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Surgery on Sept 8

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  • #46
    Hippie,
    The guys here will rally with you every step of the way and you'll get through this. Chemo works. Hang in there!!!!
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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    • #47
      Dadmo: doing a chest CT today at 4:45 more damn iodine based dye(grrrrrrr)
      started my 4x 20mg predisone and 1x 400mg Cimetidine lastnight and have to repeat this morning to ready me against the Iodine, Already had a chest xray and it showed clean but now the Onc wants me to have a pulimary test to help determine bep 3 or 4 cause I am a heavy smoker and there is one of the drugs in bep 3 that is tough on the lungs and if I already have some lung loss he may not want to risk bep 3 on me.. I smoke 3-5 packs a day.. Yeah I know stupid stupid, I havent had one today yet even with my coffee I am drinking. I am going to try, no I am GOING TO quite now to try and get as healthy as I can get before I start this in 1 and half weeks..

      IowaBrian: I have been already pondering what I would do if I had a choice to go on surval or have chemo to make sure and I and Wife was both leaning toward doing it to be sure all is gone so there would be way less worry with a relapse, but I can say that now cause I wasnt given the choice and cant honestly say If was faced with that choice I would still lean that way or run like hell out of Onc's office and pray like hell I was clean on the surval checkups..




      I know I can do this, with my Wife and Daughter behind me and all you guys out there I know I can but as everyone knows the scared silly part isnt going away anytime soon, I think once it starts and I know I have to say strong and fight through that will overide a lot of the fear I have now. I am going to read all I can on diet and what I should start doing know to prepare my body the best I can for this in the short time I have to get prepared.

      Hippie
      Last edited by Hippie; 09-13-06, 06:07 AM.
      Hippie
      __________________
      Right I/O 9/8/06; TC Confirmed 9/11/06, Stage IIb 75% Embryonal Carcinoma - 25% Yolk Sac - Vascular Invasion Prominent; Lymph node(s) greater then 3cm; Starting 4xEP 9/25/06

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      • #48
        Hippie:

        No, I didnt' have chemo, but Brian's right, I've seen a number of posts with some very good tips on what and what not to do. Hopefully some of the folks will re-post or post the links. I thought dadmo just recently posted something, but I can't find it.

        Sorry you need to go through this, but it'll all work out in the end and you'll be cured. Great idea on giving up the smoking.

        Best wishes.
        Fish
        TC1
        Right I/O 4/22/1988
        RPLND 6/20/1988
        TC2
        Left I/O 9/17/2003
        Surveillance

        Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

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        • #49
          Hippie:
          Here's a site you might find interesting. It's called chemocare and it's a Scott Hamilton site, check it out here .
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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          • #50
            Question: is this sound normal my Onc which I am having to transfer to another one he recommends due to my insurance policy, but this Onc says either BEP weather 3 or 4, it would be given for 5-hours per day Monday thru Friday the week of treatment then 2 weeks off then 3 week they start the same again ??? is that normal with this type of chemo treatment ??


            Hippie
            Hippie
            __________________
            Right I/O 9/8/06; TC Confirmed 9/11/06, Stage IIb 75% Embryonal Carcinoma - 25% Yolk Sac - Vascular Invasion Prominent; Lymph node(s) greater then 3cm; Starting 4xEP 9/25/06

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            • #51
              Well I have had a lot more tests and so far:

              My Bone scan came back clean.

              My pulmonary tests, I was 7% to 21% above normal on all tests (so hopefully Onc will do the 3xBEP now that it looks like my lungs can handle it so I will not have to indore that 4th cycle

              I should have my Chest CT's results today and I am going for my brain MRI today.

              I didnt know this before now but my LDH was almost 400 pre surgury and I talked to onc nurse Deb yesterday and my blood work after surgury my LDH is down to 216.

              Will be seeing my new Onc tomarrow to find out when chemo will defiantly start


              Just an update
              Hippie
              Hippie
              __________________
              Right I/O 9/8/06; TC Confirmed 9/11/06, Stage IIb 75% Embryonal Carcinoma - 25% Yolk Sac - Vascular Invasion Prominent; Lymph node(s) greater then 3cm; Starting 4xEP 9/25/06

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              • #52
                Another quick update,

                Ct chest scan came back clean, no mastasis to the lungs..

                Am I dreaming?? that with my blood markers coming back into check and all tests are coming back clean that there is a possibility that my lymph nodes have went down since surgery ??? my path report does say there was some hemoraging so is it possible that my lymph nodes was just inflammed from all the fluid ?? a question I will be asking my Onc tomarrow..

                Hippie
                Hippie
                __________________
                Right I/O 9/8/06; TC Confirmed 9/11/06, Stage IIb 75% Embryonal Carcinoma - 25% Yolk Sac - Vascular Invasion Prominent; Lymph node(s) greater then 3cm; Starting 4xEP 9/25/06

                Comment


                • #53
                  Great news you have some good questions for the ONC when you see them make sure to write down all of the questions so you don't forget any.
                  Brian
                  5-1-2006 Right IO - Stage 1 Nonseminoma Embryonal and Yolk sac - Surveillance Baby on the way Born 7-20-07

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