For many the toughest time is the start of round three. At that point it seems like it will never end. Round four may be physically tougher but the end of treatment is close which make it easier to bear.
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Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.
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Originally posted by dadmoFor many the toughest time is the start of round three. At that point it seems like it will never end. Round four may be physically tougher but the end of treatment is close which make it easier to bear.
Cheers TMy experience .
Metastasis tumor 18cm x 8cm
Orchiectomy 2006/06/12
4xBEP 2006/06/26-2006/08/28
RPLND 2006/10/12
Life is too short , Take charge today , Be strong & Live strong .
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Trisha, hang in there and take one day a time...Round three for my son Chris was the hardest....mentally....wanted to give up...but the nurses always talked him thru it....round four we knew we were seeing the light at the end of the tunnel......he is doing great almost two years out of chemo....he did need RPLND with Dr. Sheinfeld at Sloan, had teratoma left over after chemo...but he though chemo was worse than surgery....please know I am thinking of all of you....Mary Ellen
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Trisha,
Congratulations on the end of BEP round 1. For me, round 3 was tough and round 4 was absolutely brutal, especially the first few days after the last treatment. Sounds rough, but it's better to be honest about these things.
Did your husband have a pre-chemo pulmonary function test? Bleomycin can negatively affect lung function and it's probably good to have him conduct the test at this early stage. For me, I lost about 40-50% of my lung function after chemo due to bleomycin irritation, although my lungs rapidly returned to normal (thank goodness).
Hope all is well, my prayers coming your way.Left I/O 6/24/05
100% Embryonal Cell Carcinoma, Stage III
4xBEP August - October 2005
Surveillance since Nov. 2005
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Yes he did have a pre-chemo pulmonary function test I am happy to say. He started a little cough the other day and was worried it might be related but he stopped : )
Thanks everyone for your support and comments!Last edited by Trisha; 12-02-06, 09:26 AM.Husband:
11/06 Left I/O
11/06 - 2/07 2xBEP, 1VIP, 1EP
2/08 Recurrence 2xTIP (second TIP reduced dose)
1xHDC - Cardiotoxicity (no second BMT possilbe)
11/08 - Thoracic Surgery to remove tumor (dead cancer)
1/09 Scans Clear - AFP Rising
4/09 AFP 1600
4/09 Thoracic Surgery (again) found yolk sac & teratoma
7/09 AFP at 3! & CT Clear
2/10 Tumors in chest (again) likely teratoma
11/10 Starting Trial Drug!... actually did not start trial. tumors shrinking
10/12 AFP 29. Scans clear.
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