Announcement

Collapse
No announcement yet.

Justin's update

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Justin's update

    Hi all- I don't seem to post very often but wanted to say hi and ask how long it usually takes to get the CT results-Justin just had his first one (the 18th)since his RPLND in Nov. His blood work has been good-AFP was 2.0 down from 11 before his surgery (originally 1709) Also, his protocol is blood work every month & CT every 2 months for first year is this the normal? Also, one reason I don't post much is kinda busy...he is getting married the 4th!!! Take care & God Bless, Lanette
    Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

  • #2
    By the way I hope I posted in the right place-since Justin is now on follow-up and pretty much "done with treatment"? Does that make him a "survivor"?
    Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

    Comment


    • #3
      He's been a survivor since the day he was diagnosed, and as the parent, you're a survivor, too! This is a fine place to post.

      CT scan results are sometimes available nearly immediately. Since it has been five days, they should certainly be available.
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

      Comment


      • #4
        CT scan news

        Praise the Lord!! Justin's scan was clear!!! Wedding in 9 days!
        Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

        Comment


        • #5
          Lanette:
          Congratulations, now you can really celebrate at the wedding.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

          Comment


          • #6
            Congratulations!!!!!!!!!!!!!!!
            Carpla
            Husband originally diagnosed May 1986: Right I/O, 4 rounds VIP. Rediagnosed with Stage IIB, non-seminoma, 20x12x8 abdominal mass in Sept. 2004: 4 rounds VIP, RPLND (full template) 2/17/05. Currently on surveillance and so far, so good!!!

            Comment


            • #7
              Hip, hip, HOORAY!!!
              Scott, [email protected]
              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

              Comment


              • #8
                I am so happy for Justin and you.
                Right I/O- 9/12/2005

                Comment


                • #9
                  Thanks everyone for all the support. Keep prayers going for Justin as he still has the brachial plexus nerve injury in his right arm. He had planned on going back to college in January but postponed it till summer or fall depending on the healing of his arm. It really is for the best as his strength & stamina are no way near back to normal...which is expected with the 2 surgeries & 4 BEP cycles. I am glad he came to the decision to hold off on school because that way he & his fiance' can get accustomed to marriage first & with his physical therapy that all takes time. One of these days I'll see if I can post a picture. God Bless All you guys-Lanette
                  Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

                  Comment


                  • #10
                    Ms. Lanette: Congrats big time. It is definitely time to have a celebration and what better place than a wedding. Ya'll have a good time and may God bless you and this event too! April
                    Wesley's TC
                    Non-Seminoma
                    90% Embryonal 10% Seminoma
                    Stage IIIa
                    Treatment: Left I/O 4/11/05
                    4XBEP 4/25/05
                    08/05 -Surveillance & Many Scans/X-rays

                    Comment


                    • #11
                      Glad to hear the scan was all clear....Mary ellen

                      Comment


                      • #12
                        Lanette,
                        Truly wonderful news!!!! CELEBRATE!!!! ENJOY.
                        Thoughts and prayers always for our TC Guys.
                        Jane
                        Jane
                        Mother of TC survivor.
                        Son, Josh 20, diagnosed Jan. 24, 2005. Left Orchiechtomy Jan.31, 2005. 4XBPE March 7th to May 28th 2005.

                        Comment


                        • #13
                          Thanks again everyone for all the support. Countdown to the wedding is TWO days!!!!!!! Pray for everyone to enjoy the day and not STRESS and to celebrate God's gift of uniting 2 separate individuals into 1. Thanks all-God Bless-Lanette ><>
                          Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury

                          Comment


                          • #14
                            Ms Lanette, You are definitely in my thoughts and prayers and I hope everyone can enjoy the day with minimal stress. I know you must be very excited!!! April
                            Wesley's TC
                            Non-Seminoma
                            90% Embryonal 10% Seminoma
                            Stage IIIa
                            Treatment: Left I/O 4/11/05
                            4XBEP 4/25/05
                            08/05 -Surveillance & Many Scans/X-rays

                            Comment


                            • #15
                              Originally posted by justinsmom
                              Countdown to the wedding is TWO days!!!!!!!
                              How exciting for everyone involved! I suspect there may be a few tears of joy shed.
                              Scott, [email protected]
                              right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                              Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                              Comment

                              Working...
                              X