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God keeps throwing the punches

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  • God keeps throwing the punches

    EDIT:
    I just felt that I needed to correct what I titled this thread, "God keeps throwing the punches". I am a christian who does have strong faith in God but have been having a hard time wondering why my family and I are having to go through all this. I know this is not the work of God and felt that as a Christian I needed to let you all know that. I am sorry if the title offended anyone...
    ~Michelle

    Today at school my son (11) came to my classroom to let me know that the side of his face was tingling and his arm was numb. I called dad to have him take him to the doctor to see what was up...mainly because my son was really scared. I thought that maybe it had to do with his braces and this new contraption they just put on Wednesday. The doctor decided to have a ct scan done checking for tendonitis. Then they decided to scan his brain, too to make sure it wasn't something neurological. She called me to let me know that they have found a cyst in his brain. I am really scared and worried. He is going Monday for an MRI and then the doctor will be getting us an appointment with a pediatric neurologist at Vanderbilt Children's Hospital. If any of you pray, and I am sure most of you do, please pray for him. My children are the love of my life and on top of my husband's tc and upcoming radiation this is really tough. I am wondering what God is thinking...
    Last edited by smdemom; 02-02-07, 12:47 PM. Reason: Title of thread

  • #2
    Originally posted by smdemom
    If any of you pray, and I am sure most of you do, please pray for him. My children our the love of my life and on top of my husband's tc and upcoming radiation this is really tough. I am wondering what God is thinking...
    I am so sorry to hear this about your son! Can't they move the MRI to tomorrow??? I have zippo tolerence for waiting and you have a lot to deal wth already without a 3 day wait....things always seem to happen on Fridays or holidays. I do pray and will pray for your son. Your husband's radiation is nothing you need to worry about. He will be OK with the radiation and most likey cured after...if he isn't already.

    We are here for you, always!
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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    • #3
      I'm going to write this in forum speak but you will know the translation into street english. Jeepers Creepers, holy cow, gosh darn. I will keep your family close in my thoughts. I'm really sorry.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        Smdemom

        I am really sorry for you and your familly and hope that all these things will find happy ends. By the way Dadmo this is the first english i am not able to catch.
        Eric

        Stage 1 seminoma in august 2001
        with invaded spermatic chord and treated with RT
        Relapse november 2005, 4 BEP and now back to surveillance

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        • #5
          I'm sorry, and I hope this turns out to be easily treated.
          Scott, [email protected]
          right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


          Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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          • #6
            Jeez, I don't know what to say. I just sat here with my head in my hands thinking about you. I think it is incredible that your son had the knowledge and wisdom to say something to you and YOU LISTENED! Twice I sent my son to school with broken bones because I thought he was BSing me. I think it is also terrific that the medical community jumped on it. Think positive. Dianne
            Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
            Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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            • #7
              smdemom - -

              So sorry to hear of this. Your family will be in my prayers. You definitely don't need this right now, but hang in there.
              Right I/O 4/17/06, Seminoma Stage Ib
              RT (15 days) completed 6/1/06
              All clear as of 5/8/09

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              • #8
                Your Family is my prayers.
                sorry you have to go through this.
                Jane
                Mother of TC survivor.
                Son, Josh 20, diagnosed Jan. 24, 2005. Left Orchiechtomy Jan.31, 2005. 4XBPE March 7th to May 28th 2005.

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                • #9
                  Wishing you all the best!
                  My thoughts and prayers,
                  Brian
                  diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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                  • #10
                    My prayers are with you!
                    Lori and Jon
                    Diagnosed 5/22/2006
                    I/O 5/26/2006, Stage 3, Good
                    Teratoma (Majority), Seminoma (10%), Yolk Sac
                    3xEP then determined not working
                    HDC w/stem cell transplant 8/16/06 to 9/25/06
                    Chest and Neck surgery 10/9/06 - immature teratoma
                    RPLND 11/16/06 - immature Teratoma
                    2/29/2008 - markers continue to be normal!
                    9/16/2008 - released from Dr. Einhorn's care

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                    • #11
                      smdemom,
                      Been thinking about your family and praying that the MRI on your son provided answers and, most importantly, something as relatively simple as shunting a cyst. Post to update us if you can.
                      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

                      Comment


                      • #12
                        Thank you everyone for the encouraging words and prayers. Words will never be enough to express what they mean to me.

                        The results of my sons MRI only confirmed what the CT showed, which is a cyst. They wanted to make sure that it wasn't a tumor. He did a great job laying there for the test. I am so proud of him.
                        I really have no clue what this means/doesn't mean. The internet doesn't give a whole lot of clear info on it and some of it is just too scary to read. I think that we have to confirm what type of cyst before anything else, although it seems that he may have been born with it and we just happend to find it. We will also need to figure out if it is what caused the tingling in his face and numbness, although we may never know. He has also been having blurred vision in the eye on that side of his face. It does appear that shunts are what the norm is for cysts. All this is just really terrifying.
                        We will be getting an appointment with a neurologist at Vanderbilt Children's hospital...which I thought we would find out today when it would be, but no such luck. We will probably get that tomorrow. The doctor said that we should go in the next couple weeks after making plans with school, work, etc. which to me means that they aren't too worried. Of course I said lets go A.S.A.P. I was hoping to get the appointment for tomorrow since we will be at Vanderbilt cancer center tomorrow to meet with the specialist for my husband for a 2nd opinion on the radiation for him. Waiting is too much for me.
                        Again, thank you for the prayers and encouragment. I need all I can get. My son does, too, and loves to hear that people are praying for him. We are strong believers in the power of prayer although sometimes it is hard to remember that.
                        ~Michelle

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                        • #13
                          Michelle,
                          Thanks for letting us know the MRI results! So glad it's a cyst. I had sent you a PM that a friend of mine in college had a shunt put in and is doing great. Both your son and husband will be fine. Take care of yourself!
                          Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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                          • #14
                            Appointment...

                            We got the appointment for my son at Vanderbilt...but not until March 23rd. We are on a cancellation list in case something comes up before that. I am furious that it is going to take this long to get in. My son's doctor had said that we should go in the next couple of weeks...not months! My family is convinced that they must not think there is anything to worry about if they will take that long to look at it, but I disagree. This is my child and I am scared to death. I want it looked at TODAY! If the numbness in his face was due to this cyst, as suspected, how can anyone think that waiting is going to be ok? Not to mention the vision being blurry in the eye on the same side the cyst is on. Although I have faith in the doctor my son sees, she is a family doctor and not a pediatrician. I would be willing to camp out at the hospital just to get in between appointments.

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                            • #15
                              I agree with you. I couldn't wait that long. I would hound them to death until they got me in. Is there anything your GP can do to get you in sooner? That just seems a long time to wait. Is there someone else you can see in the meantime. I think the next couple of months would get the best of me if I had to wait. Insist, insist, insist....they get you in! You have to be vigilant about this and your course of treatment. Wishing you all the best!
                              My thoughts and prayers,
                              Brian
                              diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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