Wot next?

[Scott]

Yvonne, I imagine you've already read the TCRC's EGC page.

[dadmo]

The chemo may very well be exactly the same as that given to everyother tc patient. The problem with extragonadal is that it doesn't follow the standard progression and that can make it a bit more difficult to treat.

[wannalive]

merhaba

I think you are turkish as well ?
i wish tc was not the cause but nice to meet you

Please update us about your situation of RPLND.
and do you know the experience in UK for RPLND after chemo for seminoma?
Could you send me the contact information of your center so that I can contact them directly

I'm looking for an experienced surgent in EU, if there is one there I may come there. There is one center in Paris but no info about experience yet.

best wishes

[ivannabanana]

Thanx Dadmo and wannalive for quick replies.... Im just so scared....One thyng worries me in somethyng you say Dadmo about my husband getting different treatment for Extragonadal tumour, as far as i can see he is being treated just same as germcell tumour... But i havent seen any one on any forum with extra gonadal to compare so i dont know if he should be getting different treatment... Our Doctors at Beatson are very good , we feel confident they know how to treat my husband... ANyone know anyone with extra gonadal tumour or have read stories of good result? i have only read some which were not so good results.... Any info appreciated as always.... And Wannalive i see you are turkish,Memdum oldum :-) .... yvonne

[wannalive]

Hello

I have also 100% seminoma however my lymph node didn't shrink (6 cm) and there are calcifications in CT, therefore Dr.Einhorn assume there is teratoma
and should be removed after chemo

as far as I understand it is not possible to differentiate teratoma on CT
but anyway they will do PET together with CT for me and decide accordingly
howeve I decide to go for expert opinion after scan
because I had to explain them that PET has became standard for seminoma after chemo, therefore don't believe they can make a good decision here

In case of RPLND after chemo of seminoma a good! urologic oncologist is recommended for surgery, therefore find someone who has made this before
I cannot come to US, my insurance doesn't pay but you may go to Indiana Dr. Richard Foster or Sloan Kettering Dr.Joel Sheinfeid as they are the best acc. to people here.

good luck

[dadmo]

Yvonne:
Lots of people on the forum have had stuff left behind after chemo. That's the reason so many have had to get their lymph nodes removed, the doctors can't really be sure if it's dead cancer cells, live cancer or teratoma. The standard practice is to give two additional rounds of chemo as a clean up if they find live cancer. In your husbands case I'm not sure how they will proceed if they discover live cancer, as you know extragonadal tc isn't treated the same as most forms of the disease.

[ivannabanana]

Hi i wondered if there is a possibility that after your chemotherapy and there is residue tumour left over that thys can be dead cells....or is thys styll cancer? and can it spread? Has anyone ever had more chemo after having 4xBEP? wot type of chemo is there to have after 4 xBEP?is it possible to get radiotherapy on 3 seperate tumours? i always thought radiotherapy was only used ifthe cancer was in one area and not spread.... Im getting all nervous and having sleepless nights again... We due back up at hospital 15 Dc to find out wot the docotors aregoing to do next on my husband....Any help or personal experiances appreciated.... Thanx again everyone, Yvonne