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Hello everyone,
first of all i'll say that, although this is my first post, i've been viewing this forum rather intensely for about to weeks now, and have come to the conclusion that this is the place to be to ask questions and recieve support. so here goes: i got the news on April 20, recieved a CT scan the 21, underwent the left inguinal orchiectomey the 24'th
I was diagnosed with stage II nonseminoma, with a "very large mass in the left side of the abdomen, measuring 12 cm in width x approximately 10 cm in AP dimensions and extends in the cephelacaudal demension for approx. 18 cm which had the apppearance of a large necrotic lymph node mass... with another retroperiteneum soft tissue mass measuring 2.3 cm...there appear to be some small retrocrural lymph nodes at the diaphragmatic hiatis the largest measuring 1.2 cm. So basiclly, i have a lot of large "mass" in my abdomen, and i can tell you it's visible to the naked eye.
my blood tests were returned with AFP level at 3386, and HCG at 1465, i was told this was high. i was then referred to a oncoogist immediatly after orchiectomy, and was told that chemo was necessary, and soon, so i was told to begin the next monday (May1'st) on 4XBEP cycle. However, i was also told that the pathology report would completed by that monday. when i finaly spoke to the doctor on monday, i was told that the pathologist had found nothing but mature teratoma, which is bengin but, as he said, with markers like that there is no doubt that there is a malignancy of some sort in my abdomen, and/or was a malignancy in the testicle, but had either not been found by the pathologist, or had once been malignant but then had subsided into the non malignant teratoma. but question remained, what specific malignancy was it? so, i proceeded with my first cylce of chemo anyway. i'm now in my 10th day of chemo and still no pathology report (completed). today i've faxed my oncoogist and requested he send the specemin to Indiana dept. of Pathology
i guess my quetion is this: does it sound viable to be jumping into a 4XBEP regime without having my final pathology report (in it's most complete form at least)? I know BEP is sort of the standard, but what if my report reveals something out of the ordinay, will i be going through chemo unnecessarily? and for an entire 4 cylcles? what if i need different/additional chemo drugs?
thanks in advance for the help
first of all i'll say that, although this is my first post, i've been viewing this forum rather intensely for about to weeks now, and have come to the conclusion that this is the place to be to ask questions and recieve support. so here goes: i got the news on April 20, recieved a CT scan the 21, underwent the left inguinal orchiectomey the 24'th
I was diagnosed with stage II nonseminoma, with a "very large mass in the left side of the abdomen, measuring 12 cm in width x approximately 10 cm in AP dimensions and extends in the cephelacaudal demension for approx. 18 cm which had the apppearance of a large necrotic lymph node mass... with another retroperiteneum soft tissue mass measuring 2.3 cm...there appear to be some small retrocrural lymph nodes at the diaphragmatic hiatis the largest measuring 1.2 cm. So basiclly, i have a lot of large "mass" in my abdomen, and i can tell you it's visible to the naked eye.
my blood tests were returned with AFP level at 3386, and HCG at 1465, i was told this was high. i was then referred to a oncoogist immediatly after orchiectomy, and was told that chemo was necessary, and soon, so i was told to begin the next monday (May1'st) on 4XBEP cycle. However, i was also told that the pathology report would completed by that monday. when i finaly spoke to the doctor on monday, i was told that the pathologist had found nothing but mature teratoma, which is bengin but, as he said, with markers like that there is no doubt that there is a malignancy of some sort in my abdomen, and/or was a malignancy in the testicle, but had either not been found by the pathologist, or had once been malignant but then had subsided into the non malignant teratoma. but question remained, what specific malignancy was it? so, i proceeded with my first cylce of chemo anyway. i'm now in my 10th day of chemo and still no pathology report (completed). today i've faxed my oncoogist and requested he send the specemin to Indiana dept. of Pathology
i guess my quetion is this: does it sound viable to be jumping into a 4XBEP regime without having my final pathology report (in it's most complete form at least)? I know BEP is sort of the standard, but what if my report reveals something out of the ordinay, will i be going through chemo unnecessarily? and for an entire 4 cylcles? what if i need different/additional chemo drugs?
thanks in advance for the help
testosterone implants May 2008
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