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  • Cancer is Back

    Hi Everyone,

    I've kept an eye on the forum since I was initally diagnosed last May - its been a great source of info and inspiration. Had orchiectomy in May 05 (pathology recorded NSGCT and embyonal carcinoma) followed, eventually, by 2x BEP in Jul/Aug after my AFP level fell from an initial 5,500 down to 5.

    From the forum I noticed the difference in attitude between the US and UK on adjuvant chemo and discussed it with my consultant but when it came to the crunch it was going to be difficult to decide not to take it, though with hindsight.....

    My recent routine check in Jan showed my AFP level had gone up to 20, and a second test showed it had risen again to 52. A CT scan 2 weeks ago confirmed 3 nodes (5mm) on my lung. Just had PET/CT scan today but I'm already booked in for more chemo starting next Monday.

    Chemo regime proposed CBOP (for 4 weeks, alternating between BOP and CBOP), two weeks rest, then 3x 3 week cycles of TIP (1wk on, 2wk off). I'm meeting my consultant on Fri to review PET scan results and the pending chemo but I've the usual problem of having some questions but not knowing what I dont know!

    Although its of lesser consequence now, my girlfriend and I had rearranged a trek to Everest Base Camp for this March (originally cancelled from last Oct), and were raising money for CancerBACUP, a UK charity - see
    HTML Code:
    www.justgiving.co.uk/climbingeverest
    Keeping positive we're re-booking for next year!

    I didn't fare to badly on my original 2x BEP (no sickness and my hair grew back thicker!), but I'm presuming its gonna be much worse this time round. Can't seem to find out much info on CBOP or TIP, so any info on the treatment and success rates would be welcomed.

    Keeping positive!

    Nigel

  • #2
    wish you all the best.

    I am sorry to hear about this. You beat it once and can beat it again. Stay positive and keep us posted. Wish you all the best.

    Comment


    • #3
      Hi Nigel,

      You might want to have a read of this for info about TIP chemo, and Im sure a couple of people from the boards that have gone through it will give you some info.

      I have to admit that Ive not heard of BOP or CBOP before, but someone else might be able to help you out.

      Where are you getting treated? Im originally from the UK, and was looking at going home if I needed more treatment. My oncologist over here said that Royal Marsden would be the best place. Might be worth giving them a call if youre interested in a second opinion.

      Good luck,

      Steve
      Left I/O March 05, nonseminoma;
      Relapse July 05, single lymph node 3cm;
      2 x BEP Aug / Sept 05, node grown to 4.7cm;
      2 x VeIP Sept / Oct, node grown to 6.7cm, markers normalised;
      RPLND Dec 05, no active cancer;
      back on surveillance

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      • #4
        I wish you the best of luck with this next round, Nigel. You're well outside my range of knowledge, so I hope you'll share what you learn with us as you go.
        Scott, [email protected]
        right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


        Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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        • #5
          Hi Nigel

          From what I know of Bop regimen it is the same as BEP but they substitute Vincristine for the Etopiside.. The side affects are supposted to be less than that of BEP.. It is listed as a chemo with minimal side affects in most cases.... TIP (Paclitaxol, Ifosfimide, and Cisplatin-mesna) Im going to be honest with you-- It was the worst experience with cancer that I had.. It affects everyone different so maybe(hopefully) your experience will be different.The only thing I would check on with the TIP is it is usually administered for 6 days and then you are off for 21 days!!! I also know that the Mesna MUST be given before the each day with the Ifosfimide..If not it will cause painful and burning urinating....
          Moffitt Cancer Institute
          CANCER SUCKS
          Diagnosed/Left I/O 9/18/2004--Non-Seminoma/Stage IIIC--3X B.E.P chemo--3X T.I.P. Salvage chemo---Abdominal [email protected] 34cmX 24.5cmX 17.5cm---4/19/2005 --RPLND/Left Kidney,8 1/2lb Abdominal tumor,42 nodes removed---7/16/2005 Remission/Surveillance---Severe Peripheral Neuropathy--

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