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Hi all- I don't seem to post very often but wanted to say hi and ask how long it usually takes to get the CT results-Justin just had his first one (the 18th)since his RPLND in Nov. His blood work has been good-AFP was 2.0 down from 11 before his surgery (originally 1709) Also, his protocol is blood work every month & CT every 2 months for first year is this the normal? Also, one reason I don't post much is kinda busy...he is getting married the 4th!!! Take care & God Bless, Lanette
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Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury -
By the way I hope I posted in the right place-since Justin is now on follow-up and pretty much "done with treatment"? Does that make him a "survivor"?
Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injury -
He's been a survivor since the day he was diagnosed, and as the parent, you're a survivor, too! This is a fine place to post.
CT scan results are sometimes available nearly immediately. Since it has been five days, they should certainly be available.Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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CT scan news
Praise the Lord!! Justin's scan was clear!!! Wedding in 9 days!Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injuryComment
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Lanette:
Congratulations, now you can really celebrate at the wedding.Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.
Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.Comment
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Congratulations!!!!!!!!!!!!!!!Carpla
Husband originally diagnosed May 1986: Right I/O, 4 rounds VIP. Rediagnosed with Stage IIB, non-seminoma, 20x12x8 abdominal mass in Sept. 2004: 4 rounds VIP, RPLND (full template) 2/17/05. Currently on surveillance and so far, so good!!!Comment
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Hip, hip, HOORAY!!!Scott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
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I am so happy for Justin and you.Right I/O- 9/12/2005Comment
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Thanks everyone for all the support. Keep prayers going for Justin as he still has the brachial plexus nerve injury in his right arm. He had planned on going back to college in January but postponed it till summer or fall depending on the healing of his arm. It really is for the best as his strength & stamina are no way near back to normal...which is expected with the 2 surgeries & 4 BEP cycles. I am glad he came to the decision to hold off on school because that way he & his fiance' can get accustomed to marriage first & with his physical therapy that all takes time. One of these days I'll see if I can post a picture. God Bless All you guys-LanetteSon (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injuryComment
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Ms. Lanette: Congrats big time. It is definitely time to have a celebration and what better place than a wedding. Ya'll have a good time and may God bless you and this event too! April
Wesley's TC
Non-Seminoma
90% Embryonal 10% Seminoma
Stage IIIa
Treatment: Left I/O 4/11/05
4XBEP 4/25/05
08/05 -Surveillance & Many Scans/X-rays
Comment
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Glad to hear the scan was all clear....Mary ellenComment
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Lanette,
Truly wonderful news!!!! CELEBRATE!!!! ENJOY.
Thoughts and prayers always for our TC Guys.
JaneJane
Mother of TC survivor.
Son, Josh 20, diagnosed Jan. 24, 2005. Left Orchiechtomy Jan.31, 2005. 4XBPE March 7th to May 28th 2005.Comment
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Thanks again everyone for all the support. Countdown to the wedding is TWO days!!!!!!! Pray for everyone to enjoy the day and not STRESS and to celebrate God's gift of uniting 2 separate individuals into 1. Thanks all-God Bless-Lanette ><>Son (21) Diag 6/29/05;non-seminoma stage II;embryonal carcinoma & teratoma; right I/O 7/1; 4 X BEP; 21.5 x 19.0 x 9.5cm abdominal mass; full bilateral RPLND 11/21/05; 8-06 right arm/hand continues to heal from paralysis due to nerve injuryComment
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Ms Lanette, You are definitely in my thoughts and prayers and I hope everyone can enjoy the day with minimal stress.
I know you must be very excited!!! April
Wesley's TC
Non-Seminoma
90% Embryonal 10% Seminoma
Stage IIIa
Treatment: Left I/O 4/11/05
4XBEP 4/25/05
08/05 -Surveillance & Many Scans/X-raysComment
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How exciting for everyone involved! I suspect there may be a few tears of joy shed.Originally posted by justinsmomScott
right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since
Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!Comment
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