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  • #16
    Yes, you are in higher risk, but I am a bit concerned your doc is diagnosing a seminoma through the use of an ultrasound. Do you know whether the tumors were solid or liquid? Try to get the ultrasound report. In the mean time, there is a TC expert facility in Chicago. I highly recommend seeing the doctor below...


    Chicago, Illinois

    Dr. Chris Coogan - Urology
    Rush Presbyterian St. Lukes Medical Center
    1725 West Harrison, Suite 758
    Chicago, IL 60612
    Phone: (312) 666-2410
    _____________________________________________

    Left I/O 5/7/05, Stage 1(pT1)
    No VI or LI, Normal Markers
    70% Embryonal, 30% Seminoma
    Surveillance
    1st child born on 8/08

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    • #17
      Actually he didn’t diagnose me with anything yet.
      He told me that even if my blood test is fine I still need surgery to do biopsy.
      He explained me that low markers are usually means seminoma.
      Let me get copy of ultrasound so you guys can take a look at it.

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      • #18
        Originally posted by Alex_G
        I was diagnosed with TC. Based on ultrasound and blood work my doctor said that it’s seminoma
        Sorry, I was basing my prior comments off of your first post. I have always had normal markers with a nonseminoma primary tumor. Is it possible for you to see that doctor in Chicago? Keep in mind TC is very rare in relation to other cancers. This means very few doctors see many cases. If it's possible, I highly recommend you try your best to see the doc I mentioned previously.
        _____________________________________________

        Left I/O 5/7/05, Stage 1(pT1)
        No VI or LI, Normal Markers
        70% Embryonal, 30% Seminoma
        Surveillance
        1st child born on 8/08

        Comment


        • #19
          I will call this doctor right now.

          Here is ultrasoundresult

          Findings: The left testicle is enlarged and is measuring 4X7X3 cm
          The testicle is very heterogeneouse and there are multiple mixed echogenic nodules. Findings are worrisome for testicular neoplasm.

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          • #20
            i had three opinions done before i made the decision myself to go ahead with surgery. so don't hesitate to get it right!
            if problems are occuring with both testicals, i would highly recommend a sperm count BEFORE surgery and bank sperm. if you only bank a little i believe you will be satisfied in the long run. it will not cost that much to do it. but because of the atrophy to the other testical you MAY have problems down the road with sprem production. so please take this seriuosly and check into it. you do have time to get the sperm banked, even if it requires a change in surgery date to allow you a couple of days to bank quality amounts. i hope this isn't the case!!!! but speaking on my experience i wish i would have waited a few more days to allow me more chances to bank more!
            i hope it all goes well.
            my thoughts and prayers
            brian
            diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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            • #21
              Thanks for a good advice. Actually I got same advice from my doctor. I’m already in process with sperm bank.
              I’m actually curious. I just contacted the doctor advised by KMan99 and fax him blood result and ultrasound result. Is there any different approach? I was under impression that if any masses found next step is surgery and biopsy.
              Is this correct?

              Alex

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              • #22
                i would assume if tumors are present the next step, yes, would be surgery! from there biopsy and classification and staging.
                diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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                • #23
                  Yes the next step should be to remove the testicle so the doctors can see exactly what's wrong and develop a plan to cure you.
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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                  • #24
                    Alex-

                    As the others have said, if there are solid tumors, the normal and routine process is to remove the testicle. The website I posted previously will give you a great idea of what to expect from the surgery.
                    _____________________________________________

                    Left I/O 5/7/05, Stage 1(pT1)
                    No VI or LI, Normal Markers
                    70% Embryonal, 30% Seminoma
                    Surveillance
                    1st child born on 8/08

                    Comment


                    • #25
                      Thanks guys for your help!
                      I will keep you posted. I just wanted to understand the process.
                      I hope everything will be fine.

                      Comment


                      • #26
                        I was in the same boat as you acouple days ago, ultrasound showed up 2 lesions(lumps) 1 heterogenous(meaning it contains 2 or more types of mass) another normal, both showed vascularity(blood flowing to them meaning there not cysts) they measured at something like 2x1.8x2 and 1x0.8x0.9, The effected testical was smaller then my right, cant remember the measurements but it was significant but not extreme. The mass was noted as seminoma. I had the lump there for about 3 years, with slight occasional pain for 1 year wich worsened 1 week before diagnosis, when checking it out I agitated it more a day before the ultrasound. The ultrasound report also had "possible lymphoma". Then 2 urologists suspected non-seminoma, a physical examination did not find any swollen lymph nodes, although I have them swollen all over my body as of past few weeks, they schedualed a I/O within 6 days. Next day I went sperm bank then got my blood test results, they came back all normal.
                        Day after The CT scan came back clean, they scanned abdomen, chest and "helun"(head?). I am going to schedual a 2nd ultrasound and push the surgery date forward a bit only because it spread and that there is conflicting reports on what sort of tumor it is, this will also give me the opotunity to bank more sperm.
                        I am going to look up risks of frozen biopsy and put it into consideration.
                        If I do go through with I/O the doctor is going to put a prosthetic one in after surgery using local anesthesia, because he says that when doing it with the I/O it doesnt sit right.
                        Last edited by Michael112; 09-21-06, 02:20 PM.
                        Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

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                        • #27
                          Originally posted by Alex_G
                          I thought they should do CT scan before surgery.
                          It's typical to have the CT scan after the orchiectomy.
                          Scott
                          right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

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