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Secondary Malignancies?

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  • #16
    More concerned about heart disease

    I went to Sloan-Kettering last week and met with MaryAnn Carousso, NP for Dr. Bosl who is the Chair of the Dept. of Medicine, and is the primary oncologist for TC.
    I told her I have a real concern about secondary malignancies associated with 4xEP. She said that Sloan never uses Bleo- EP is the standard protocal...
    She stressed that although the secondary cancer is a possibility, I have a higher chance of developing early heart disease, and no one knows why.
    She also said that I have ZERO control over developing a secondary cancer- however I absolutely can control and minimize the risk of heart disease.

    And that is good news guys- keep your cholesterol and blood pressure at healthy levels, exercise and make good meal choices- and we are less likely to become a statistic.
    I plan to turn my cigar humidor into a jewlery box for my wife, and I filled my beer fridge with water and Gateraid. (I have a few Amstel Lights on the bottom shelf!)
    Stage III. Embryonal Carcinoma, Mature Teratoma, Choriocarcinoma.
    Diagnosed 4/19/06, Right I/O 4/21/06, RPLND 6/21/06, 4xEP, All Clear 1/29/07, RPLND Incisional Hernia Surgery 11/24/08, Hydrocelectomy and Vasectomy 11/23/09.

    Please see a physician for medical advice!

    My 2013 LiveSTRONG Site
    The 2013 Already Balders

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    • #17
      As long as you mentioned heart care everyone who received EP should take supplemental Potassium. Traces of cisplatin can be found in the body for up to 20 after chemo is finished and it's long term harmful effect is that it can leach potassium from your muscles.
      Last edited by dadmo; 03-25-07, 08:08 PM.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #18
        Is there any special testing that can be done regarding the heart disease...should that someday down the road be part of surveillance testing, having some kind of heart scan...Mary Ellen

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        • #19
          Mary Ellen:
          The best thing Chris can do is watch his weight and get plenty of cardio exercise.
          Last edited by dadmo; 03-26-07, 09:42 AM.
          Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

          Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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          • #20
            Sounds like a plan for all of us...thanks...Mary Ellen

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