancreas, one lymph node enlarged-- 2x normal)
Chemotherapy-- started 4-30-01, 3xBEP
Surveillance
TC 2
Left I/O-- 7-19-06 (seminoma)
Hormone replacement therapy-- Androgel
Surveillance
Jeremiah 29:11
Listen to Bob Marley
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Joe,
Sounds like a great weekend...enjoy every second of it! Good luck with the tests.Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.
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I hope your weekend is going great!Scott, [email protected]
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!Comment
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Hello Everyone ... Joe's Mom here ... Just wanted to update you on Joe's (Ras Joe's) appointment today. The last few days have been nothing short of "hell". There truly is great pain in the waiting. Joe was about to celebrate his 5 year anniversary related to his first diagnosis with testicular cancer. As you know, he recently discovered a lump in his left (remaining) testicle. He has been diligent about all of his follow-ups. After his discovery, he called the urologist who performed his surgeries, and who set up an appointment for the next day and scheduled labs, CT, PET scans, and semen analysis.
At the appointment today which seemed to take forever to get to and in reality, was only a few days wait, Doctor Gee (Urologist) came into the exam room and said he actually had some good news. We were told that Joe had normal appearing, viable, sperm, (good motility), and he suggested setting up sperm banking. The CAT scan was normal. PET scan was normal. From what I understand, the PET shows metabolic activity in tumors and is fairly accurate in diagnosis of malignancy vs. benign tumors. Doctor Gee said he didn't see any indication of this type of activity on Joe's PET. It was completely normal. Dr. explained it by saying its possible that it's because the tumors are just so immature (new)? What do you think??? Again, CT was normal. Tumor markers were normal - AFP, LDH, although Beta Hcg was 5. Doctor was o.k. with the lab value, and still felt it was normal. I questioned whether or not the tumors (3 very small) could possibly be benign. Doc said it's a possibility (<1%), although unlikely given the number of tumors and Joe's history. More likely if it were a solitary lesion. At any rate, Joe will do some sperm banking and then have an orchiectomy sometime this week. This has been a rough week and I thank you all for your kind words and wisdom. Please continue to keep Joe in your thoughts and prayers.
Sincerely,
(Joe's Mom) Nancy[Co-Survivor - My Son Joe: (RasJoe)
TC 1:Right I/O December 5, 2000 (Stage I -seminoma, teratoma, embryonal, yolk sac) RPLND-- 12-29-2000 (Nodes Clear) Surveillance- Recurrence-- 4-22-2001 (Stage III) Chemotherapy-- 4-30-2001, BEP x 3 cycles(successful) - Surveillance
TC 2: Left I/O-- 7-19-2006 (100 % seminoma Stage I) - Hormone replacement - Surveillance
Joe's Mom - Nancy
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Our thoughts & prayers are with you!Comment
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Well-- It looks as if my mom has told you before I could get to the computer (thanks- ma) about the appt today. In any case my spirits are high and I am anxious to get the testicle removed-- I want to get the cancer outta my body and as quickly as possible. My fiancee is thrilled that I have some "good" sperm to save, as am I. Wednesday is my operation-- my surgeon is my urologist that did my first one and my RPLND (he saved my ejaculation with the nerve sparing procedure), needless to say I am very happy and feel in good hands with my doc, Dr. Kevin Gee, he comes highly recommended by myself, great doc and great vibes. Updates to come-- God Bless!
Joe
TC 1
Right I/O-- 12-5-00 (seminoma, teratoma, embryonal, yolk sak)
RPLND-- 12-29-00 (All Clear)
Surveillance
Recurrence-- 4-22-01 (3 mets in right lung-- biggest 3cm, small met on pancreas, one lymph node enlarged-- 2x normal)
Chemotherapy-- started 4-30-01, 3xBEP
Surveillance
TC 2
Left I/O-- 7-19-06 (seminoma)
Hormone replacement therapy-- Androgel
Surveillance
Jeremiah 29:11
Listen to Bob MarleyComment
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Good luck Joe! Glad all scans are clear and you can ice some swimmers for the future!
Joe's Mom,
Waiting sucks, plain and simple. Thanks for the post. Us moms always have to put in our two cents!!!!Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.Comment
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Please keep Joe in your prayers today. He is scheduled for surgery (orchiectomy) at 11:30.
Joe's Mom - Nancy[Co-Survivor - My Son Joe: (RasJoe)
TC 1:Right I/O December 5, 2000 (Stage I -seminoma, teratoma, embryonal, yolk sac) RPLND-- 12-29-2000 (Nodes Clear) Surveillance- Recurrence-- 4-22-2001 (Stage III) Chemotherapy-- 4-30-2001, BEP x 3 cycles(successful) - Surveillance
TC 2: Left I/O-- 7-19-2006 (100 % seminoma Stage I) - Hormone replacement - Surveillance
Joe's Mom - Nancy
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Nancy,
Will do!Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.Comment
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Hope recovery is going well Joe....
Moffitt Cancer Institute
CANCER SUCKS
Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--Comment
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Hi everybody! Happy to report that I am doing GREAT post-op, I am home and walking w/ ease. I already take narcotics for two herniated disks in my C-Spine and I am taking no more meds than I already do for my back! I was really worried because I have had major problems with the anethesthia (spelling??) in the past and have had to stay in the hospital for extra days because of it. Thanks for all they prayers!! Updates as they come. Joe
TC 1
Right I/O-- 12-5-00 (seminoma, teratoma, embryonal, yolk sak)
RPLND-- 12-29-00 (All Clear)
Surveillance
Recurrence-- 4-22-01 (3 mets in right lung-- biggest 3cm, small met on pancreas, one lymph node enlarged-- 2x normal)
Chemotherapy-- started 4-30-01, 3xBEP
Surveillance
TC 2
Left I/O-- 7-19-06 (seminoma)
Hormone replacement therapy-- Androgel
Surveillance
Jeremiah 29:11
Listen to Bob MarleyComment
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