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Five Years of Surveillance: What is next?

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  • Five Years of Surveillance: What is next?

    Hi Everyone,

    I am now five years past the end-point of chemo, and six years past the discovery and diagnosis and orchiectomy for TC (pure seminoma.)

    For the past five years I have been getting CT scans, having blood work x-rays, etc. and there is no sign of recurrence. I will turn 50 this July.

    So, here is my question. After five years is there normally any surveillance recommended? I have had plenty of scans over the years and do worry about the exposure to radiation.

    Should I maybe ask my doctor for an annual scan, or should I just consider that I am out of the danger zone and treat my health as "normal?"

    Thanks for your advice,

    JS
    Right side orchiectomy, March 2001, 4.5 cm tumor with probable vascular invasion. Chose surveillance.

    9.5 cm groinal lymph node tumor found in Dec. 2001

    Finished chemo (cisplatin/etopicide) in March 2002.

    Two healthy daughters born naturally after chemo, one in January 2004, another in November 2006.

    Continued remission to present

  • #2
    Congratulations on that milestone! Great news!

    Standard follow-up from here forward is blood tests for tumor markers and a chest x-ray annually.
    Scott, [email protected]
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


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    • #3
      The norm is a yearly follow-up for life.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        Originally posted by dadmo
        The norm is a yearly follow-up for life.
        This is great advice. I had my first bout in December of 1992 and then my second in March 1999. This is obviously greater than 5 years. Also, my best advice to anyone is that before you have your boys removed, go to the cryogenic lab before you have the surgery... even if your sperm count is low, the things that the IVF doctors can do now is amazing... don't even need to be swimming... just shaking back and forth and they can put them in the egg. I am 31 about to start my family and I am grateful for that advice I received from my doctor prior to my second surgery to remove my other testicle.

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        • #5
          Bubba:
          Great to hear from you and welcome aboard.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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