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I'm Screwed

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  • I'm Screwed

    Just went back to the doctor's today. Finished chemo up at the end of feb - beginning of march. AFP was 5 now its 22. BHCG remains unchanged <2. Cat Scan is all clear. I was initially diagnosed with Embryonal carcinoma.

    Doctor says he doesn't understand. So, he ordered another blood test and says depending on that result (to determine if there is an error or not) he will have me do yet another cat scan.

    Question: WHAT IS GOING ON???? I responded so well to chemo, heck even my 2 lymph nodes that were slightly enlarged were normal on the last post-chemo scan.

    Why would my AFP go up, but BHCG stay low if i had embryonal carcinoma???
    Diagnosed August 2005
    R/O August 2005 AFP 210

    4xEP beginning December 2005
    End Feb/March 2006 AFP 4.6
    April 2006 AFP 22 and rising

    Tandem Stem Cell Transplant 7/06 - 9/06
    December 07 AFP = 3.3
    December 07 CT = Clear!

    15+ months remission

  • #2
    The blood test may very well be wrong. I agree with the doc, run the blood work again and if it's still elevated take a look at the nodes.
    Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since.

    Treated by Dr. Rakowski of Midland Park, NJ. Visited Sloan Kettering for protocol advice. RPLND done at Sloan Kettering.

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    • #3
      Hmmm, I suppose the units of measurement (ng/mL) really are the same on both reports, right?
      Scott, [email protected]
      right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since


      Your donation funds Livestrong services for people facing cancer now. Please sponsor my ride!

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      • #4
        Chill, man. Realize there are lots of things that can give off false positives in the AFP test:



        Smoking, tylenol, alcohol consumption, sex, drugs, rock-n-roll (well maybe not the last one) can all cause increases in AFP.

        Get a retest, relax, and see what transpires. Cancer can't be assumed until AFP has risen to at least 25 ng/ml, and that's assuming a trend, not just a single testing episode.
        Vinny (aka Frank)
        http://vinnysgotcancer.blogspot.com

        left I/O 1/5/05; 95%EC / 5% mature teratoma; stage IIIC
        4x BEP 1/24/05 - 4/11/05; RPLND (left side) 5/31/05
        VATS resection of teratoma from left lung 4/26/06
        Presently surveilling

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        • #5
          OK new question. I read on here about "fluid". My cat scan came back clear but did say there appears to be "fluid" in the pelvis area, but less than what was there before. Someone on here said that this fluid could cause the AFP to rise???
          Diagnosed August 2005
          R/O August 2005 AFP 210

          4xEP beginning December 2005
          End Feb/March 2006 AFP 4.6
          April 2006 AFP 22 and rising

          Tandem Stem Cell Transplant 7/06 - 9/06
          December 07 AFP = 3.3
          December 07 CT = Clear!

          15+ months remission

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