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  • T Level Question

    Blood test came back at 2.3 NG/mL on a scale of 2.8 to 8.0 as normal. Blood was taken at about 2:30pm. Any ideas?? I know the T level is sort of a what might be normal for one will be low for another but it sounds like I am at the low end of low. I had the results faxed over to the URO I am sure he will call tomorrow if he is in the office. Just wondering what the pros think.
    The anxiety has been much higher since before the I/O hasn't gotten any better after surgery I don't have the pain that I had before so that is good but the bad moods really haven't gotten any better even trying meds to see if that will help they seem to keep things a little more normal but it isn't perfect that for darn sure. Low T might explain a lot of why I feel the way I do all the time.
    Brian
    5-1-2006 Right IO - Stage 1 Nonseminoma Embryonal and Yolk sac - Surveillance Baby on the way Born 7-20-07

  • #2
    See an anti aging physician and get on HRT, check out http://forum.mesomorphosis.com/mens-health-forum/
    Your urologist or most endocrinologists wont care its that low, but you can bet ur anxiety is caused by it.
    Just check with an encologist its ok to go on HRT while being on survalience, my urologist said its ok for me, you also might wanna get a 2nd opinion from another oncologist.
    Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

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    • #3
      With that level and your symptoms is sounds like you might need to look in to hormone replacement.

      However, a few studies that I've read suggest that there is a diurnal variation in testosterone levels, with the highest levels occurring in the morning. So you might want to re-test and have blood taken earlier in the day.

      But how you feel should outweigh a lab test, especially if you have symptoms of low T.

      best wishes.
      Fish
      TC1
      Right I/O 4/22/1988
      RPLND 6/20/1988
      TC2
      Left I/O 9/17/2003
      Surveillance

      Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.

      Comment


      • #4
        URO office called said since they didn't order the test he wouldn't say much, I can get tested again in 6 weeks and come in a see him nurse said he isn't worried about the level right now. Boy do I feel better about that NOT oh well guess I will wait to hear from the Oncol on Monday. I can get him to run a full test next month maybe that will explain things a little more.
        Brian
        5-1-2006 Right IO - Stage 1 Nonseminoma Embryonal and Yolk sac - Surveillance Baby on the way Born 7-20-07

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        • #5
          Dont wait for these urologists and endocrinologists, there not worth waiting for, they are nazis when it comes to giving HRT, call up ur phone directory and ask for an anti aging clinic in ur city.
          Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

          Comment


          • #6
            I don't believe "anti-aging clinics" are the answer.
            Scott, [email protected]
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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            • #7
              Call from Onc Nurse Doctor stated that Extra T is not needed at this time wasn't low enough. Guess I was wanting a easy fix not to be today. Oh well Guess I still have my health (even though I still feel like crap)
              Next blood test in 3 weeks.
              Brian
              5-1-2006 Right IO - Stage 1 Nonseminoma Embryonal and Yolk sac - Surveillance Baby on the way Born 7-20-07

              Comment


              • #8
                Your doctor is not worried about your testosterone level?

                He would be VERY concerned about it if HE were the patient instead of you. My own experiences have taught me that almost without exception, most doctors care nothing about the health and quality of life of their male patients who are androgen deficient, and will do anything to keep from providing HRT to thier male patients suffering from hypogonadism. Please see some of my previous posts where I describe my own history in this area. Why is this? I dont know. If anyone knows please tell me. The reason that anti-aging clinics sometimes ARE the answer is that many times that is the only place men can obtain proper HRT. If thier oncologists, urologists, and endocrinologists refuse to treat them, what are they to do? IowaBrian, it is very unhealthy for a man to have a T level that low. Your mental and emotional health will suffer, and you will be much more prone to osteoporosis, type II diabetes, and heart and blood vessel disease. I'm sorry you or anyone else has to go through this. I have been in the same position you are in right now and my best advice is stay strong and don't give up. Please keep us all updated on your situation. God Bless, Stitch

                Comment


                • #9
                  My guess would be that its because testosterone is stigmatised along with marijuana, and amphetamines and any prescribable drug that is popular on the streets, What I have learnt recently with doctors is that they only respond to 2 things with patients, pain and risk of death, if you goto a hospital and say u feel dizzy or sick they dont care, but if you say your in pain they up your priority.
                  Theres drugs they love to prescribe such as valium and prozac, then theres drugs they hate to prescribe such as amphetamines and ambien. GPs arnt even allowed to prescribe amphetamines in Australia, and when my friend got an ambien prescription his doctor was really scared he would get addicted. Doctors cover there own *** before they worry about there patients general wellbeing, I guess there worried addiction can lead to a lawsuit. I think doctors are taught by a strict book that says, these drugs are good and these drugs are bad, and these treatments should be given at a drop of a hat, and these treatments shouldnt, Instead of listening to there patients.
                  I think its only been recently that male testosterone deficiency has been spoken about in the media, it should only be a matter of time before doctors change there standards on HRT.

