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latest update on my boyfriend

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  • latest update on my boyfriend

    In two weeks my bf will have his last round of chemo.
    It's been a rough road, but the doctor has said his tumor markers are going down - and things look good.

    For those of you who have done chemotherapy -- is it usually over when they say it will be? I'm nervous that after his catscan they'll tell him that he needs more and it won't be over.

    The last round was particularly harsh because we tried phenergan as a new anti-nausea drug. He had a horrible reaction to it and passed out in the bathroom with the door locked. I had to break in to take care of him and when I got him upright (out of the tub where he'd fallen and hit his head) he vomited and was passing out at the same time. Really scary. I paged his doctor who was really great -- and everything turned out okay. His health insurance for perscription meds has also run out so we're trying to get marinol through the patient assisstance program.

    He's also having some kind of reaction -- his doctor thinks it's from the steroids -- his body has broken out into a terrible rash. It itches and bothers him and there's not a whole lot we can do about it.

    The good news is that his mother has bought us both tickets to mexico to join his family on a vacation in July

    I am praying that his next round of chemo is the last.
    I want me sweet wonderful boyfriend healthy and living life again.
    We had only been together six months when he was diagnosed... it'll be a year in July -- but for half of our relationship he's been ill.

    I'm looking forward to moving back into my apartment (I've been his primary caretaker) even though it will be strange and I'll miss him. I'm looking forward to going on dates.... to trying to start over.

    Friends of mine keep asking if I thinking about marriage or moving in together permanently since we've been through so much, but honestly, I can't even go there. I just want him better, and I just want life to go back to normal.

  • #2
    Hang it there it's almost over. The doctors won't extend his chemo. He's done. You boyfriend should be in great shape by the time you head off to mexico. He may not have hair yet but he will be feeling great.
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.


    • #3
      He will be very sensitive to the sun. He should be very careful while in Mexico. If his markers are going down, the chemo is working. My son got the rash too. The rash went away, but his body had signs of it long after chemo. The sun burn in Mexico really killed it, but he spent most of his wedding reception lathered in Aloe lying in bed. Thank God he has you. Dianne
      Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
      Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma