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  • Lesser of 2 evils?

    The good news... I'm 7 months on from I/O and single shot Chemo, and my tests and markers have been normal since.

    I havent been on the site for ages, and given that some major family problems kicked of the same week my tc was diagnosed I'd almost forgotten about the whole thing.

    However, just got my latest test results back and my testosterone levels are low: 5.9 nmol/L compared to a normal range of 9.4 - 37.0

    I've been nackered (which I put down to a 2 week bout of viral gastroenteritis I just finished - nice - whilst on holiday!)

    and also feeling a bit low and "weary of the fight" needed to get through family and work issues at times. (which I put down to a lack of tenacity on my part)

    I also found my strength and ability to do push ups LOADS worse than it was a few years back (which I put down to being rubbish at excercise in recent times!)

    Here's the thing tho....

    I've yet to see the endocrinologist, but reading up on Testosterone it seems like the choice is:

    a) Live with low levels - associates with anxiety, depression, poor concentration and memory, increased upper body and tummy fat, low sex drive, errectile dysfuncion, and poor bone density even osteoparosis

    b) Get replacement therapy - associated with nausea, vomiting, 4 hour errections needing medical attention (!) acne (!!) headaches, appetite, moode changes, liver damage, swollen ankles, MAN BOOBS!!! and lipid problems which need monitoring.

    It's hard not to conclude that we're going to be chasing after one problem after another fixing the effects of the thing that we used to fix the thing before.

    I realise I'm whining and I feel bad about that, given that most of us on this site, me included, have had to face (or are still facing) much bigger issues. I guess I'm just deflated by being lulled into a false sense of security by a few months without having to think alot about health issues.

    I dont know what the % risks are of all of the side effects of TRT, so if you've done that piece of research... perhaps some of you guys who've had this can help give me back some perspective. There is life after TRT isnt there?

  • #2
    Originally posted by Pilgrim

    b) Get replacement therapy - associated with nausea, vomiting, 4 hour errections needing medical attention (!) acne (!!) headaches, appetite, moode changes, liver damage, swollen ankles, MAN BOOBS!!! and lipid problems which need monitoring.
    I dont know where you got all that from, the only thing true is acne and manboobs, which acne is not a problem for most people depending on what your teen years were like. Man boobs are prevented with arimidex, and if you knew the reason for it you wouldnt really consider it a side effect but rather a reversable outcome of poor HRT.

    Most people report a better quality of life on TRT compared to an average person without TRT.
    I can assure you once you start taking TRT you wont go back.

    Gyno(man boobs) is more likely a problem for people who are overweight even slightly, if the case then you should consider eventually switching from an endocrinologist to an anti-aging doctor who is aware of the importance of lowering estrogen for TRT patients.

    If you want me to point you in the right direction of some good doctors let me know what country and state your in and I will see if your close by to any.
    Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

    Comment


    • #3
      Endocrinologists etc

      Thanks Michael

      Feeling less down today, and your post cheered me up. Mostly I think the side effects thing was to do with feeling insecure in my relationship - acne and man boobs would not help an already rather fragile situation.

      I'm in the UK, the midlands, so it's the national health service, and I'm at a big teaching hospital with a good reputation.

      You get a choice of hospital for planned consultations, but once you're on the cancer pathways it tends to be that you get what you're given.

      Comment


      • #4
        It's sad that there is so much misinformation out there that you would consider

        NOT seeking TRT, and it's even sadder that so many "doctors" actually believe this misinformation, or at least cite it as thier reason for denying men TRT. PLEASE seek TRT...the "adverse risks" you listed are all almost complete nonsense. I honestly am not aware of one single legitamite risk associated with properly administered and monitored TRT. I've been on the gel and Arimidex for about 2 and a half years, and I wouldn't give up TRT for anything. Unless you have active prostate cancer, I believe any physician who would advise you (or any person with your symptoms and T levels) not to be on TRT should not be practicing medicine.

        Comment


        • #5
          Hi Pilgrim,

          Yes, you do need TRT. I have been on it for twenty years now following TC.
          Check out my site linked below and email me if you need help

          best wishes

          Nick
          Publisher/Editor
          The Testosterone Deficiency Centre
          www.androids.org.uk

          Associate Editor
          The Testicular Cancer Resource Center
          tcrc.acor.org

          Director and writer
          A Ball Dropped
          https://vimeo.com/70509556

          Comment


          • #6
            Hey Pilgrim--

            I wouldn't worry about the man-boobs and such. I have been on HRT for a year and I after a rough couple of months getting adjusted things are as good if not better than they were before my second go around with TC. I have no boobs and if anything I have gained muscle mass, energy, and a bit fuller of a beard! Hang in there if things go bad at first....the hot flashes went away after about 7 months and they were the worst of it.
            TC 1
            Right I/O-- 12-5-00 (seminoma, teratoma, embryonal, yolk sak)
            RPLND-- 12-29-00 (All Clear)
            Surveillance
            Recurrence-- 4-22-01 (3 mets in right lung-- biggest 3cm, small met on pancreas, one lymph node enlarged-- 2x normal)
            Chemotherapy-- started 4-30-01, 3xBEP
            Surveillance
            TC 2
            Left I/O-- 7-19-06 (seminoma)
            Hormone replacement therapy-- Androgel
            Surveillance

