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  • My update..

    Hi everyone. I read the forum almost weekly but don't get to post as much as I would like.

    Just to refresh you, I had my Orch in April and finished my Radiation for seminoma on 4 June.

    I had my first post-op CT scan in late June and everything was clear.

    Now, recovering from everything is an interesting endeavor. I have experienced the lower back stiffness. If I stretch well, it goes away - but - if I'm not consistent with my stretching it comes back. I didn't do anything this weekend, and stretched for my run this morning and could barely bend over. Some consistent daily stretching takes care of it though.

    I will say I didn't experience much post surgery pain in my remaining testicle. I didn't really feel much until approximately two months AFTER my radiation was over. Lately, I have been experiencing some weird little pains/sensations in and around the surgical/pelvic area and sometimes abdominal area. Sometimes you could classify it as minor pain (4 out of 10) - and other weird sensations. Hard to explain. My best explanation would be 'other than normal'. Also, my remaining testicle seems to be extra sensitive. I perform a self-exam about once a week, and thankfully he feels fine, BUT, that sucker is sensitive around the epidydimal area. If touched too hard I get a little burst of pain. Or if I shift in my chair the wrong way - a get a little shot of pain up my testicle into my groin. The pain isn't more than a 4 out of 10 and is lightning fast.

    I can't do boxers anymore. I almost feel like I have a "pull" on my left groin area if I don't wear supportive underwear. I still experience phantom pains where my right testicle was. Healing from all of this crap is something else. I didn't really start experiencing any of these symptoms until roughly 2 months after my rad treatment was done. During all of that I think maybe I was just too busy to pay attention....or maybe I'm just a later recoverer...who knows.

    I wasn't really worried about it (anymore than any other TC patient - but I thankfully feel I'm on the least paranoid side of the spectrum), but I keep my wife abreast of all of my symptoms and she mentioned that perhaps I should tell my doctor just in case. I have an appointment with him in September, but emailed him last week with a description of what I've been experiencing. He told me that I shouldn't be too concerned with it as my body will be healing for a while. He mentioned he would look at everything closely during our appointment.

    I will say that I never experienced much remaining testicular pain until now - so maybe it just took a while for this guy to get working? I think he may have grown some lately, but it's only slightly noticeable.

    Guess that is all I have for now. I've just been incredibly busy --- and thankfully HEALTHY! Going through this makes you thankful for that. If only I could go one day without feeling a small twinge of pain and having the first thought go through my head for a split second, "Cancer?" or going through these healing sensations without getting too paranoid. That reaction really shouldn't be so instinctive since when I found my testicular cancer there was zero pain, and only some testicular hardness - but what can you do?

    All my best to everyone on the forum.

  • #2
    Matt,
    Thanks for checking back in with everyone here. Everything you have described sounds like par for the course. I concur particularly with the "shifting-from-a-chair." This happens mostly when I'm working the tissue culture hood and sitting for extended periods of time.
    I am happy to hear that you are doing very well and have returned to your usual routine almost as if nothing had happened. My best wishes for continued good health,
    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
    11.22.06 -Dx the day before Thanksgiving
    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

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    • #3
      Yes, I don't think it helps my lower back that I sit in a chair all day - and can get pretty stiff. The other stuff is well, par for the course.

      I certainly think about all of the members on here, and everyone's various struggles. I am thankful and appreciative that my case was not worse than it could have been (and hopefully will not get worse). I finally got a chance to read Lance's book, and realized just what a cakewalk I personally had. Didn't seem like it at the time..LOL.

      Three cheers for clear CT's all around!

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      • #4
        Originally posted by Matt_24
        I finally got a chance to read Lance's book, and realized just what a cakewalk I personally had. Didn't seem like it at the time..LOL.

