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Anxiously Waiting

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  • Anxiously Waiting

    This is new to me. I was diagnosed in June of last year with stage III, TC. Disease was in testicle, abdomen, back, chest and lungs.

    Just recently recovered from RPLND at USC and now set to go back and have neck dissected due to remainning teratoma. Even though markers responded well to Chemo Teratoma is resistant and also persistent. Also pending are other side of neck, chest and one spot located next to spine. Extremely nervous and anxious due to what I experienced with RPLND. Not a fun experience at all as BLEO severly damaged my lungs. (Breathing machine for two and a half days is no walk in the park).

    Wondering what to expect with the rest. Has anyone else had a similar experience that can shed some light on situation? As each day passes I become more weary of another surgery Also is there any support groups that someone can recommend in the southern cal. area???

  • #2
    Hey, Brad, how have things been for you since you made this post? Did you find a local support group?
    right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since

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    • #3
      Well things have gotten a little bit better. Had a left neck dissection about three weeks ago to remove what they thought was mature teratoma. Fortunately it was all necrotic tissue. What a relief. Went a lot better than they had expected. Haven't had any luck with a support group other than reading new posts here each and every day. I guess it makes me feel a little bit more at ease when I know I am not alone. If that makes any sense.
      Just trying to research what my options are with my chest. Telling me I have to have all nodes removed in chest, but I don't want another major surgery. Trying to find a reputable doctor that would do laproscopic if possible. Any suggestions?
      I know that you are one of few that had lapro RPLND. If had to do it again, which would you do Lapro. or the traditional way? I know they say taht opening up everything is the best way to get it all but it is just so involved.