Surveillance protocols...

[Mom]

It's about time!!! Keep that glass half-full!!!! It's Spring here in the US (although in PA you would never now it) and time for things to bloom. That is what we want for you!! Dianne

[Don]

I glad to see your going to start enjoying life again.. Cancer has already taken to much time from you-- Don't let it take one more minute--not one.... Looking forward to hearing some of your music one day Adrian.....

[Karen]

Adrian,
Hope you're still doing well and enjoy your music and SPRING

[Scott]

Adrian, you woke up!!

Congratulations on seizing the moment. Make music!

[AdrianB1971]

Thx DON

at your advice DON, I'm surrounded again by keyboards, computers, audio mixers and some new musician friends. I think I'm discovering myself from darkness. My emotions are indeed more stronger than before. My 'old' synthesizers are awaiting me. My fingers are running on keyboards faster than before I won the battle with neurologic side effects from cisplatin. And my hair...is so long...] and my painful breasts masses after chemo have disappeared....and the lower back pain has gone....and the swollen supraclavicular neck lymph is normal now.....YES you guys, you're right. I'm a lucky guy, and I'm thankful to researcers who discovered the chemo for TC . I still cant bealive that 30 years ago I should be DEAD.

Now back to work....the world of new sounds is awainting me.....

[TCLEFT]

I like this quote. Thought I'd share it.

Life can only be understood backwards; but it must be lived forwards.
Soren Kierkegaard (1813 - 1855)

[Don]

[QUOTE=AdrianB1971] I'm thinking especialy to USA who declared war to cancer 30 years ago but unfortunately the battle is lost.

I don't know how that could be said!!!!! Granted thousands of people die from cancer every year but thousands of people that should have or could have died, have been saved due to the advances we have made in cancer research.. Many women with breast cancer that would have died 20 years ago are living longer or full lives today... If this web site was operational 20 years ago it certainly wouldn't have almost 2000 members--it would have maybe 100 because most of us would have lost our battles with cancer... The advances made in cancer treatment is the reason we are all hear today.. There is no way that any of us will see all cancers cured in our life time but we are making sure that our future generations have the ability to beat cancer--and someday they will.... when you were diagnosed with cancer 20-30 years ago your chances of survival over 1 year were less then 35%--survival over 5 years was less than 20%--- Now survival rates are between 65 and 96% depending on which cancer you have and what stage it's caught in !!!!!! We haven't YET won the war , but we have won countless battles--It's only a matter of time until the war is won!!!!!

[Don]

I also think that the more you sit and reflect on what a terrible disease this is and what is has and is doing to you now-- the worse it,s going to get... You are very emotional right now- being a musician you know as well as I that some of the best songs ever written and music composed were the product of life hardships(death,illness,broken heart,etc.) I bet if you transfered your emotions into music you would have one hell of a CD..You have all the inspiration one could ask for... Maybe you could cut a CD and donate some of the profits to cancer research!!!!!! If you did this you would not only personally beat cancer--You would make it possible in some ways for others to beat cancer...How cool would that be??????? Just a thought!!!! I'm trying to get your mind off of the negatives and reflect on all the possitves!!!!!! DON

[Chris'Mom]

I like your quote Jane...so true.....life is very fragile....Adrian, be positive and take care...Mary Ellen

[AdrianB1971]

sudden death vs slowly death

I have to work at my english too....
I agree that the future cannot be predictable but we cannot compare [for the dying one point of view] the sudden death [car accident and so on..] with a slow cancer death. The cancer destroys not only your biologic machinery...but your soul too. Slowly. Here is the real tragedy for DYING ONE. For friends and loved ones is the same thing : the death.

The real victory against the cancer will be when no part of our body is needed to be removed as primary treatment. Some smart programmed cytotoxic cells will be injected and that will be all. [what a nice days ]
We will go to med and he will say : I have cancer..please go to X lab for specific agent preparation. Simple. I'm sure that will be done in 10-20 years.
And I think also that all of us will live until then !!!!

Hey you guys : maybe after few years of surveillance we will manage to meet somewhere in Europe or America. You all are a wonderful people who know the mercy of God and the pain of possible death. I think this site is a real great thing for all of us. At least we are here, all the damned young guys

[jdunn]

Mary Ellen,
Sorry to hear about your neighbors untimely death. It's so tragic
It makes you think how fast and precious life is.
I have always remembered this quote "live each day as if it were your last day on earth"

[Chris'Mom]

Adrian, you can't predict the future....a 19 year old Cornell University student across the street from us died last night from a party he went to on his break home...drank too much and in his sleep choked....his mom is a teacher and they had to come in and tell her during her classes...everyone is shocked...our community was shocked about Chris getting TC, and this young man is the one who died....and Chris is doing fantastic! Life is funny, and yes Lance A. was interviewed recently about Dana Reeve dying from Lung Cancer and said we must do more in the area of research.....its been too many years...take care..Mary Ellen

[Eric]

Thank you

Thank you karen for your support. I just finished my 4 bep chemo 3 weeks ago and really don't want to have more than that. It has been a tough winter for me, my wife and daughters. Now with spring comming i need to get back to work and enjoy a normal life again. It's very hard to play a waiting game like this because i think about it every minute in the day. I am positive because i know that my chances are high but sometime i think about the worst and i try to make it go away. Everthing will be better after march 21.

[Karen]

I personally subscribe to the red wine and chocolate diet for cancer prevention (I hope). Of course after too much of that I'll need obesity prevention.

My background is that I am a research biochemist, although not in the oncology field. Cancer is an incredibly complex disease. Great strides have been made...the perfect example is with TC, which 20 years ago was practically a death sentence. My sister and cousin were diagnosed with leukemia in 1967-68, The chance of survival at that time was less than 10%...now it's more than 90%. I fully agree that more money needs to be spent on cancer research but throwing money at a problem doesn't solve it. I hope and pray that with the advances in genetic research, and more pharma companies focusing on this area, that when my daughter grows up the survival for all cancers will be greatly improved...as well as early detection methods including blood markers.

Eric,
Good luck on your follow up March 21...and your English needs no apologies....it is fine!

[Eric]

Adrian

I am feeling very anxious this week too because i will have my scan result only on march 21 so even if my chance of cure are more than 90% i am going crazy in my house trying to guess the results. And i know that my cancer has responded to chemo because i had chest x-ray after my first cycle that showed that my 2 lymph node has reduced dramaticly.

Now i agree with you that radiation and chemo are probably not the best way to treat cancer but it works for a lot of people. In my country(canada) there are some people who are doing research with food(vegetables and fruit) that can kill cancer cell. For example, curcuma, brocoli, red wine, chocolate are cancer killer when placed directly on cancer cells. The problem is that they need a high dose of each for a human. So they needed more money to continue their research but not everybody believe in this, that's why it will take a lot of years to have results. But they begin to announce in some documents that if you eat curcuma regullarly you can avoid certain type of cancer. Sorry i have to improve my english.

Eric