        Three cheers for clear CT's all around!
        And three cheers for you, Matt! Glad to hear that you are well and that you got through your radiation treatment. The passage of time really does allow us to reflect on our experiences, and though different for everyone, the shock and uncertainty is the same no matter what stage or type of TC. Wishing you continued success in your well-being!
        Maria
        *Hubby Andy diagnosed 02/13/07, Left IO 02/16/07 *Stage 1A Non-Seminoma (65% Immature Teratoma / 35% Embryonal Carcinoma) *RPLND 04/27/07 Lymph Nodes-ALL CLEAR
        *Complications from Chylous Ascites so Laparotomy 05/03/07 *No food for 10 weeks, TPN only *07/18/07 Removed drains, tubes, picc line *CT Scan 07/31/07-ALL CLEAR
        *CT Scan 02/12/08-ALL CLEAR *Hydrocele surgery 06/19/08 *CT Scan 9/30/08 and 03/06/09 shows <cm left lung nodule - under surveillance

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        • #5
          Hi everyone. I've been extremely busy and haven't given cancer much thought over the last few months, which is really nice. I've thought about the forum but haven't had an opportunity to read or post. I went through today and I've been reading some posts and just wanted to give everyone a brief update. I had my 2nd post treatment CT scan today. I'm sure the results will be fine, but you still can't help but worrying a bit until I receive my official all clear. I'll let you all know.

          Anyhow, I just wanted to drop in and say HELLO!

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          • #6
            Originally posted by Matt_24
            I've been extremely busy and haven't given cancer much thought over the last few months [...].
            Good Man! That's exactly how things are supposed to go. Thanks for checking in, and I am glad all is working out well for you. Here's to an "all clear" when you get your results!
            "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
            11.22.06 -Dx the day before Thanksgiving
            12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! I consider myself cured.

            Comment


            • #7
              Hi Matt,

              I went through a bit of what you described... the pain and discomfort peaked at about 6 months... the epididymis was sore, to the point where I had a couple of courses of antibiotics for epididymitis. The worry was palpable... and I had all these weird pains/sensations around my groin area. Still do sometimes. Still, I have no signs of cancer and overall feel really healthy. Similar two you, my first 2 months went pretty much symptom free... and then I had everything start to happen. I did not have radiation, but I still think that even in your case your stiffness may be anxiety related. It certainly was in mine, and I had the stiffness and the pain, and when I would stretch and run it would go away... but I think that when I exercise I become less anxious and my symptoms dissolve. Clean MRI, Cat Scans, Ultrasounds, and X-rays don't hurt either!

              Best of luck to you!

              djm
              Detected mass 10-6-06, Radical left I/O 10-10-06, Stage I seminoma, 1.5 cm primary, No LV invasion, No Rete Testis Invasion... Currently on Surveillance.

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              • #8
                Originally posted by Matt_24
                I had my 2nd post treatment CT scan today. I'm sure the results will be fine, but you still can't help but worrying a bit until I receive my official all clear. I'll let you all know.
                Good to hear from you, Matt. We'll expect good news from you shortly.
                Scott
                right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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                • #9
                  Hi everyone,

                  I moved to a new squadron and took over a new section here on base and I've been slammed with taskers. Seems like my new boss loves email and her blackberry more than anyone I've ever encountered. Everytime I log on, I have 20 new emails (from her) to respond to. Yikes....but she's cool though, and I keep telling myself that since I'm ALL CLEAR and HEALTHY AS A HORSE - I can't complain.

                  Just wanted to share the good news with you.

                  OH, and in my new squadron we have a LT who is a PT Nazi. We did about 10,000 pushups rotating in an ab workout/punishment every other set on Weds, followed by a nice long run on the riverwalk...nothing like the wonderful smell of the Potomac river on a Weds morning. I could barely move this morning, but oh how thankful I am that these are my only concerns. Believe me! Life is good! Now I just have to get back into shape.

                  Thanks for your continued support and words of encouragement.

                  Matt

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                  • #10
                    Originally posted by Matt_24
                    We did about 10,000 pushups...
                    Wow, I can never get past 9,000.
                    Scott
                    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                    Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

                    Comment


                    • #11
                      To get to 10,000 you really have to dedicate yourself. Keep trying. We're here for you!

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