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  • Am i the only one?

    Hello everybody

    I am the only one on this forum who had seminoma 2 times, got radiation in 2001 and chemo in 2005 ?

    I have a couple questions for you today

    1) What are my odds for a new kind of cancer?

    2) My doctor gave me 94% of chances to stay healthy(without rellapse) do you think it's more or less than that?

    3) He said to me that if i rellapse i will go on Vip protocol, can someone talk to me a little bit about this one ? Is it harder than BEP (more vomitting and othe side effect)

    Thank you
    Eric

    Stage 1 seminoma in august 2001
    with invaded spermatic chord and treated with RT
    Relapse november 2005, 4 BEP and now back to surveillance

  • #2
    Hi Eric
    You are not the only one, I have had seminoma twice
    first time in 1984 no spread I then had radiation
    Then again in 2004 and again no spread this time no radiation or chemo.
    I think we will be fine it didn`t come back the first time so hopefully it
    won`t come back this time.
    How are you doing on hormones replacement??
    I am using testim gel 5 grams a day.
    Best wishes
    Kurt

    2 x tc.
    Right 1984 pure seminoma stage 1 20 x radiation
    Left 2004 pure seminoma stage 1 surveillance.

    Comment


    • #3
      are you questioning the other testical or other areas?
      diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

      Comment


      • #4
        Kurt

        I still have my left one i had a relapse in the lung at the end of 2005.
        But i think i will need hormone anyway because i have a little bit less libido.
        I thought it would be ok just with lefty but i think i will need something.
        Eric

        Stage 1 seminoma in august 2001
        with invaded spermatic chord and treated with RT
        Relapse november 2005, 4 BEP and now back to surveillance

        Comment


        • #5
          huckchef

          I am questionning for other area
          Eric

          Stage 1 seminoma in august 2001
          with invaded spermatic chord and treated with RT
          Relapse november 2005, 4 BEP and now back to surveillance

          Comment


          • #6
            eric there is a pretty good discussion going on in "just diagnosed ..whats next" forum started by ctx called "weird situation..part one and two", you may want to read. but as others have stated i think alot depends based on a case by case observation and what course of treatment each one took. i was presented with basic protocol treatments as many others. as far as spread, all i can do is live each day like its not coming back. take the opinions of my doctors, research them and try to accept what they say. they are the experts. i could second guess everything they say until i find the answer "i need to hear" but why? i'll have to deal with it one way or another. i've accepted that and not until recently! i firmly believe that things happen for a reason and although i'm still searching for that answer, i will one day know why! best of luck and many thoughts and prayers, brian!
            diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

            Comment


            • #7
              I think that the numbers and statistics mentioned in those link are too negative. I don't understand how they found those number. They are talking about a study on about 40000 TC survivors and 2000 cases of second cancer.
              So this is only 5%. Can TC survivors and people who got radiation and chemo like me can hope to live to retire ?
              Eric

              Stage 1 seminoma in august 2001
              with invaded spermatic chord and treated with RT
              Relapse november 2005, 4 BEP and now back to surveillance

              Comment


              • #8
                Originally posted by Eric
                Can TC survivors and people who got radiation and chemo like me can hope to live to retire ?
                Yes, absolutely. There are many, many long term survivors.
                Scott, [email protected]
                right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


                Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                Comment


                • #9
                  Check out this link It will take you to the story of John Cleland, he was the first person treated with cisplatin way back in 1974 and he's still doing fine. http://www.curetoday.com/backissues/...red/index.html
                  Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

                  Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

                  Comment


                  • #10
                    Start saving your money. Retirement is here before you know it. Dianne
                    Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                    Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

                    Comment

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