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  • my boyfriend/bestfriend is dying of cancer

    hey...my name is danielle. my boyfriend found out about a month n a half ago that he had tc. the doctors did surgery to remove it and started chemo right away. they ran more test to find out that the cancer has spread into his liver and now starting to go into his bones. he is only 19 years old! is there anything more he can do besides the chemo to help fight this off and stop the growth? he is very athletic and healthy other than the cancer. he is doing chemo treatments every day but the doctors are still only giving him 3-6 months to live. please let me know what i can do to help and be there for him. advise...anything! thank you so much!
    ~Danielle
    "Courage is the power to let go of the familier."

  • #2
    Danielle,
    So sorry to hear this. If you can provide more info on the type of tc (include percenatges if non-seminoma present), the stage and the treatment he's getting and where he's being treated we can support and help you more. Lots of guys on this site have faced incredible odds and are here to tell about it. Don't lose hope!
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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    • #3
      Danielle:
      Have your boyfriends family get in contact with one of the experts from the attached list. http://tcrc.acor.org/experts.html It is amazing what they can do even with advanced cases.
      Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

      Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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      • #4
        my thoughts and prayers go out to you, your boyfriend and each and every person effected by this! dont give up, stay strong and have faith!!! all the best, brian!
        diagnosed 01/15/2005 bi-lateral seminoma stage IIa,4cm lymph node, right I/O & partial left I/O mar/2005, 18 days of radiation, remaining left I/O- aug/2005, surveillance, Wife did IVF oct/2005, DAD OF BABY GIRL born 08-02-2006!!! testosterone implants May 2008

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        • #5
          thank you. i will get more info up here asap. he hasn't talked too much of anything except for it is in the 3rd stage n in the liver and starting to go into his bones. we just found this out last wednesday so we are both still trying to accept it. i have been reading so many books on chemo n tc that i don't think there is much i don't know about it! he at the moment lives over in belarus which is right next to russia. he will be moving here in june if things are going ok. if not, i will be moving there at the end of the summer. i am suppose to head off to college and what not, but i feel i need to be there for him. i thank you guys for your support and prayers! it helps to know that he n i aren't the only ones going through this. i will get details up as soon as i get them. thank you again!
          ~Danielle
          "Courage is the power to let go of the familier."

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          • #6
            Danielle, keep up hope, and please do take dadmo's advice to call in the experts. It can make a world of difference.
            Scott, [email protected]
            right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


            Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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            • #7
              So sorry to hear about this but there are some amazing treatment plans out there for Tc and I hope and pray all will go well with his treatment. You have found a good place for info and support. April
              Wesley's TC
              Non-Seminoma
              90% Embryonal 10% Seminoma
              Stage IIIa
              Treatment: Left I/O 4/11/05
              4XBEP 4/25/05
              08/05 -Surveillance & Many Scans/X-rays

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              • #8
                update and questions...

                hey guys..sorry i haven't been on. things have not been going the best. for all of you who have gone through cancer yourself or with someone, how did they react to different chemos? my boyfriend started another chemo on monday. the doctors have stopped the growth of the cancer and now are trying to get it out of his liver so they can do a transplant. after the new chemo treatment he went home, tired as usual, but then went into seizures. he then went into shock and his family took him to the hospital right away. at the hospital he went into another seizure then into a comatose state. he was in a coma for 2 1/2 days. the doctor had suggested all different ways to try to bring him out and one was music. his sister started playing different songs and it did nothing... then she played his and my song by richard marx and he came out of it and is now stable again and doing well. if anyone else has dealt with this in any sort of way, please let me know. i'm not sure if it is normal for him to react like this to the new chemo or what to think of it. thank you to all of you who have been giving me advise... it really means alot!
                ~always~
                danielle
                "Courage is the power to let go of the familier."

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                • #9
                  Your post really shook me up. What a pair of troopers you are. You don't need a miracle yet, just good medical science, but I will say a prayer anyway. Hang in there. Dianne
                  Spouse: I/O 8/80; embryonal, seminoma, teratoma; RPLND 9/80 - no reoccurrence - HRT 8/80; bladder cancer 11/97; reoccurrence: 4X
                  Son: I/O 11/04; embryonal, teratoma; VI; 3XBEP; relapse 5/08; RPLND 6/18/08 - path: mature teratoma

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                  • #10
                    First, what regiment is he one, which chemo drugs? Also, a common cause of seisures in TC is cancer metastatic to the brain. Have they done an MRI. I am truly sorry to hear things aren;t going well. My prayers are with you and I hope some good news comes your way.

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                    • #11
                      Can't provide insight to what's going on, but I can add prayers for strength and healing. I'm sure you're an great source of strength for him....hang in there...we're with you in spirit.
                      Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

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