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Questions about radiation therapy.

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  • #16
    Well, I had my last treatment yesterday. I did notice the fatigue after the 1st couple of treatments and I thought I was going to make it all the way thru without anything else but I didnt.

    This past Saturday I started getting stomach aches and it has gotten worse each day since. Today has been the worse. The doctor said it could go away in a few days or it could take weeks. I have a call into him now to see if there is some over-the-counter or prescription meds I can take.

    Other than that all went well and I'm happy to be done.

    Thanks for the replies.


    • #17
      glad to hear it!! stay positive and move forward in life. the next best thing is to keep all your scheduled appointments for follow-ups and dont miss them. these are very important as to keeping this thing suppressed!! best of luck and god bless!!
      diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008


      • #18
        Ok, My case is the same as the guy who started this thread. ( stage 1 seminoma, clean blood test and ct scans)...You guys were mentioning survaliance and radiation and why is he getting radiation?....well since my case is the same as his, Should I be getting radiation? or just be watchful?....radation won't harm me will it? on a long term basis?, theres no harm in getting radiontion is there?....What should I do?...I havent started radiation but on monday I do.


        • #19
          Stage 1 Seminoma is probably the best and also most annoying diagnosis you can get, particularly if you have no elevation in tumor markers. You're never quite sure what treatment path to take. Fortunately all the paths lead to a cure in 99.9% of cases.

          Too many men are being needlessly irradiated.
          Radiation is not risk free and can increase the chance of other cancers later in life.

          So how do you decide what to do? There have been some factors ASSOCIATED with increased/decreased risk of spread at the time of the orchiectomy. If I remember correctly the factors are age, size of tumor, and presence of lymphatic/vascular invasion.

          Risk of spread for seminoma is lower if:
          age is greater than 35
          tumor is less than 4cm in diameter
          there is no lymphatic or vascular invasion.
          (someone please correct me if I got these wrong)

          Of course any combination of these factors could be present and make the decision very complicated.

          In my case, I was 42, the tumor was 7-8mm (very small) and there was no lymphatic or vascular invasion. My blood tests and CT scans were normal.
          I chose surveillence. If I have a recurrence, then I'll get radiation (or maybe chemo). But before I subjected my body to any treatment, I wanted to know that it was absolutely necessary.

          Ultimatley it's your choice, and I know it's not an easy decision. Surveillence requires an absolute commitment to stick to your schedule for tests.

          Best wishes, thoughts, and prayers,

          Right I/O 4/22/1988
          RPLND 6/20/1988
          Left I/O 9/17/2003

          Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


          • #20
            Your saying, the thing that is suppose to make this cancer go away, can accualy cause more cancer?...GREAT....I Don't wanna get radiation, but I feel like I need to, just in know?.....I think I am just gonna do it. I know its a small chance that it can come back but...I wanna get this all over with, This stupid thing has sorta derailed my life. Nothing is going right. It's messed up alot o things..SO after these 3 weeks everything can be normal again...I'v been to the doctors in the past 2 months more then I have been in my whole life, 8 strangers have felt me up, my balls gone!, my friends abandoned me, I can't go back to school cus I missed too much of class so this whole semester was a waste, my balls gone!...The stress from all of this has gave me an ulcer which hurts like hell and I have to take 20 freggin pills a day...and now I have to take this stupid radation.....and my balls gone!......sorry for this rant everyone...and hijacking this thread.


            • #21
              First of all, as stressful as all this is, in order to make the best decision for you then you have to relax a minute and think clearly. Obviously, your doctors have recommended the radiation course as the next step in your treatment plan. There are risks associated with any treatment path. If you go with surviellance then you could have a recurrence and the treatment of radiation (or chemo) at that time will be stronger than what you will recieve now. There is a slight risk of cancer from the radiation, but my doctors assured me that the risk is very low. It seems to me from your comments that you might find the survellience route too stressful since it will require a very regimented schedule of follow-ups and tests. While you still must get follow-ups after radiation for a few years, they are not as often as surveillence. I chose radiation because it gave me peace of mind that I was doing something and not waiting for something to happen. My follow-up schedule is now every 4 months for 2 years and CT scans twice a year. (I do get bloodwork and x-rays at every follow-up). 4-6 weeks after radiation I was feeling good and have since gotten my life "back to normal". The comments in the above posts are accurate. Seminoma - Stage 1 is the best diagnosis and the most annoying because you actually have to make some tough decisions. But the good news is that there is no wrong decision (the only wrong decision would be to do nothing and not show up for follow-ups). While each choice may eventually lead you down different paths, in the end, they usually all lead to a full cure. Hang in there, stay strong, and keep your head up as you move forward. This will soon be a distant memory.
              Diagnosed 5-5-05 (Stage 1 - Seminoma) / Oriechtomy 5-9-05 / Adjuvant Radiation July 2005


              • #22
                Originally posted by aliasarchangel
                ...and my ball's gone!...
                Well, you're in good company here with that problem!
                right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

                Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!


                • #23
                  yeah I am just gonna get radiation....thank you guys, even thought I don't know you, I am glad I can talk to you all about this...your the only ones, so thank you.


                  • #24
                    my experience

                    Hello everyone,

                    Well, I chose surveillance and BLAMMO cancer came back in the form of a fast growing tumor, and then I needed chemo. Although it is not an easy call to make, I think those of you who are opting for radiation are doing the right thing as it is quite a bit easier than chemo, at least from what I read here.

                    Might also mention, since I am now 4 years out of chemo, that my 2 year old born after cancer is thriving and we just found out we are pregnant again, so chemo didn't tamper with my fertility.

                    Right side orchiectomy, March 2001, 4.5 cm tumor with probable vascular invasion. Chose surveillance.

                    9.5 cm groinal lymph node tumor found in Dec. 2001

                    Finished chemo (cisplatin/etopicide) in March 2002.

                    Two healthy daughters born naturally after chemo, one in January 2004, another in November 2006.

                    Continued remission to present


                    • #25
                      Originally posted by johnseed
                      we just found out we are pregnant again
                      Great news! Congratulations!
                      Man, I love when life goes on and on and on...

                      Best wishes
                      Embryonal carcinoma, stage II,
                      3 x BEP, apr - june 2005


                      • #26
                        AWSOME dude!