Announcement

Collapse
No announcement yet.

I can do without the excitement...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Karen
    replied
    That is a very good thing!! For peace of mind a second look at the films can't hurt.

    Leave a comment:


  • LoneNutTheorist
    replied
    I spoke with an assistant (nurse practitioner) who told me that the results showed no activity (this is a good thing). The oncologist is going to call me Monday regarding followup/next appointment. I don't know if the dr. will want to do anything else or if this means I go back to surveillance.

    I want to go pick up the films and get another opinion if there are any questions at all.

    Leave a comment:


  • lcachola
    replied
    Hope everything goes well. I find this thread interesting because it turns out I had a couple of anomalies turn up in my liver on my last CT scan that had grown from the last CT scan four months ago. However, they determined both were cysts and nothing to worry about. Good luck!

    Leave a comment:


  • Karen
    replied
    Mine too.....hope all goes well today

    Leave a comment:


  • huckchef
    replied
    my thoughts and prayers!

    Leave a comment:


  • LoneNutTheorist
    replied
    My PET scan is scheduled for 9am at the cancer center. I'll let you know how it goes. Once I have results of the scan, I will contact sloan for a second opinion (regardless of the outcome).

    Leave a comment:


  • Karen
    replied
    Originally posted by LoneNutTheorist
    I still think it's good to be doing the PET scan, and if there is any uncertainty (even if not) to consult with Sloan.
    Yup! Then you will finally be able to celebrate your one-year "all clear"!!!

    Leave a comment:


  • LoneNutTheorist
    replied
    I forgot to post a response I got from Marty Kantrowitz from the Testicular Cancer listserv. Since I think the guys on that list know more about what they are talking about than most doctors, it's a glaring omission on my part:

    "Unless you have had extensive prior abdominal surgery, seminoma is extremely
    unlikely to bypass the lymph nodes and chest and show up only in the liver.
    The likelihood of this being seminoma is next to nil.

    Mark"


    I have not had abdominal surgery prior to the i/o, and the spots were on my first cat scan. I still think it's good to be doing the PET scan, and if there is any uncertainty (even if not) to consult with Sloan.

    Leave a comment:


  • Karen
    replied
    LNT,
    I also think you should call Sloan...can't hurt and may give you peace of mind.

    Leave a comment:


  • mk6439
    replied
    I think I would call Sloan if I were you. Maybe they'll be willing to do a phone consult with you to give you some assurance that your onc is heading in the right direction.

    Leave a comment:


  • LoneNutTheorist
    replied
    Doc says he and the head radiologist both reviewed my MRIs and that they were left "unimpressed" (his odd choice of words) that it was malignant. He said that my bloodwork came back normal (even before the i/o it was normal), but still recommended I go for a PET scan on Wednesday to get a better look at it. If it looks suspicious, they would consider doing a biopsy. If it exhibits characteristics of a benign mass I'd be on my merry way until the next checkup.

    Do you think I should stay the course with this Dr. until I get the PET results, or do you think I should start calling sloan already? It sounds like he's leaning in the benign direction (and says that he's not really heard of TC bypassing every lymph node, lungs and other organs and just appearing on the liver) but wants to do the PET scan to cover his butt.

    Leave a comment:


  • Karen
    replied
    LNT,
    I would certianly think something that stable would not be cancer. Agree with Brian that if they're still scratching their heads a Sloan field trip may be a darn good idea. Hope tomorrow gives you good news!!!

    Leave a comment:


  • IowaBrian
    replied
    Just my .02 I read a lot of medical records in my line of work and the first Rad report doesn't seem to really alarm me that much. If they can't tell they always put clinical visit needed to determine. Don't be too worried but also if they don't know after the team takes a look at it then maybe a call to Sloan is in order. They may also want a new scan like you have stated to see if what they are seeing is anything to worry about or just normal (well as normal can be in all of our cases). Also I bet Sloan will want you scanned on their machine if you go even if you just had a scan I see a lot of that doctors love certain machines over others. Good luck
    Brian

    Leave a comment:


  • LoneNutTheorist
    replied
    Originally posted by Karen
    Sorry you have to wait another 2 days for answers. I hate that. The PET sounds like a darn good idea to me....maybe you should insist on one? What onc did you consult with? Hang in there, LNT!
    Just an update on my situation:

    I went to the oncologist yesterday (dr. martin frank). They took blood and he said that while a met to the liver would be exceedingly rare, it would be foolish to not look more closely. He referred my MRI results to a team of radiologists.

    I will find out what they say tomorrow. I may need a PET scan or red blood cell scan to determine what this mass on my liver is.

    It looks like the mass is the same size or only very slightly larger than it was 15 months ago. (all of the prior cat scan results said it was a hemangioma).

    Question: if this was cancer, wouldn't it have grown by more than a miniscule amount in 15 months?

    Leave a comment:


  • Karen
    replied
    Sorry you have to wait another 2 days for answers. I hate that. The PET sounds like a darn good idea to me....maybe you should insist on one? What onc did you consult with? Hang in there, LNT!

    Leave a comment:

Working...
X
😀
🥰
🤢
😎
😡
👍
👎