            Jeremiah 29:11
            Listen to Bob Marley

            Comment


            • #7
              Hey Ras Joe,
              Good to hear from you and sounds like you are doing well!
              Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

              Comment


              • #8
                Man boobs

                In recent weeks, I have noticed a marked increase in the size of my man boobs, in particular the right side. i can almost feel ii growing and it is tender to the touch. The left is larger, but not tender yet. I'm freaking out. My last chemo was in 1990. i haven't really had any problem with my sex drive per se and I have never felt this boobage sensation before. What do I do?

                Comment


                • #9
                  HI Totally,

                  You should mention it to your doctor and get your Estradiol checked.

                  I hope this helps

                  Nick
                  Publisher/Editor
                  The Testosterone Deficiency Centre
                  www.androids.org.uk

                  Associate Editor
                  The Testicular Cancer Resource Center
                  tcrc.acor.org

                  Director and writer
                  A Ball Dropped
                  https://vimeo.com/70509556

                  Comment


                  • #10
                    Originally posted by nickohs
                    HI Totally,

                    You should mention it to your doctor and get your Estradiol checked.

                    I hope this helps

                    Nick
                    We both know his doctor wont do anything about high estradiol.
                    Besides it sounds like low T even if its in range everyone is diffrent.
                    I remember my nipples hurt a bit inbetween my I/O and my starting of TRT. but my E2 was only 6 points above LEFs optimal range and my TT was something like 550ng/dl.
                    Whats sad is his doctor will probly tell him its all in his head.
                    Totally, if you dont get any help from your urologist, or an endocrinologist then you can look for an anti-aging doctor.
                    Last edited by Michael112; 07-16-07, 11:09 PM.
                    Aged 23 ;; 09/06 left I/O ;; Markers normal ;; 100% Seminoma Stage 1. ;; 10x8x16mm & 7x7x8mm ;; rete testis invasion. ;; no vascular invasion. ;; surveillance. ;; HRT.

                    Comment


                    • #11
                      I can give you one report from the trenches. HRT made my crappy life 1000x better. I'm serious. My GP thought I might be metally depressed at first but of course is was lack of Testosterone in my case.

                      Here are the hoops you have to jump through.

                      Yearly Physicals. You need them anyway so? The PSA and DRE test. As my family has been hit with prostate cancer deaths for me this was NOT a big deal.

                      Some fiddling to get the dose right. That mean blood tests two weeks after you start and after any dose change. Then one 6 months later, then yearly when you do your physicals.

                      Man boobs happen if your Testosterone converts to Estodiol. Be SURE your labs include Estro and if it spikes you can change the way you get Testosterone into you or if your Doctor is willing take a drug like Arimidex to knock it down.

                      Thats the deal. I don't think its a big deal once I got on a healthy dose. Man - I feel GREAT! What your feeling day to day sounds bad. I've been there.

                      My wife was ready to kill me and I was ready to let her. Life is 1000x better. Honest!


                      Originally posted by Pilgrim
                      The good news... I'm 7 months on from I/O and single shot Chemo, and my tests and markers have been normal since.

                      I havent been on the site for ages, and given that some major family problems kicked of the same week my tc was diagnosed I'd almost forgotten about the whole thing.

                      However, just got my latest test results back and my testosterone levels are low: 5.9 nmol/L compared to a normal range of 9.4 - 37.0

                      I've been nackered (which I put down to a 2 week bout of viral gastroenteritis I just finished - nice - whilst on holiday!)

                      and also feeling a bit low and "weary of the fight" needed to get through family and work issues at times. (which I put down to a lack of tenacity on my part)

                      I also found my strength and ability to do push ups LOADS worse than it was a few years back (which I put down to being rubbish at excercise in recent times!)

                      Here's the thing tho....

                      I've yet to see the endocrinologist, but reading up on Testosterone it seems like the choice is:

                      a) Live with low levels - associates with anxiety, depression, poor concentration and memory, increased upper body and tummy fat, low sex drive, errectile dysfuncion, and poor bone density even osteoparosis

                      b) Get replacement therapy - associated with nausea, vomiting, 4 hour errections needing medical attention (!) acne (!!) headaches, appetite, moode changes, liver damage, swollen ankles, MAN BOOBS!!! and lipid problems which need monitoring.

                      It's hard not to conclude that we're going to be chasing after one problem after another fixing the effects of the thing that we used to fix the thing before.

                      I realise I'm whining and I feel bad about that, given that most of us on this site, me included, have had to face (or are still facing) much bigger issues. I guess I'm just deflated by being lulled into a false sense of security by a few months without having to think alot about health issues.

                      I dont know what the % risks are of all of the side effects of TRT, so if you've done that piece of research... perhaps some of you guys who've had this can help give me back some perspective. There is life after TRT isnt there?

                      Comment

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