                  Like mental illness doctors fail to give it the attention it deserves wich is strange because there life long conditions. Like mental illness, testosterone deficiency is one of those silent conditions that are not reported all the time and is easily said to be caused by other things such as genetics or environment. Once someone important starts speaking up about something and awareness is raised, only then will doctors be pushed to look at particular things more seriously, like anxiety and depression now days, in the past few years it has had its fair share of media attention and now in Australia there has been progress with it, with a lot more funding for it recently.
                  I remember reading somewhere that 60 years ago, Testosterone levels were a lot higher in men compared to now. Just like anxiety and depression its easy for doctors to say your symptoms are normal as apose to there being an epidemic of a particular problem.
                  Last edited by Michael112; 10-10-06, 04:41 PM.
                  Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

                  Comment


                  • #10
                    Hi

                    I think that you are very hard on the doctors
                    why would any doctor wish to not do their best
                    to help us,they don`t hold any drug back if they
                    belive it can help you.
                    You can find some cases were there are mistakes
                    like others things in life, but all together they do
                    their best.
                    Best wishes
                    Kurt

                    2 x tc.
                    Right 1984 pure seminoma stage 1 20 x radiation
                    Left 2004 pure seminoma stage 1 surveillance.

                    Comment


                    • #11
                      I have just had bad experiences with doctors lately.
                      my 1st GP mis-diagnosed as a cyst.
                      The emergency department medical officer told me he worked 2 hours overtime told me he tried really hard to get the blood test for me, yet forgot to mark "urgent" on the test papers, so I would say he was lying.
                      2 urologists from seperate hospitals said they thought my tumor might be STAGE1a non-seminoma because it was multifocal, even though I had the lump for 3 years, and that the radiologist said seminoma, there rational was that "maybe it was a cyst that turned into a tumor) (not that important but so stupid)

                      Depsite waiting 3 years already, everyone thought it was a crazy idea if I was to wait an extra month to bank more sperm. (very irrational and illogical)
                      My urologist said he performs I/Os every week lol sure, who chooses radical over regular?
                      My new GP refused to give me a pathology referal for a blood test I wanted done, then lied to me and said he wasnt allowed to prescribe TRT drugs even though I have recieved an andriol+nolvadex script before from an old GP.
                      My cousin is a retired doctor and said that my dads doctor was giving him the wrong medication, my dads doctor is the one who misdiagnosed me, so hes not all too bright.
                      My mates cousin is 2nd or 3rd year studying brain surgery, he drinks and smokes pot on the weekends cause his job stress him out when he has to tell his patients parents he is only in training and he is going to be assisting in the surgery.

                      The only person who really cares about your health is you, and you haveto keep that in mind.
                      Last edited by Michael112; 10-11-06, 10:46 AM.
                      Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

                      Comment


                      • #12
                        I have to agree that there are some that don't care! but......the majority do care. if you look at the percentage of people who receive health care in the world, the percentages of not getting accurate/professional care would be very slim! my opinion!!
                        diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

                        Comment


                        • #13
                          Yes, almost all doctors care about thier patients,

                          except for thier male patients who are androgen deficient and in need of testosterone replacement therapy. The medical community in the United States and worldwide is usually very reluctant to offer a man TRT no matter how severe thier symptoms and no matter how abnormal thier hormone profile is. I say this based on my own experiences and the stories I've heard and read from other men.
                          Why is this? I still don't know, but a man's health and quality of life can be destroyed when he is denied TRT. I believe the primary reason these anti-aging clinics came into existance is to serve men who are androgen deficient that the medical community has abandoned, and now some in the medical community critisize the anti-aging clinics and the service they provide? They would not even exist if androgen deficient men could obtain proper treatment from thier regular physicians. Yes, I think almost all doctors are great, but they have chosen to abandon those suffering from male hypogonadism. Any other opinions out there? Anyone agree with me or disagree? Anyone have any ideas on how we can help improve the situation?

                          Comment


                          • #14
                            I saw my HRT doctor yesterday who himself uses Testosterone cream, he said the reason doctors dont like giving HRT is because there scared of cancer, anyways I am starting HRT in 6 weeks, gonna try androgel for maybe a month, then switch to weekly injections, the doctor is going to be prescribing me through the help of Dr John Crisler.
                            Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

                            Comment


                            • #15
                              in my case, wheather it differs from others because i have both "boys" gone they are more aware of my needs. maybe thats why both my urologist and my endocrinologist have been so forth coming with providing me with HRT.
                              Who knows?
                              As far as awareness of this being so very mis-diagnosed I believe it will take everyone to be more vigilant who are receiving HRT and getting the word out to all males that this could be a problem for them. I tell my two older brothers alot about what I read and discuss here as well as what the symptoms are and maybe if they do the same the chain effect will take place. Maybe there needs to be a spokesman of national recognition (like a Lance Armstrong) to get this the attention it so surely deserves. We see what his done for us so far...don't we?
                              I posted in a thread awhile back about Shaun Micheel, a PGA tour player, from Memphis, Tennessee- who went mis-diagnosed for low T for so long he almost lost everything he had worked for on tour, his family and had thoughts of taken his own life. HRT was finally brought into the picture and his life couldn't be better now(of course with maybe a few more tour wins).
                              Anyway, just a few thoughts!

                              My prayers to all,

                              Brian
                              diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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