Prayers please

[jaybird]

Great news Sharon, I'm very happy for you two.

[Fed]

Decreasing fibrosis!!!!!!!!!!

This is fantastic news! I am really happy for you and Russell. It's great that he's focusing his energy on big things and on future plans. Best of all, you can sit back and see it all unravel resting assured that you have done a fantastic job with him.

[Russell's Mom]

the latest

We saw the pulmonologist. Decreasing fibrosis!!!!!!!!!! Tapering the steroids and he should be off completely by Aug 1. Praying those lungs don't make a change. Onc-CTs=ok Calm water in the river right now. It felt like a shift, a good shift, you could hear the difference in Russell's words and just how he carried himself. We spoke about the stress that we are both carrying. He said that for him it is because he feels like he is heading toward something big...that is doing something big...in a good way. I sure hope it is something a mother can just sit back and watch!! Today I am going to enjoy the insanity..no mind..there is so much less to do when you can't think of it. Russell's Mom, Sharon

[Russell's Mom]

thanks

It was a good night sleep!!! I enjoy warmer water than cold and it is soooo nice to have understanding. Russell's Mom, Sharon

[Fed]

This is great Sharon! Hopefully you were able to get a good night's sleep!

[Scott]

I am going to get there with my own personal river of life!!!!!!!

Enjoy the swim, Sharon.

[Margaret]

I am so glad to hear that the CT scan came back okay. Lean on us Sharon, I know you are having a tough time. Let me know if there is anything I can do.

M

[Russell's Mom]

Finally the result

We heard from the Onc MD today...(after I called!!!) Russell's Ct is ok. We will see the pulmonologist tomorrow...hope to get some answers on the chest pain, but I sure will sleep better tonight. A conversation that we had found us both admitting to some pretty overwhelming stress. All of the little stress relieving ideas seem like trivial toys compared to what it feels like it would take to get some relief. There are no days off!!! Maybe I am out of my boat in the river of life. My oldest is a river guide, while in the rapids,he is happy in the boat or out of the boat, it doesn't really matter. I am going to get there with my own personal river of life!!!!!!! Take care, Russell's Mom,Sharon

[Russell's Mom]

the lake

He swam with his dog. Looked like a kid again. We talked about how stressed we were, then I realized that I had locked the door to my car, but left the key in the car door for the whole time we were down at the water. Waiting, waiting, the CT result has not come through yet and it is Friday night. No need to write more, I know I am understood. Take care, Russell's mom Sharon

[Fish]

Sharon:

Very sorry to hear about Russell's grandmother.

[Russell's Mom]

very true

Very true. Russell has had a burst of energy and has offered to paint a room for me. Even after a cup of coffee, I collapsed onto the couch and into deep sleep after work..... looking more whipped than my lab coat. No word on the results yet, these are some long days. Russell will show me one of his favorite places on a lake near his house tomorrow. Scott, I forgot to thank you for the links. Very helpful!!! Russell's Mom, Sharon

[cellblock]

Hang in there!!!!!!!!

Jennifer

[dadmo]

Sharon:
More often then not I think the survivors are far stronger then the co-survivors. Russell can certainly take care of himself and he has the comfort of knowing that no matter what you will be there.

[Russell's Mom]

so far

Well, they did contrast CTs of abd, chest pelvis and high resolution chest for the Bleo Tox. The very good news is that the Lungs look improved in regard to the fibrosis. There is scarring however. That is expected to stay unchanged for his lifetime. I have to say here that the Bleomycin is more of a conern to me than the return of cancer. If the fibrosis returns, there are no treatments. Well, lung transplant I suppose. The residual lung lesion from the cancer is unchanged. I had hoped it would decrease in size. have to hope that it is not Teratoma. We will wait to hear from the oncologist for the abd and pelvis results. In regard to his grandmother. Today I told Russell that I am done as Mom. That is to say I now know he is capable to the farthest degree. Of course I will be still involved and help put the train back on the track once in a while.... So for now, good night, it has been a pretty long day. So glad you are all out there!! Take care, Russell's Mom, Sharon

[Scott]

I'm very sorry about your family's loss, and I hope to hear good news about Russell's CT scan results soon.